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Old 09-13-2010, 07:21 AM
 
Location: Pennsylvania
1 posts, read 1,871 times
Reputation: 11

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My 17 year old son has had continiuos muscle pain for more than 6 months. Doctors still do not have a clear diaginois are treating him with different medicines for fibromyalgia and arthritis. He is so unhappy.
He can't sit stand or walk too long or he almost passes out. He also sleeps alot. He is a senior this year and does not want to miss as many days this year as last year. He wants to attend College in a warm climate. His primary doctor is a pediatric rhematologist. Numerous mri's have shown to much wear and tear for someone his age....muli herianiations, a small lesion, mild scoilosis.
We are at our wits ends with doctors and research.
HELP.
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Old 09-13-2010, 08:30 AM
Status: "County of Surreal" (set 18 hours ago)
 
9,533 posts, read 11,485,564 times
Reputation: 13912
Have you gotten 2nd and 3rd opinions? If you're not getting what you need from Doc 1, try another with a good, solid reputation, even if you have to travel far and wide. It would be worth it.
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Old 09-13-2010, 05:36 PM
 
1 posts, read 1,844 times
Reputation: 12
Quote:
Originally Posted by Karen Ann Foley View Post
. Numerous mri's have shown to much wear and tear for someone his age....muli herianiations, a small lesion, mild scoilosis.
We are at our wits ends with doctors and research.
HELP.
So sorry to hear of a child in pain. I have secondary progressive MS and I know a little bit about it. MS was once thought to strike only in young adults but we now know it can happen at any age.

Pain is not usually a first indicator of MS, but you could not rule it out without the right testing. If he's had MRI's have they been with and without contrast? That is how MS is usually diagnosed. A rheumatologist would not be the right Dr. for MS - he'd need a neurologist. If the radiologist reading the films isn't looking for MS, they often miss it.

So ask if they used contrast and if they did, what areas were imaged (brain, cervical spine thoracic spine are normally done for a dx). Then ask them to specifically look for MS - the correct testing procedure and reading should give you the answer if you can rule MS in or out.

Good luck
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