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Old Today, 01:48 PM
500 posts, read 968,945 times
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So, I've just been diagnosed with POTS: postural orthostatic tachycardia syndrome. I'm really surprised that this diagnoses hasn't come up on this forum, but at the same time it's quite rare.
I have been dealing with blood pressure and heart issues for years and finally have a diagnoses, although being diagnosed with POTS is a real shock. One, because I don't fit the typical profile, and secondly it will never get better, which is really hard to wrap my head around.

I have to drink a gallon of water every day (20 glasses if you include the electrolytes that I must have), consume more salt and exercise, which I am unable to do.

If you have dizzy/lightheaded problems along with a racing pulse, check out POTS. POTS has been around for awhile, but very few doctors seem to be aware of it. Typically one is diagnosed by a cardiologist, which was true for me. It used to be called the fainting disease because if you have POTS you are so lightheaded/dizzy that you are often, on a daily basis, feeling that you are going to faint.

I have gone to the POTS clinic at Johns Hopkins and they have been very helpful. I have my follow up appt. next week so I'll see what I have to do next, although as I mentioned there is no cure.
It's also known as dysautonomia, a dysfunction of our automatic systems, which are systems like digestion, heat and cold regulation, etc.

Last edited by seethelight; Today at 02:10 PM..
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Old Today, 10:36 PM
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There have been quite a few posts about POTS over the years. All you have to do is an Advanced Search for Postural Orthostatic Tachycardia:

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