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Old 12-14-2007, 08:42 AM
 
Location: coos bay oregon
2,096 posts, read 8,349,851 times
Reputation: 1300

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Hi all.....I have an odd request...my 6yr old has recently been tentatively diagnosed with post strep glomerulonephritis. Has anyone else had a child (or as a child) dealt with this before? The Drs say its pretty rare, its the first case that her pediatrician has seen, and appearently the only one in 10yrs around here that they know of.
we can get some infor off the web of course, but much of it is conflicting, and rather baffeling and Id sure like some "been there, done that" advice/comments.
So if anyone can help me out, Id sure appriciate it!!!!
Thanks,
Tiffany
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Old 12-14-2007, 01:34 PM
 
Location: in a house
3,574 posts, read 13,328,829 times
Reputation: 2355
Quote:
Originally Posted by tiffela74 View Post
Hi all.....I have an odd request...my 6yr old has recently been tentatively diagnosed with post strep glomerulonephritis. Has anyone else had a child (or as a child) dealt with this before? The Drs say its pretty rare, its the first case that her pediatrician has seen, and appearently the only one in 10yrs around here that they know of.
we can get some infor off the web of course, but much of it is conflicting, and rather baffeling and Id sure like some "been there, done that" advice/comments.
So if anyone can help me out, Id sure appriciate it!!!!
Thanks,
Tiffany
definitely not common since the onset of antibiotic therapy. I am assuming that you will be seeing a nephrologist, preferrably a pediatric specialist, ASAP!
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Old 12-14-2007, 09:35 PM
 
Location: coos bay oregon
2,096 posts, read 8,349,851 times
Reputation: 1300
they think she got it from a case of mild strep that we didnt even know she had. She had a sore throat that lasted about 2days max, no fever, no swelling, no white spots, so i let it go w/a single dose of tylonal. (oh yes, i have been kicking myself, racked w/sick guilt since then)
anyhow, theres not a nephrologist in our area, so our pediatrician has been going this team effort w/a ped. nephro. up in Portland at the Childrens hospital. Every test/symptom/anythig at all, he is sending up and calling him to talk over. Not a move has been made w/o consulting him first. And we're all under the understanding that if she looks like there is any way she might turn for the worse or doesnt respond to the meds, up to Dornbechers she goes.
At this rate, she looks and feels fine. But we're being very very cautious and watching her so closely. shes getting daily blood pressure checks, and so far so good, no puffyness, no fever, no symptoms at all besides her pee looking like ketchup.
We're taking this minute by minute. I was just hoping someone out there had been through this before.....
thanks so much for your response!!
Tiffany
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Old 08-20-2010, 10:30 AM
 
Location: Georgia, USA
25,258 posts, read 30,105,172 times
Reputation: 31454
Quote:
Originally Posted by tiffela74 View Post
they think she got it from a case of mild strep that we didnt even know she had. She had a sore throat that lasted about 2days max, no fever, no swelling, no white spots, so i let it go w/a single dose of tylonal. (oh yes, i have been kicking myself, racked w/sick guilt since then)
anyhow, theres not a nephrologist in our area, so our pediatrician has been going this team effort w/a ped. nephro. up in Portland at the Childrens hospital. Every test/symptom/anythig at all, he is sending up and calling him to talk over. Not a move has been made w/o consulting him first. And we're all under the understanding that if she looks like there is any way she might turn for the worse or doesnt respond to the meds, up to Dornbechers she goes.
At this rate, she looks and feels fine. But we're being very very cautious and watching her so closely. shes getting daily blood pressure checks, and so far so good, no puffyness, no fever, no symptoms at all besides her pee looking like ketchup.
We're taking this minute by minute. I was just hoping someone out there had been through this before.....
thanks so much for your response!!
Tiffany
Hi Tiffany,

I am so sorry about your daughter. The idea of chronic kidney failure in someone that young is scary, but I am sure that you have been told that her prognosis is excellent.

You have a great pediatrician who is really on the ball, and I think you can trust his or her advice.

This condition is caused by an immune reaction to certain strains of strept bacteria, and some individuals may be more susceptible than others. The immune reaction results in deposits in the glomerulus, the part of the kidney that actually filters the blood. Glomerulonephritis tends to be more severe in adults than in children.

The initial treatment depends on the patient's symptoms, such as swelling and high blood pressure, and medications may not be necessary for your daughter from what you describe. Restricting activity is also unnecessary after the first few days. It is a good idea to decrease salt consumption and limit fluid intake.

Her blood pressure and certain tests of kidney function, including urinalysis, should be monitored long term. She and all other family members should have throat cultures for strept and be treated with penicillin as indicated.

It is very unusual for someone to have another episode, so it is not necessary to take antibiotics for prevention of strept infections.

Please do not feel guilty for missing the strept throat. I do not think anyone would have responded any differently from the way you did, even if the mom was a doc herself! This is not your fault! There are likely many people with mild forms of glomerulonephritis who never even get diagnosed and recover on their own.
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