Internal body tremors spasms crawling sensations you cannot see on the outside (xray, pain)

[rural lady]

Is anyone experiencing inside body tremors or shaking, spasms or crawling sensations you cannot see on the outside?

I've had quite a few different dx but none make any sense to me, I've been told its autoimmune now, its like the Drs. are waiting for something to turn up in my blood, I've been to hematologist I'm having some blood test done this week.

My WBC is high, some other things from my blood tests are out of whack also. The hematologist told me the WBC started to go high in June of 2012 that right when my leg pain started, none of the other Drs. caught this.

Elevated heart enzymes with no explanation for that, will be having a heart cath in a few weeks

Have had low thyroid for years 15+ take Synthroid for that

First a sensation of an electrical jolt like everything was moving inside of my body not showing on outside.

2 wks later burning legs pain still ongoing

7 mo. later a feeling of worms or bugs crawling inside my lower legs, spread to arms, ongoing

17 mo. later severe pain in lower back ongoing.

I've had every imaginable test, CTs, MRI's, Xrays nothing is showing up, I'll need to wait on what the hematology blood test will reveal

Have thyroid nodule, aspirated last yr,was Ok, just had xray for that, Ok.

The inside body tremors, spasms or crawling sensations (what ever they are) are not restless legs or anxiety. (it feels like my body is shaking on the inside and you cannot see it on the outside)

This happens along with pain in back and legs, sometimes arms.

The only meds that takes these feelings and pain away are narcotics and prednisone, without them I cannot do anything, my legs seem so heavy.

The pain meds are wearing down to now I'll need a larger dose.

This started when I was outside, I've been searching on insect bites, snake bites but I don't remember this happening at the time and insecticides.

I used to be active and now I can't do anything, the more I try to do the worse it gets. I'm losing hope and of course the Drs. keep wanting me to come back.

I'm not buying its neuropathy, RA or arthritis. If this post gets old please still reply

Any info appreciated