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Old 08-17-2010, 11:39 PM
Location: Tennessee
28,659 posts, read 48,772,286 times
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Central Hypoventilation, or Ondine's Curse, Is Fatal and Strikes Only 300 Children in the World.

When Liam Derbyshire lays himself down to sleep, he might pray the Lord his soul to keep.

British Boy With Ondine's Curse Can't Sleep Without Dying - ABC News
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Old 08-18-2010, 12:17 AM
Location: 38°14′45″N 122°37′53″W
4,152 posts, read 10,046,354 times
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Our friend's daughter has this very same syndrome. It's been very very difficult, but she just had her tracheotomy removed and is now using a night mask! Such a relief!
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