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Old 01-05-2008, 09:54 PM
 
36 posts, read 92,939 times
Reputation: 44

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Does anyone have experience with this? Treatment options? Ways to cure the awful stink that goes with it?
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Old 01-06-2008, 01:42 AM
 
436 posts, read 653,875 times
Reputation: 133
I was going to post this, but it may be long for others to read. SO, I will direct you to:

http//digestive.niddk.nih.gov/ddiseases/pubs/colitis/

This is the National Institute of Health site. The information there should be useful to you
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Old 03-15-2008, 08:09 PM
 
740 posts, read 1,873,152 times
Reputation: 471
A little history: My daughter, who is 21 years old now, was diagnosed with ulcerative colitis when she was just 16. She has been battling this debilitating gastrointestinal disease for what seems like forever. She started drinking Danactive a little over a month ago. And for the most part she has been symptom free. The few episodes that she has had have been slight in comparison!! She is still taking Colazol 3 times a day.... as well... Hope this helps!
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Old 03-17-2008, 09:50 AM
 
Location: Upstate NY
110 posts, read 271,833 times
Reputation: 164
First, you need an EXCELLENT GI. One who knows his or her business and is not afraid to admit they don't have all the answers ... like mine. The above thread, "Treatment for UC" is one of the best I've read. I have exensive firsthand knowledge of this disease and will be glad to help you in any way I can ... just e-mail me & best of luck, Lou
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Old 03-17-2008, 03:52 PM
 
Location: Branson, Missouri
7,295 posts, read 17,564,235 times
Reputation: 3839
Change your diet to make it a more healthy one.
Exercise should also help. The stink you're talking about is coming from the bad toxins locked in the body.
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Old 04-30-2008, 11:09 AM
 
1 posts, read 7,828 times
Reputation: 10
Wink You can overcome

Sorry Sally, everyone seems to react differently to this disease.
35 yo little brother has Chron's - diagnosed in 2000 or so - symptom free since about '02 when, as a result of closed head trauma, he was in a coma and tube fed for about 6 weeks.
I am 42, diagnosed in December '02, worked mostly (two separate leaves of absence totaled about 10 weeks off work) until Jan '06 and have been unable to work since. I have tried asacol, colozal, prednisone, procrit, imuran, nexium, vicodin, marinol, etc, etc, etc, since getting the disease. Still on most while also infusing remicade every 8 weeks for the last 18 months.
My sister is 47 and was diagnosed in '04 or '05. She would not take or could not afford meds - not sure which - and had to have lower colon removed in fall of '06. They will not be able to attach her small intestine to her rectum as there was too much damage and she will have to use the pouch the rest of her life. She is very happy with the decision and recently went on a camping trip with her 10 yo son and his scout troop!

Bottom line is everyone's body is different and you just may not have found right combo yet (meds, surgery, whatever) to allow you to manage your life. While I cannot work due to constant pain, uncontrolled bowels (I even used my office trash can once), and foggy brain due to meds, I have a great life. I got over the depression by realizing I could be much worse off - just stop and look at the world around you and find your silver lining. I have my good days and make the best of them. I plan to do the things I like, and if I have to cancel with a friend, they understand.

Feel free to email me and we can talk more.
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Old 04-30-2008, 11:34 AM
 
Location: Happy wherever I am - Florida now
3,359 posts, read 11,122,821 times
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Seems like you've come to the right place. If you haven't already, the first thing you need to do is get a correct diagnosis. Is it UC, Crohns, or Celiac all with similar symptoms. My son has Crohns and Celiac Disease and has had to have half his intestines removed which had died. My brother has Crohns.

The Celiac (detectable by blood test) can be controlled strictly through a gluten free diet and has resulted in no pain for my son. Crohns is the worst and can cause fistulas which are tunnels eaten through the skin which can harbor bad infections and join organs such as the uterus or bladder to the lower bowel. Hi dose antibiotics can help them if you get them early, otherwise you're looking at surgery and antibiotics.

Traditional meds can cause a lot of bad side effects. I know because my brother takes them and last week coughed and broke a rib (weak bones from steroids, asacol, etc).
Natural treatments include aloe vera pills or juice to heal internal skin, fish oils, and probiotics found in yogurt to rebalance the system.
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Old 04-30-2008, 12:27 PM
 
Location: Fort Mill, SC (Charlotte 'burb)
4,730 posts, read 17,997,737 times
Reputation: 1014
Quote:
Originally Posted by Loujr View Post
First, you need an EXCELLENT GI. One who knows his or her business and is not afraid to admit they don't have all the answers ... like mine. The above thread, "Treatment for UC" is one of the best I've read. I have exensive firsthand knowledge of this disease and will be glad to help you in any way I can ... just e-mail me & best of luck, Lou
I had to switch my GI doctor...previous one dismissed everything as IBS. I had been checked for UC, but the new specialist suspects celiac...I was supposed to go in for an endosocopy today but had to postpone it.
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Old 04-30-2008, 12:28 PM
 
Location: Fort Mill, SC (Charlotte 'burb)
4,730 posts, read 17,997,737 times
Reputation: 1014
Quote:
Originally Posted by Sgoldie View Post
Seems like you've come to the right place. If you haven't already, the first thing you need to do is get a correct diagnosis. Is it UC, Crohns, or Celiac all with similar symptoms. My son has Crohns and Celiac Disease and has had to have half his intestines removed which had died. My brother has Crohns.

The Celiac (detectable by blood test) can be controlled strictly through a gluten free diet and has resulted in no pain for my son. Crohns is the worst and can cause fistulas which are tunnels eaten through the skin which can harbor bad infections and join organs such as the uterus or bladder to the lower bowel. Hi dose antibiotics can help them if you get them early, otherwise you're looking at surgery and antibiotics.

Traditional meds can cause a lot of bad side effects. I know because my brother takes them and last week coughed and broke a rib (weak bones from steroids, asacol, etc).
Natural treatments include aloe vera pills or juice to heal internal skin, fish oils, and probiotics found in yogurt to rebalance the system.
Celiac can be ruled out by a blood tests. Blood tests can now show if a person likely has celiac, but an endoscopy is the only 100% way to check for it.
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