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Old 10-11-2013, 06:27 AM
 
Location: Utopia
1,999 posts, read 10,565,838 times
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I read about Angelina Jolie getting genetic testing which is how she found out about potential future breast Cancer. I know deCODEme genetic testing used to provide these answers for a mere $99, but since Amgen bought this company out I cannot find where to buy a deCODEme test or similar. Anyone here know?
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Old 10-11-2013, 07:39 AM
 
Location: NoVa
803 posts, read 1,667,837 times
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23andMe tests for it, as part of their "full package" service, and only costs $99. However it is potentially inaccurate and not the most thorough test, and should not be used to diagnose yourself nor should it be used as a substitute for physician's care.

https://customercare.23andme.com/ent...the-BRCA-gene-

Personally I'd shell out more money ($500-$1000, assuming insurance coverage) for a more reputable, thorough test, which seems to be what Angelina did.

Last edited by ASOT; 10-11-2013 at 07:48 AM..
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Old 10-11-2013, 07:48 AM
 
Location: Utopia
1,999 posts, read 10,565,838 times
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Personally I'd shell out more money ($500 or so, assuming insurance covers it) for a more reputable, thorough test.[/quote]

But where do you find a more thorough test? I have nothing wrong (I hope anyway), but felt one of these test would be good so you know what to do to avoid any inherited diseases if you can. Know where I can find one of these tests anyone????
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Old 10-11-2013, 10:38 AM
 
10,114 posts, read 19,401,000 times
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This would also be a good idea for our adopted children, we do not have birth family history. However, I would be concerned about possible discrimination in the future with employment, etc...have to consider all angles
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Old 10-11-2013, 10:45 AM
 
Location: Canada
7,680 posts, read 5,526,207 times
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I just spent a few minutes doing a Google search. Apparently testing can cost thousands of dollars.

The sentence on this page stuck out to me though:

Quote:
Genetic tests should be requested by doctors who know about genetic illnesses, the genetic tests available, the usefulness of these tests, and follow-up care.

This seems to be a good starting point for information: Genetic Testing: What You Need to Know
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Old 10-11-2013, 12:01 PM
 
Location: Georgia, USA
37,110 posts, read 41,250,908 times
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There is a battle shaping up over genetic testing. The fact that the companies like 23AndMe can offer what they do for the price that they do it means that the companies that sell the tests for medical purposes are charging way too much. Now those companies want to keep those tests proprietary so they can charge more.

This from the founder of Family Tree DNA:

www.freemygenes.org/Family Tree DNA Face a Lawsuit and Your Assistance is Requested - Eastman's Online Genealogy Newsletter

This is breast cancer awareness month. Let your elected representatives know that you want affordable genetic testing.

FreeMyGenes.org
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Old 10-11-2013, 12:45 PM
 
Location: NoVa
803 posts, read 1,667,837 times
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Quote:
Originally Posted by MaryleeII View Post
This would also be a good idea for our adopted children, we do not have birth family history. However, I would be concerned about possible discrimination in the future with employment, etc...have to consider all angles
It's already prohibited under GINA and I think ACA. Not that it won't stop some employers and health insurance companies from trying...
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Old 10-11-2013, 01:15 PM
bjh
 
60,079 posts, read 30,382,128 times
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Quote:
Originally Posted by TootsieWootsie View Post
But where do you find a more thorough test? I have nothing wrong (I hope anyway), but felt one of these test would be good so you know what to do to avoid any inherited diseases if you can. Know where I can find one of these tests anyone????
You would find a more thorough test by going to your doctor and asking about it.
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Old 10-11-2013, 02:02 PM
 
1,006 posts, read 2,215,509 times
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Quote:
Originally Posted by bjh View Post
You would find a more thorough test by going to your doctor and asking about it.
Many docs are exceptionally clueless about genetic testing, let alone able to make a meaningful recommendation.
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Old 10-11-2013, 02:10 PM
 
Location: Utopia
1,999 posts, read 10,565,838 times
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Quote:
Originally Posted by suzy_q2010 View Post
There is a battle shaping up over genetic testing. The fact that the companies like 23AndMe can offer what they do for the price that they do it means that the companies that sell the tests for medical purposes are charging way too much. Now those companies want to keep those tests proprietary so they can charge more.

This from the founder of Family Tree DNA:

www.freemygenes.org/Family Tree DNA Face a Lawsuit and Your Assistance is Requested - Eastman's Online Genealogy Newsletter

This is breast cancer awareness month. Let your elected representatives know that you want affordable genetic testing.

FreeMyGenes.org


This is the smartest comment on City-Data.com today I think. I agree, obviously. I think these smaller companies like 23andme.com will be eventually eaten up and merged into major companies that only work with medical institutions/physicians = 'mo $$$$$.
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