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Old 03-27-2019, 06:58 PM
 
9,476 posts, read 8,095,752 times
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Quote:
Originally Posted by NYgal1542 View Post
^^^^^^^^ Pretty sure she indicated sleeping a lot, not a lack of sleep.
Who knows what the quality of that sleep is. Awaking in the night is a sign of depression.

But getting plenty of air in our lungs is a good thing. I find I shallow breathe a lot. Feel much better with the deep breathing.
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Old 03-27-2019, 07:13 PM
 
6,706 posts, read 3,131,044 times
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Quote:
Originally Posted by staywarm2 View Post
Who knows what the quality of that sleep is. Awaking in the night is a sign of depression.

But getting plenty of air in our lungs is a good thing. I find I shallow breathe a lot. Feel much better with the deep breathing.
You can also awaken in the night as a reaction to a medication. I started Prozac and was literally waking up in the night every 60-90 minutes in a pool of sweat. Needless to say, I quit after about a month because that was intolerable. Although amitriptyline is used to help people with sleep, it actually made my sleep worse. I mention that because I know the OP has fibromyalgia and is a common medicine for that. OP do you use that, by any chance? It can cause severe dry mouth with contributes to postnasal drip. I assume nortriptyline would have a similar side effect.
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Old 03-28-2019, 09:47 AM
 
Location: colorado springs, CO
8,036 posts, read 3,733,207 times
Reputation: 23284
I think your immune system is in overdrive & your circadian rhythm is trying to accommodate. This is HUGE in the research community right now; as in; “Nobel Prize” huge:

https://www.lindau-nobel.org/tag/nob...y-or-medicine/ (scroll down to the 2017 winners)

Quote:
multiple studies suggest that pro-inflammatory activity is elevated during rest and induces sleep whereas anti-inflammatory mediators are induced upon awakening and inhibit sleep.
https://sleep.biomedcentral.com/arti...606-017-0019-2

Are you susceptible to the flu? I wonder if your “every winter” symptoms are actually “every flu season” symptoms?

Quote:
Our work demonstrates the importance of circadian rhythms in influenza infection -- a condition with significant public health implications. Our findings, which establish the role
of the circadian rhythms in maintaining the balance between host tolerance pathways
and anti-viral responses confers a new framework for evaluating the relevance of
circadian influences on immunity.
https://www.biorxiv.org/content/bior...96556.full.pdf

This new information is in the research phase but it bears watching closely.

Last edited by coschristi; 03-28-2019 at 10:23 AM..
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Old 03-28-2019, 05:20 PM
 
Location: The New England part of Ohio
20,834 posts, read 26,167,724 times
Reputation: 56132
Quote:
Originally Posted by NYgal1542 View Post
Hello Sheena12: When I read your post earlier, I realized how similar your symptoms are to mine.

It's maddening. I'm not doing anything but sleep. Get up for bathroom breaks, meals (not complicated), feed the cats (2), stay in jammies and go nowhere many days in a row. One different thing is I have glaucoma (I didn't see it in your post so assuming you do not have it). It's really affecting my life. My eyes are very dry requiring a lot of artificial tears so they don't burn and hurt so much. My vision could be better. I have a good ophthalmologist, and recently saw another specialist for another eye problem. I believe the 2nd specialist disagrees with first specialist. I have had a lot of surgery on both eyes.

I don't have any get up and go. I used to have a lot of it. Now I'm at zero. It's spring here, I look out the window and wish I was outdoors doing something, anything. As mentioned above, I have two cats that I love very much. Both rescued from the SPCA. It has crossed my mind they could be part of the problem with burning eyes. And housework, of course. But I'm kind of a sap when it comes to them.
I have been taking a prescribed 1.25 mg Vitamin D2, take once a week. Was on that some years ago but stopped taking (do not know why).

I'm almost 77 and I'm thinking to myself..... is this all there is?? I am not thrilled with living life like this till the end. I feel so many wishes I have for the rest of my life are not going to happen.

I've also gained a lot of weight, high cholesterol/triglycerides, and borderline diabetes (no meds yet).

To me, it feels overwhelming. Being by myself I am isolated. No relationship with 2 kids, both in their 50s. Very nice neighbors but don't involve with activities.

