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Old 10-29-2011, 01:10 AM
 
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Okay, so I'm not sure if anyone on here can actually help me since doctors don't seem to know what the hell is wrong with me, but I thought I'd throw it out there anyways and hope someone might help.
For years now, I've had a number of symptoms that seem to come and go, and it's mostly been an annoyance so far that I've just been putting up with, but in the last few months it seemed to have gotten worse and is really starting to affect my life.
I spent yet another number of hours today sprawled on the couch trying to get my 22 month old to play by himself, feeling so guilty yet just not being able to lift myself off and move around without feeling like I was going to pass out or puke . This is the sort of exhaustion I've been having periodically lately. I'm 28 years old, yet I feel like I'm coming apart! There's a bunch of different things I've been experiencing, some daily and some occasionally. I guess I'll just list them by points. Sorry it's soo long, but I figure the more detail I provide the better. So here goes:

1) fatigue. This is pretty much every day, but worse some days, better others. It's especially bad the first part of the day, esp first couple of hours after waking up. I usually get enough sleep, and it's not sleepiness, it's physical, body fatigue like when you've overworked out or coming down with something. I am okay when for the first hour or so after waking I can sit down and just rest. But if I need to go or do something - oh god. I feel sick, extremely physically weak, like to the point where I can't stand up for longer than 10 minutes at a time, and there's like an achy feeling somewhere deep inside my torso that I can't pinpoint. If I get up earlier than usual or got less sleep I'll also be dizzy, lightheaded and nauseous. Really makes a hell of a start to the day.
2) the nausea hits at other times too. I've been diagnosed with IBS years ago, which generally just manifests as mild intestinal distress, bloating, and irregularity, also much worse in the mornings, but lately I've also had what i call 'nausea attacks' - it's a bit like a panic attack - except there's no actual panic. I get nauseous for a few minutes, then I'll start getting dizzy and lightheaded and feel faint, and then a few minutes later my stomach will cramp up and I'll need to run to the bathroom. I can't connect these to any pattern. Of course often once the nausea hits I do start to panic because I've got a terrible fear of gastrointestinal illness, ever since a horrific episode of norovirus my husband brought home, so I'll freak out it's that again, or food poisoning, which ends up making me paranoid too, and then I'm relieved it's just one of my 'attacks'...
3)speaking of illness...in the last year I've been getting sick so often. It's mainly just colds, but if I used to get 2-3 year, now it's every 2-3 months andI've gotten some even 2-3 weeks apart. As soon as I get even a bit of a chill or walk in the cold wind, my glands start getting sore and I end up with a sore throat and then the rest of it. And when I'm sick, the fatigue really wears me down, I'm always baffled how other people can go to work when sick. I don't even mind the symptoms like cough and runny nose - but the fatigue/malaise just kills me! This is also making me paranoid and a germophobe because every time I freak out that I'm getting sick yet again, and having to take care of my son, and I end up infecting him and it's all a whole lotta fun. Of course with the fatigue, whenever I'm not actually sick I feel like I'm coming down with something cause I'm so tired and achy, which just messes with my brain more.
4) I get symptoms of hypoglycemia every once in a while, weak/shaky when I didn't eat for a while
5)I had a body composition test done at a gym recently and they said I was really dehydrated...and I drink water all the time cause I'm always thirsty, and my urine is clear. Wtf?
6)I'm always cold, especially my hands and feet are freezing
7)I often don't have much of an appetite, and the only thing I ever really feel like eating is carbs, simple carbs especially, and some dairy. I have to force myself to eat meat and veggies, 'real food', and I find it really 'heavy' to digest for some reason. Also most raw fruits and veggies give me terrible gas, bloating and stomach pain, which makes it even harder to eat properly.

Oh, and all this seems to get much worse in the second half my cycle, esp week before my period, but is there the rest of the month too.

