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I was diagnosed with a rare form of Acute Myeloid Leukemia with FLT3 mutation last year at 28 years of age.
After undergoing 4 rounds of chemo and a bone marrow transplant from an unrelated donor in Germany, I am OFFICIALLY cancer free!
It feels great. I am truly blessed. I am thankful for everyone in my life and most importantly, I thank God every day for what I have in my life. "By Jesus' stripes, I am healed"
If anyone has any questions, or just want to reach out - I am here to talk/vent to!
Congrats! How difficult was the donor transplant? Any graft vs host disease?
the donor transplant process took longer than expected because it was difficult finding a good match at first. My sister was not a match so it took an extra 4 months to find someone. It took a long time waiting, but it could've been years so I'm thankful for that! The actual procedure was simple actually. It was very similiar to a blood transfusion. They gave me benadryl which knocked me out right after they started the transfusion. I did have some mild complications in the days following the transplant but it was all treated immediately by my amazing doctor and nurse staff. I did get a fever of 104.8 and I was in a very critical situation which almost landed me in the ICU, but I stayed positive and overcame everything.
I have had graft vs host disease of the skin. I cannot stay out in the sun for long periods of time, otherwise I get a rash which I have to treat immediately with steroid cream - so needless to say I'm very pale this summer =( I had to get PUVA light treatments after I was released from the hospital to keep the rashes under control.
But now, a little bit more than one year post transplant - all skin rashes are gone and everything has been great!
I truly can't believe this really happened to me. I have no idea why but I'm glad this nightmare is over!
What a wonderful story: we have or should say had, because we haven't seen them in 30 years friends in CA. There little daughter was diagnosed at about 4 years old. She is not probably about 40, married with a couple of kids and as far as I know, based on what mutual friends say is doing fine.
We also have a friend from church, she is the wife of one of our retired pastors: diagnosed in 2001, is not almost 90 and still doing well. The Leukemia never returned.
For all the sad stories we hear, there are just as many happy ones. Science has come so far..
Wonderful!
My cousin is currently undergoing treatment for the same kind of leukemia - same age too. He was diagnosed a little over a month ago. Your post gives me even more hope!
We knew a girl (about 13) lived across the street and got some form of leukemia and went through a long treatment and recovery - we're so glad she survived (except for reproductive ability - a small price to pay, I guess).
I wish 'science' could determine how/why these things happen. The younger the patients are, the more I'm confused by what could possibly cause such things - and I assume scientists are curious as well.
This young girl also had a younger brother - so naturally their mom worried LOTS about siblings - who ate same food, same living conditions, etc, etc. It would just be nice to reduce or eliminate known influences on such things (nightmares!). Hopefully, one day......
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I had Breast Cancer.
