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I should provide some background info- I was approved for SSDI last year. I am permanently disabled but am up for review in 3 years. My disability attorney says this is likely because I'm "young" and "educated" and so SSDI likes to keep a close eye on recipients like me. I know it's important to continue to go to the doc once you get approved. No issues there as my health has gotten worse since I got approved! I am at the docs more now than ever.
Anyways, my concerns are that me relocating out of state will "look bad" somehow in the eyes of SSDI. I am considering relocating to Houston because they have hospitals there that specialize in my rare conditions. Obviously I'd continue going to the doctors once I move there. However, I am worried that the new doctors won't be an advocate for me. My doctors here where I live now all told me that I am severely disabled and understand the scope of what I am dealing with and how it impacts my daily life. However I was reading some comments from people in Facebook groups that talk about doctors not taking them seriously. And those doctors are the "experts"! One girl said her doctor said "you're too young to go on disability, I am not going to write anything to support that notion!" sadly there are still people that think you must literally be a paraplegic or be on your death bed in order to get SSDI.
My concern is that if I stay here, where the docs don't really know how to manage my care or help me that I will just slowly get worse (which is what has happened over the years!). Moving to Houston will hopefully give me a chance to feel better or at least have a better quality of life. My diseases are progressive so I know there is no cure. So do I stay here with sub-par care but guaranteed disability? Or relocate where I may get better care but potentially risk losing SSDI?
Has anyone here relocated out of state while on SSDI? What was your experience? Did you notify SSDI to tell them who your new doctors were??
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