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Old 08-19-2019, 01:58 PM
 
37,315 posts, read 59,487,504 times
Reputation: 25330

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My son is a childhood cancer survivor.
He has Barrett’s Syndrome and a history of taking antacids RX for long time.
He has had a year long battle w/C-Diff/gastric issues topped by a celiac artery malformation—maybe from his chemo/radiation therapy that could be compromising blood flow to his GI tract

He has lost a lot of weight and is having to wait to have the celiac artery problem dealt with because he is anemic and is taking iron—
They just found the source for the anemia—and don’t think it is cancerous...

My husband and I have been in FL this summer and haven’t see him for several months
His wife said he is really thin
I am worried it could be malabsorption issue in addition to other issues...

Haven’t read any real treatment for a chronic malabsorption issue...
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Old 08-19-2019, 02:17 PM
 
2,437 posts, read 2,715,914 times
Reputation: 4307
Quote:
Originally Posted by loves2read View Post
My son is a childhood cancer survivor.
He has Barrett’s Syndrome and a history of taking antacids RX for long time.
He has had a year long battle w/C-Diff/gastric issues topped by a celiac artery malformation—maybe from his chemo/radiation therapy that could be compromising blood flow to his GI tract

He has lost a lot of weight and is having to wait to have the celiac artery problem dealt with because he is anemic and is taking iron—
They just found the source for the anemia—and don’t think it is cancerous...

My husband and I have been in FL this summer and haven’t see him for several months
His wife said he is really thin
I am worried it could be malabsorption issue in addition to other issues...

Haven’t read any real treatment for a chronic malabsorption issue...

I have malabsorption due to gastric bypass surgery. One way to work proactively with it is to supplement vitamins and nutrients (in my case- multiple kinds of vitamins per day and protein shakes). In his case, he should speak with his medical team.
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Old 08-19-2019, 02:25 PM
 
37,315 posts, read 59,487,504 times
Reputation: 25330
Quote:
Originally Posted by charmed hour View Post
I have malabsorption due to gastric bypass surgery. One way to work proactively with it is to supplement vitamins and nutrients (in my case- multiple kinds of vitamins per day and protein shakes). In his case, he should speak with his medical team.
His GI doctor has kind of cut him loose—
Says they don’t return calls
He is going to see his GP tomorrow

I told him that some doctors don’t like to deal with patients they haven’t “cured”—
They see them as failures...
He has been going to this GI doctor for a year or more and not really making any progress...
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Old 08-20-2019, 01:38 PM
 
2,437 posts, read 2,715,914 times
Reputation: 4307
Quote:
Originally Posted by loves2read View Post
His GI doctor has kind of cut him loose—
Says they don’t return calls
He is going to see his GP tomorrow

I told him that some doctors don’t like to deal with patients they haven’t “cured”—
They see them as failures...
He has been going to this GI doctor for a year or more and not really making any progress...
Maybe he can find a Bariatrics team to give him a hand. All the doctors, nurses and nutritionists are versed in malabsorption. Some teams include a GI, as mine does.
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Old 09-04-2019, 01:56 PM
 
Location: I live in reality.
1,154 posts, read 1,413,544 times
Reputation: 2267
[quote=loves2read;55974068]His GI doctor has kind of cut him loose—
Says they don’t return calls
He is going to see his GP tomorrow

I told him that some doctors don’t like to deal with patients they haven’t “cured”—
They see them as failures...
He has been going to this GI doctor for a year or more and not really making any progress...[/QUOT .]
Might be the time for him to seek help at a large teaching hospital. They often deal with patients with medical histories like his. It IS true that when I MD cannot 'fix' what is wrong, they often let you go on out there alone. It's happened to me, too. Don't get me wrong, there are still some great MDs out there but you have to FIND them. I wish him all the best in doing that.
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Old 09-04-2019, 02:12 PM
 
37,315 posts, read 59,487,504 times
Reputation: 25330
[quote=mooksmom;56096712]
Quote:
Originally Posted by loves2read View Post
His GI doctor has kind of cut him loose—
Says they don’t return calls
He is going to see his GP tomorrow

I told him that some doctors don’t like to deal with patients they haven’t “cured”—
They see them as failures...
He has been going to this GI doctor for a year or more and not really making any progress...[/QUOT .]
Might be the time for him to seek help at a large teaching hospital. They often deal with patients with medical histories like his. It IS true that when I MD cannot 'fix' what is wrong, they often let you go on out there alone. It's happened to me, too. Don't get me wrong, there are still some great MDs out there but you have to FIND them. I wish him all the best in doing that.
Thanks
He is having to use COBRA insurance because they are both out of work
I think that has made some decisions more difficult
And I think part of the problem is that he doesn’t seem overtly worried
He is trusting this dr to know what he is doing
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