Probably too much whining here. But feeling kind of desperate.
I can relate. In the Winter, unless I am going someplace, I stay in lounging clothes. I am originally from NYS and now I live in OH. I am pretty sure that the weather is getting to me. I love the change of seasons, but I am not handling winter as well as I did when I was younger.
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Old 03-28-2019, 05:30 PM
 
Location: Southern California
28,796 posts, read 11,678,573 times
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Reading some of the comments and when I read how people love the change of seasons, I think what's to miss. I was born in PA and had all the dark dank humid seasons, spring as I recall was the best season, and have been away from that great seasons for over 50 yrs...best move my ex could have done, dragged us across 66 to the sunshine.

I can almost understand not feeling well and hanging in pj's all day, but I can't imagine that.

One person mentioned taking D2, that is the least absorbable form of Vit D, D3 and K2 taken together is most effective.

It's pretty clear why FL and CA are so loaded with people...

Just thinking about myself and how I felt yesterday with hardly any sun at all, a friend dropped by and I about lost it with her about the pain etc....I try to put on a smilie face but sometimes one just has to let it all out, now today the sun is out all day and I still have all the pain but my outlook is so much better. Don't tell me the sun isn't a big influence in our lives.

Last edited by jaminhealth; 03-28-2019 at 05:39 PM..
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Old 03-28-2019, 05:39 PM
 
Location: The New England part of Ohio
20,834 posts, read 26,167,724 times
Reputation: 56132
Quote:
Originally Posted by RamenAddict View Post
You can also awaken in the night as a reaction to a medication. I started Prozac and was literally waking up in the night every 60-90 minutes in a pool of sweat. Needless to say, I quit after about a month because that was intolerable. Although amitriptyline is used to help people with sleep, it actually made my sleep worse. I mention that because I know the OP has fibromyalgia and is a common medicine for that. OP do you use that, by any chance? It can cause severe dry mouth with contributes to postnasal drip. I assume nortriptyline would have a similar side effect.
RamenAddict, no. I do not use Prozac. I *think* the preferred antidepressant for fibro is Cymbalta. But, I don't take that either.

I hate fybro, but if I don't really need it. I try to use natural remedies, if I can. Hot baths in Epsom salt offer me some relief when it comes to aches and pains. I also get messages on a fairly regular basis and practice yoga. I haven't taken a class since January because of my daytime sleepiness. I havin't been able to find a yoga studio that is open when I am most alert - around 3AM.

I don't take Pamelor (norreiptyline) either. And yes, most antidepressants have "dry mouth" as a side effect.
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Old 03-28-2019, 05:48 PM
 
Location: The New England part of Ohio
20,834 posts, read 26,167,724 times
Reputation: 56132
Quote:
Originally Posted by coschristi View Post
I think your immune system is in overdrive & your circadian rhythm is trying to accommodate. This is HUGE in the research community right now; as in; “Nobel Prize” huge:

https://www.lindau-nobel.org/tag/nob...y-or-medicine/ (scroll down to the 2017 winners)


https://sleep.biomedcentral.com/arti...606-017-0019-2

Are you susceptible to the flu? I wonder if your “every winter” symptoms are actually “every flu season” symptoms?

https://www.biorxiv.org/content/bior...96556.full.pdf

This new information is in the research phase but it bears watching closely.
I don't think I am terribly susceptible to flu. When I was working as an RN, over a decade ago, flu shots were mandatory. I had flu last winter, but I took Tamaflu.

What would cause my immune system to go into overdrive? Thank you for these links. I will read them carefully when I am done responding.
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Old 03-28-2019, 06:06 PM
 
Location: The New England part of Ohio
20,834 posts, read 26,167,724 times
Reputation: 56132
Quote:
Originally Posted by Ruth4Truth View Post
No. Nothing that isn't fixable.

Prior to these symptoms, were you under any prolonged stress, or were there any sudden stressful events? (You or husband lost a job or started a new job, marriage or divorce, home relocation, death of a close loved one, victim of crime, etc.)? Has the quality of your sleep worsened (it sounds like it)? Have you noticed any sleep apnea, compared to before? Waking up gasping for breath? Do you find it hard to pick yourself up out of bed in the mornings? Like, literally struggling to pick yourself up, or do you have to stay in bad longer in the morning, to gather the strength to get up?
My doctor is not a Nephropath, but he is a D.O. As I said, I have only seen him once, but he seems pretty open minded.

