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Old 10-30-2019, 02:21 PM
308 posts, read 439,233 times
Reputation: 414


There was also Salmonella food poisoning inside of me when they found stones and an infected GB. I think I ate an under-cooked old egg. The pain was severe. My surgeon said my GB was full of puss and I was in the hospital for 3 weeks on antibiotics following my GB removal with a bile bag attached, and given many tests. I was not told I had Pancreaitis. I was told I had a biliary leak from the surgery and a stent was inserted with endoscopic surgery. The bile stopped a few days later draining into the bag, they said my labs were good, I was given another xray, and then they released me. The pain isn't as bad as before, but it is a gnawing cramp, like a bad hunger pain, extended stomach with tightness, a pain that sometimes travels around the rib cage like a gas pain. Passing gas does not relieve it though.This is not constant. It happens on and off. It comes out of nowhere, or sometimes after I eat or worry about something. Stress exasperates it. I can walk without pain and have been to the store and lifted heavy bags and felt ok. I can lay down and sleep ok. This seems to mainly happen when I sit for too long. My bowel and bladder habits are good and a nurse comes here once a week to check my vitals which are good. My surgeon examined me and said it takes time and discounted it. I am seeing my primary care physician in two days. I told them on the phone I want another xray. I read online that I may have a relocation or blockage in the stent, a remaining stone, or ulcer. I do not know, it could be several things. I also have an appointment in December to remove the stent. I am worried because I read online that if stents do not work, then I will have to undergo surgery with a high mortality rate. Thank-you to all the Folks who have read my war story. I live alone like a hermit, never had a major health problem in my life until now, and just needed to talk..Thank-You.

Last edited by glenninindy; 10-30-2019 at 02:53 PM..
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Old 10-30-2019, 08:49 PM
111 posts, read 30,484 times
Reputation: 226
I am so sorry. It's been about 9 years since my sphincterotomy surgery but your story brings back all of the emotions I had. I felt helpless and desperate for help, seeing so many different drs for 6 years... You describe a pain that I think you said radiates around your ribcage? My pancreatic pain radiated from my front RUQ over to my front LUQ and then swung around my left ribcage to then settle into my back, every evening. It was a debilitating pain. I saw a surgeon in Seattle, Dr Richard Kozarek who finally diagnosed me correctly and put an end to my suffering. It did take a long time for my pancreas to then heal and settle down. I had doubts during that time and requested my stent be removed early because of pain. Pancreatitis can be sneaky, masquerading as many different ailments. Mine never showed up on the many labs I had and was mistaken for gall bladder issues. My heart goes out to you. Find an excellent Dr, then give your body time to not be so reactive to all of the procedures you've recently been through. Low fat, low acid, (limit coffee ) limit vitamins, no additional supplements unless medically prescribed. Eat a bland safe diet. There was a time I could only eat saltines, rice noodle bowls or Carnation instant breakfast with milk because any amount of fat or acid triggered the pain. I lost over 20+ lbs. Opiates make pancreatic pain go thru the roof, never take them. Any Dr should know this, but you'd be surprised.
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Old 11-01-2019, 09:37 AM
308 posts, read 439,233 times
Reputation: 414
Withinpines; Thank-You very much for helping me. How are you? Washington has hospitals for very good medical care. I want to tell my Doctor today about SOD and Pancreatitis. I am asking for further tests and a referral to another specialist. You also said that these diseases were tricky to find and that you had to take sooo many different tests. What is the best test you know how to find pancreatitis and SOD?

Has anyone who has had these complications after having their gallbladder out NOT feel the pain worsen during walking or exercising? Walking or exercising does not worsen it. It just happens and leaves after about an hour everyday.

Last edited by glenninindy; 11-01-2019 at 10:25 AM..
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