I've had my thyroid, blood sugar, and iron checked, all normal, though I haven't retested too recently; also tested negative for celiac. Doctors are saying they don't know wth is wrong with me and one dr pretty much implied I was hypochondriac They also keep asking about stress and depression - but the only thing making me stressed and depressed is the fact that I feel like crap most of the time! I'm slightly underweight (but not appearance-wise, I have very light bones). I don't eat a lot, as per point 7, but I don't eat junk or greasy stuff, mostly it's things like bread, cheese, pasta, chicken, soup, plain yogurt, some fruit, salads, and lattes, pastries, and chocolate are my guilty treats. I probably eat a bit too much sugar and refined carbs but often these are the only things I actually feel like eating. I do 30-40 mins of cardio 4-5 times a week, plus running around with my son. But too often I don't even have the energy to play with him and it just gets me down. I'm grateful I don't work right now, when I did and had to get up early in the mornings, it was pure hell. I feel like I come off as being lazy - but I don't want to be! I'm sick and tired of being sick and tired! I really want to have energy like I see other people do, but I don't! Maybe someone has some advice for me....thanks!

Last edited by EvilCookie; 10-29-2011 at 01:20 AM..
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Old 10-29-2011, 01:30 AM
 
Location: Ohio
3,441 posts, read 5,353,656 times
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How much exercise do you get? Has one of your doctors done a full blood workup? Just because you spend enough time in bed "sleeping" doesn't mean you really sleep enough, Apnea is an real/deep sleep killer.
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Old 10-29-2011, 07:08 AM
 
Location: Texas
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You should ask your Doctor, but it sounds like depression to me.
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Old 10-29-2011, 10:35 AM
 
Location: Mostly in my head
19,865 posts, read 57,968,712 times
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When you said you had your thyroid checked, did they do a full thyroid panel? Not just TSH but all the tests? If not, see an endocrinologist. Both over- and under-active thyroid have a huge overlap of symptoms. Most family practice docs and some internists may miss the more subtle clues.

I was told for most of my life that I was borderline over-active thyroid but in truth I had toxic multinodular goiter (over-active). The last year before I was diagnosed, I got a cold/sore throat every 3-4 weeks and it lasted 7-10 days. I was miserable. I had my thyrooid treated with radioactive iodine and now take thyroid replacement pills.
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Old 10-29-2011, 11:43 AM
 
2,540 posts, read 3,618,929 times
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Quote:
Originally Posted by Trackwatch View Post
How much exercise do you get? Has one of your doctors done a full blood workup? Just because you spend enough time in bed "sleeping" doesn't mean you really sleep enough, Apnea is an real/deep sleep killer.
I do about 30-40 mins on my exercise bike 4-5 times a week, plus I try to walk a lot whenever I can and run around with my son in the park etc. I should note I've never felt any invigoration from exercise, I honestly don't know what the endorphins are that everyone talks about as I've never experienced that. Usually I just feel tired.
What does a full blood workup include? They sent me for a bunch of tests the first time I came in with this problem, but I think it just included the things I mentioned, plus some std tests. I haven't been tested for apnea, but I'm not overweight, don't snore, and like I said, I'm usually not sleepy per se, more physically drained. Also if I get to wake up naturally and after 9 am I feel way way better, but if I have to get up earlier than 8:30 I'm usually a wreck regardless of how many hours of I sleep I get.
Quote:
Originally Posted by stillkit View Post
You should ask your Doctor, but it sounds like depression to me.
Mm, thanks, but I really really doubt it, since, well - I'm not depressed
The only thing that depresses me is feeling crappy and not having the energy to do the things I want.
Quote:
Originally Posted by SouthernBelleInUtah View Post
When you said you had your thyroid checked, did they do a full thyroid panel? Not just TSH but all the tests? If not, see an endocrinologist. Both over- and under-active thyroid have a huge overlap of symptoms. Most family practice docs and some internists may miss the more subtle clues.

