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Old 01-19-2012, 10:40 AM
 
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I have a rl friend who just informed us that he was tested and given a diagnosis of Parkinson's Disease..He is completely overwhelmed and alarmed about it and that of course is understandable..

He says he is in the early stages , but I can't see any physical signs of tremors..He said He had several signs that alerted his Dr. to see a neurologist, but didn't say exactly what they were..

He is in his mid fifties and still works and wants to continue to work until and even after retirement.

I am wondering if anyone here has or has a family member who has this dreaded disease that my friend is afraid will very rapidly render him an invalid needing a full time caretaker.

I am interested in the concerns, fears and the changing lifestyles a person may have to get used to and the rapidity of the length between stage one and stage 5..

Thanks in advance for any and all information..
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Old 01-20-2012, 10:41 AM
 
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There's a lot of information out there, and there are some medications that have shown some usefulness in retarding the progression of the disease. A dear friend of our family has parkinson's as does his brother. There seems to be some genetic propensity for the disease.

Recently, there have been a lot of articles about rigorous, demanding physical exercise (specifically cycling, but other anecdotal research seems to suggest that it does not have to be one specific type of exercise) moderating the effects of parkinsons.

Early '50's, would be a fairly early onset, or at least a very early detection. Important to make sure he has a good specialist - who's willing to consider a broad range of treatments.

Good luck to your friend. Invariably, Parkinson's does not end well. But a lot more people seem to be delaying that inevitable fate for longer and longer periods of time.
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Old 02-20-2012, 07:46 PM
 
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Many, many people with Parkinson's Disease do not have tremors. There are a number of motor and non-motor symptoms that result from PD.

Please consult the following sites for information about this disease. It is a scary and frustrating illness, but we can still live productive lives with it. Having a caring family and a community of friends will help considerably.

The only real advice I can give is this: encourage your friend to start exercising if he/she is not already doing so. Also, find a good, respected Movement Disorder Specialist, not just a neurologist who sees all kinds of patients. The drugs for PD are tricky, and very specific to the patient. Even a once a year visit with a MDS will make an immense difference.

There is a lot of support out there for this illness.

The Michael J. Fox Foundation for Parkinson's Research

Houston Area Parkinson's Society

Parkinson's Disease - NeuroTalk Support Groups

Parkinson's Disease Foundation (PDF) - Hope through Research, Education and Advocacy
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Old 02-21-2012, 12:16 PM
 
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Quote:
Originally Posted by Miss Blue View Post
I have a rl friend who just informed us that he was tested and given a diagnosis of Parkinson's Disease.

I'm so sorry. One recommendation would be for your friend to get a second opinion.

Six years ago I had a stroke. I live alone and, after a couple of days of being so disoriented that I couldnt figure out how to get out of bed, I was able to function minimally. I managed to get to my then-doctor, who diagnosed me as having carpel tunnel syndrome.

After a few more days, I was able to figure out that I did not have carpel tunnel syndrome (I had had carpel tunnel surgery a few years prior to that.) I was then able to get to a neurologist who ran some tests and diagnosed me as having Parkinson's.

It wasnt until two weeks later, when I had another stroke that required immediate surgery, that the first stroke was diagnosed correctly. I dont have Parkinson's (and, of course, I didnt have carpel tunnel syndrome then either).

It's simply amazing (and frightening) how many incompetent doctors there are "out there". But even good doctors can make mistakes. I'm not saying that your friend's neurologist is incorrect -- but, with such a serious diagnosis, it's always a good idea to get a second opinion.
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