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Old 04-02-2019, 11:33 AM
 
3,395 posts, read 1,205,810 times
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Sheena, you deserve to speak to a nurse or doctor. A receptionist doesn't cut it.
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Old 04-02-2019, 12:25 PM
 
Location: Central NY
5,634 posts, read 4,069,910 times
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Sheena: I think you are getting some wise advice here. If you can just think on it, maybe you will be able to calm down a bit.

I've had phone calls from doctors' offices that have scared me out of my wits. But they all turned out to be nothing to worry about.

My most recent episode was a couple of years ago. My doctor sent me for a chest x-ray. There was a finding so I had a chest CT. The CT was OK, but it did show something around the thyroid. So I had to have an ultrasound. This showed several enlarged nodes. So I had to see a specialist for biopsies. Given the fact a woman I knew had died from thyroid cancer, I was a bit worried. So I had the biopsies, all came back negative.

Now for the kicker. The thyroid specialist told me that many older people have this type of finding (enlarged nodes) but that it was a pretty regular (normal) finding and that I had nothing to worry about.
So what I'm trying to say here is that you can have a lot of tests, worries, and then find out there is nothing to worry about. Since you were told there was nothing "outrageous" about your finding, I think you are safe and can start to relax. They do these tests and the first time you have it done it is your baseline. So that is what the doctor will use to measure progress (or NO progress) of the finding.

Please try to relax and rest.
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Old 04-02-2019, 02:00 PM
 
1,837 posts, read 1,679,534 times
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One thing I tell myself when I get worrisome results such as yours, which happened to me about 6 weeks ago although not my liver, is that if it was a really dire problem the doctor or nurse would have contacted me directly and would have told me to go straight to the ER. Now that's never happened to me but it helps to keep my head straight. For the record, in my case further testing one month later revealed improvement to normal levels and the problem was presumed to be the result of unrelenting stress I'd been experiencing over several months. By then the stressor no longer existed, I'd been eating and sleeping better and was generally more calm and relaxed.

I hope your situation turns out to just be an anomaly. Try to stay calm and carry on which I know isn't easy. Wishing you well.
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Old 04-02-2019, 06:09 PM
 
Location: colorado springs, CO
8,180 posts, read 3,818,263 times
Reputation: 23671
Quote:
Originally Posted by sheena12 View Post
Then she said "your liver enzymes are elevated, and Dr. wants you to have a sonagram and do the blood tests again.' When I inquired further about the enzymes she said "they aren't outrageous".

I am still very scared. I had a friend from college who called me about 12 years ago with the same news. He also had to have a sonogram, which revealed a spot on his liver. He died several years later at 53.
You might be confusing the AFP test with the liver enzymes, which are the ALT/AST, Alkaline Phosphate, GGT & Bilirubin.
Liver cancers secrete alpha-fetoprotein (AFP) but that is not considered a “liver enzyme”.


Quote:
Originally Posted by sheena12 View Post
I'm sorry that my information is so unclear. Pretty much when she used the word "irregularities" I freaked out.
Yeah, “irregularities” is not a clinical term. There is “WNL” (within normal limits), a “high” & “critically high” & a “low” & “critically low”.

Labs are under standard orders to notify doctors of any critical values stat & doctors typically act on them immediately.
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Old 04-02-2019, 06:18 PM
 
Location: Southwest Washington State
28,381 posts, read 18,800,273 times
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Quote:
Originally Posted by Mikala43 View Post
Sheena, please do not take anything, until you know what is wrong.
This! You need more info before beginning something that, at best, might not be helpful.

Get better info about being tested. If you let doc’s office know how worried you are, perhaps he will see you again soon, and you can get more complete information. And you can run supplements by him for his or her advice.

If a certain disease runs in your family, he probably needs to know this too.

I know you are worried sick, but try to think logically about this. And do advocate for yourself.

I think you need a longer talk with your doc.

Good luck!
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Old 04-02-2019, 10:19 PM
 
11,267 posts, read 10,781,071 times
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Quote:
Originally Posted by sheena12 View Post
Yes. I just don't mention it very much. I am not big on support groups. I just try to handle it on my own. I try to be with positive people who make me laugh, rather than people who exchange maladies and aches and pains. That's why I haven't mentioned it on C-D.