I was told for most of my life that I was borderline over-active thyroid but in truth I had toxic multinodular goiter (over-active). The last year before I was diagnosed, I got a cold/sore throat every 3-4 weeks and it lasted 7-10 days. I was miserable. I had my thyrooid treated with radioactive iodine and now take thyroid replacement pills.
Don't know about the thyroid test, I'll definitely find out, thanks. I think it was just TSH.

I really have no faith in doctors anymore It's like they've got those blanket diagnoses now like IBS and chronic fatigue which really just mean they don't know what's wrong with you and are too lazy to try and find out. When I first came to a doctor complaining of being exhausted after a full night's sleep and the tests came back normal he pretty much dismissed me after that. He never ONCE asked about my diet or lifestyle, aside from asking if I was stressed or depressed. I mean for all he knows I could've been subsisting on just a gallon of espresso a day! I asked whether it could maybe be some sort of nutritional deficiency and he said no deficiency would cause these types of symptoms Earlier when I've gone to a gastro with IBS symptoms and asked about diet recommendations he said 'don't eat the foods that make you feel bad'. Well, thanks, clearly I couldn't have thought of that myself. Just so incredibly frustrating.
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Old 10-29-2011, 03:10 PM
 
Location: Brawndo-Thirst-Mutilator-Nation
17,706 posts, read 17,753,004 times
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I am not a doctor, please defer to him/her.

To me, it sounds like you are suffering a lot of common and not so common symptoms of your IBS. Here is a link to IBS Symptoms, many of them mirror yours:

Irritable Bowel Syndrome (IBS) Symptoms
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Old 10-29-2011, 09:16 PM
 
Location: earth?
7,288 posts, read 11,252,252 times
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I don't know what is wrong with you, but I would have your thyroid rechecked and also maybe see a therapist . . .I say that because as a young woman, I had similar fatigue (but no nausea or stomach issues) and I have come to believe that I was integrating psychological stuff . . . from a Jungian perspective I think that all of the unprocessed stuff from my childhood was making me sick . . .I was not dealing with it, but I think it was dealing with me.

It is good you have a fairly healthy diet and work out . . . do not give up . . . maybe see a nutritionist, and a holistic doctor (an M.D. who also specializes in holistic health). I would take vitamins too, but I think you need to go to the doctor first and get the advice of a good nutritionist - I think that can also help with the IBS.

Have you gotten rid of wheat and gluten? Also, don't underestimate the toxicity of sugar. It is horrible for you and makes everything inflamed and your PH acidic . . .research foods that are more alkaline . . .

I am not a doctor!
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Old 10-30-2011, 11:13 AM
 
4,267 posts, read 5,454,373 times
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I suggest going to see a naturopath.
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Old 10-30-2011, 12:20 PM
 
6,696 posts, read 7,089,351 times
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You might consider seeing a rheumatologist. Some of your symptoms sound very much like mine, my mom's, and my sister's - we all have autoimmune disorders. My morning fatigue was such that I actually fell asleep in front of people if I wasn't actively engaged with them. I also had brain fog to the point that I'm now having to do six months' worth of paperwork because I was unable to do it when it needed to be done.

Another thing that you can do is keep a journal - what you eat, when, and whenever you have symptoms. You might see a pattern there, but it will be a lot harder to see if you aren't writing it down (especially since extreme fatigue makes concentration difficult). To catalogue your symptoms a bit, download the patient history forms here (this is my rheumatologist's website) and see how much fits. It won't give you a diagnosis, but might help to clarify things a bit.
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Old 10-30-2011, 12:42 PM
 
579 posts, read 783,505 times
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I could have written your post, minus the intestinal issues, though I do sometimes lose my appetite. I suffer from severe fatigue and weakness. I'm slightly underweight, have hypoglycemia symptoms, and all tests comes back normal. I have tried every diet you can name, omnivore, vegan, gluten free, lactose free, sugar free, nothing really helped. I exercise 4+ times a week.

My fatigue started after I had a severe bout of the flu-- was there a "trigger" for you? I've just never been the same since. I used to be much more energetic. Feel free to pm me.
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