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Old 08-03-2010, 07:31 PM
 
Location: Canada
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My OB thinks I may have this condition but it haven't officially been diagnosed with it. I have horrible periods and pelvic pain the whole time. I have very heavy periods with large clots sorry tmi.
Does anyone actually have adenomyosis and what symptoms do you have? What has worked for you as far as treatment?
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Old 08-03-2010, 09:57 PM
 
Location: Georgia, USA
25,157 posts, read 30,047,716 times
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Quote:
Originally Posted by lisalan View Post
My OB thinks I may have this condition but it haven't officially been diagnosed with it. I have horrible periods and pelvic pain the whole time. I have very heavy periods with large clots sorry tmi.
Does anyone actually have adenomyosis and what symptoms do you have? What has worked for you as far as treatment?
Adenomyosis is a condition in which the uterine lining tissue has burrowed into the muscular wall of the uterus. It is difficult to diagnose for sure without doing a hysterectomy.

Hormone treatments which decrease or eliminate the menstrual period can help the symptoms but do not cure the problem. These include birth control pills or the Mirena intrauterine system. The results with Mirena seem to be mixed, with some ladies reporting decreased bleeding but still having pain. Ablation of the uterine lining may or may not help. If the adenomyosis is deep, an ablation may miss it.

See here for a brief discussion:Understanding the Basics of Adenomyosis (http://www.endometriosistreatment.org/html/adenomyosis.html - broken link)

If you are sure you do not want any more children, the most direct approach is hysterectomy. It is not necessary to remove the ovaries, and a marked improvement in quality of life is likely.
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Old 10-31-2012, 06:37 PM
 
Location: Harrisburg, PA
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I was diagnosed with adenomyosis via MRI. I used to get moderate period pain (hurts...but not extreme, with vomiting and doubling over in pain) and heavy periods. My OB/GYN prescribed Naproxen (this is before getting diagnosed) which lightened up my flow and took the pain away. I would still get physical PMS however (bloating and low back pain the day before my period).

Two cycles ago I started using progesterone cream on the second part of my cycle (I'm trying to conceive, so I can only take it after ovulation has occurred) and B-Complex vitamins. Instead of Naproxen, I only took one Advil (much weaker, and only stays in your system a few hours). My period was heavy and clotty...but I had no PMS and mild cramping (although it was annoying enough for me to take that Advil)!

If you have no issues with drugs, Naproxen does wonders. For me though, I would rather be drug free on not dependent on synthetic stuff (which is why I'm trying out the vitamins and progesterone). I also heard that birth control pills and the Mirena IUD can help out as well.
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Old 11-05-2012, 01:57 PM
 
Location: NoVa
18,434 posts, read 30,284,428 times
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I was diagnosed with this; post hysterectomy in my mid twenties. My drs were sure I had endometriosis and for two years wanted me to have the hysterectomy. I finally gave in and had it. I decided that two children were enough and would like to be without the pain.

When I look back, I think things could have been done differently. I wish I had not had the surgery and I wish my dr had a more modern way of thinking. I was young, and I trusted his decision.

I don't think he made a mistake, but all these years later, I do wish I could have had another child.

Ah well. Such is life.
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