THIS thing is new, and I am thinking of all of the WORST things that this could be. My mother died of cancer at a much younger age than I am now. So did both of my aunts, maternal and paternal.

I have a friend who survived leukemia (seven years, so far, and a former boyfriend later a friend, who passed of non-Hodgekin's lymphoma at 49.
I am also an inactive RN, so my mind runs wild with horrible possibilities.

So, I am scared.
Sheena,

I suffer to some degree with undiagnosed SAD. My wife and kids have told me I'm grouchier in the winter. I've found the best way to counter it is a combination of the following:

1. Winter sports and outdoor activities. Although, there probably isn't much downhill skiing in Ohio. There might be cross country skiing though.

2. Making short trips to a place with a warmer climate.

3. Compensating during this season by eating and focusing on family activities. I've never had much of a problem with weight, so I focus on family dinners with foods like prime rib, steak, ham, sauerbraten, and crab. Nothing wrong with consuming moderate quantities of good wine, beer, and spirits with them either.

4. Obtaining good books and reading material and making a point of reading everyday.

I'll just make one more point. You have seemed somewhat anxious to me over the years I've been on this forum. Anxiety and fear are hard to cure. I am naturally more anxious than the average person. However, I have found as I get older (59) that there is less and less to worry about. I think most of us would be well served by just accepting the idea that people are born, live, and die and that there is nothing really exceptional about it.
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Old 04-06-2019, 04:55 PM
 
12,493 posts, read 3,757,891 times
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Quote:
Originally Posted by sheena12 View Post
I am leaning towards SAD. ( are there two Ds in SAD? I thought it was Seasonal Affective Disorder)

Some of you know me through CD - for those who do not - I am 61. Way past menopause or peri-menopause.
I am at my correct weight. I do not have other signs of hypothyroidism - with the exception of brain fog - and that is also related to fibromyalgia.

This part of OH is one of the cloudiest in the country. Most days are overcast. The Summer is not even that sunny. I think we have over 320 days of cloud cover per year. I might be a little off, but something like that. I love the sun and I thrive in sunshine. I wish getting sun on my face in the morning was an option here. If there is sun, it comes out later in the afternoon. And in winter, that is a rare event.

The closest place I have, without driving to Cleveland, that sells vitamins is The Vitamin Shop. What should I get there? What is a good quality vitamin D? What about that other vitamin someone mentioned?
I need all of the help I can get.

How can I readjust my circadian rhythms? Does anyone have a link to this?

SoCal is out of the question but we are thinking of someplace with more sunshine. My husband is affected too. We hate to relocate, but this is unbearable. In October though Christmas and New Years I am fine. Then there is the slow decline. I go through it every year. This was the worst ever.

I'm also visiting a new doctor tomorrow and I am hoping it's a good fit. My problem is I look healthy and younger than my age, so many doctors tend to think that any health problems are not real. There are doctors who don't even believe in fibromyalgia. Or worse, think it's something "women make up".
Ah, the infamous Sheena12.

I hated living in Ohio. I moved to South Carolina and saw the stat that they had 260 sunny days a year and Ohio has that same amount of cloudy days. Second the D3. I take 2000 mg. every day.

They say you can have hot flashes for years. I know you said cold too but as someone who was kicked into chemo pause and now gets hot flashes, they almost always start with me being cold first. I think you should get a complete physical including a thorough blood work up. Also, I live in the Chicago suburbs and one thing that has helped me stave off depression...is getting a dog. She makes me so happy.
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Old 04-06-2019, 05:07 PM
 
12,493 posts, read 3,757,891 times
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Sorry, I posted my thing before seeing your update. Have you had any news since you spoke with the receptionist?
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Old 04-07-2019, 06:04 AM
 
Location: Bella Vista, Ark
77,813 posts, read 91,986,208 times
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Quote:
Originally Posted by Mikala43 View Post
Sheena, please do not take anything, until you know what is wrong.
I totally agree with you. With what she is going through she needs to rely on what the doctor says, not what any of might think can help.
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Old 04-07-2019, 06:12 AM
 
Location: Bella Vista, Ark
77,813 posts, read 91,986,208 times
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Sheena, keep a positive attitude and don't let this get you down. I know you always have a good attitude. As scary as this is for you, there are all kinds of things that could account for the bad readings. Please let us know when you hear something more.
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