I have been doing a lot of reading, and I've thought of adrenal fatigue, also. I forgot to mention that to my practitioner.

There have been several sudden, negative events that were shocking and sad during the past three years, including the death of a close relative.

No. I do not wake up gasping for breath. YES - I do find it hard to drag myself out of bed. Literally struggling.

I was once a regular contributor to the "What's For Dinner?" thread, but lately, I have not cooked much. I have mustered the strength to cook last two nights. I chose easy to cook meals and my husband helped.

I am 61. You asked in a previous post.

Thyroid has occurred to me, and I am being tested for it. I am tired, but I lack some other symptoms such as weight gain, brittle hair and nails, or hair loss. I guess it still is a possibility though.
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Old 03-28-2019, 06:25 PM
 
Location: The New England part of Ohio
20,834 posts, read 26,167,724 times
Reputation: 56132
Quote:
Originally Posted by jaminhealth View Post
Reading some of the comments and when I read how people love the change of seasons, I think what's to miss. I was born in PA and had all the dark dank humid seasons, spring as I recall was the best season, and have been away from that great seasons for over 50 yrs...best move my ex could have done, dragged us across 66 to the sunshine.

I can almost understand not feeling well and hanging in pj's all day, but I can't imagine that.

One person mentioned taking D2, that is the least absorbable form of Vit D, D3 and K2 taken together is most effective.

It's pretty clear why FL and CA are so loaded with people...

Just thinking about myself and how I felt yesterday with hardly any sun at all, a friend dropped by and I about lost it with her about the pain etc....I try to put on a smilie face but sometimes one just has to let it all out, now today the sun is out all day and I still have all the pain but my outlook is so much better. Don't tell me the sun isn't a big influence in our lives.
jaminhealth, you have the good fortune to live in Southern California. I left the NYC metro area originally NOT because of the cold winter, but because of the prohibitively high cost of living and property taxes that were inching towards 25K per year.

I miss NY, though, since all of my best friends live there. My closest friends live within 30 minutes of NYC. Now that my kids and theirs are grown, I could enjoy nightlife, arts, music and all NYC has to offer. I'm an urban girl at heart. We raised our kids in the 'burbs because the schools are better.

I won't attempt to tell you that the sun is not "a big influence in our lives". Of course it is.

Since I am from the north, I do enjoy the first snowfall. A white Christmas. The beauty of autumn leaves and the first crocus of spring. There are cultural differences, also, between the North and South. One isn't necessarily better than the other, but they are different.

I could see myself living in SoCal and I have friends there also, but it is just as costly as NYC.

There is also the issue of heat. In addition to cold sensitivity, I am also sensitive to heat. I am not a fan of any temperatures above 80. I couldn't see myself living in a land locked desert, either.

People still do live in Maine, Vermont (which I love) Minnesota and Wisconsin, for example. Not everyone has fled to the Sunbelt.
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Old 03-28-2019, 06:41 PM
 
Location: Southern California
28,796 posts, read 11,678,573 times
Reputation: 18462
I'm on a group which is dedicated to FM/CFS and again I was told I had the fibro back in 1999, whether I do or not I question the label. It's a lot of things gone awry in the body and docs don't know what to do so we have Fibro.

Back when it hit me, I was 63 or so and now going to be 81. I have a post going on the group about "waking up like run over by a mack truck"...and I felt that way almost 20 yrs ago too...so maybe it is fibro, but I also deal with lots of OA. I worked with adrenals for years and didn't find great success..

Many who have the FM dx talk about how sick they can be...I'm not but I do supplement a lot and have been for over 25 yrs.

My thyroid story is so long I could write my own book. I finally got on support at 63 after over 10 yrs of not getting help from t he doctors. I think I posted that above...

My dear D.O. just called in for Armour and no labs nothing, he knew, he was a smart smart man and worked when there were hardly any labs to go by. That Armour got rid of 10 yrs of depression in 4 days. That was in 2002.

So hopefully you'll find help there. Do a lot of your own work on adrenals and adaptagens .. it's a hit and miss.

The seasons get harder the older one gets. Calif housing is out of sight price wise...but there are a lot of things we don't need like those living in the cold areas....heat etc etc
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