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My son and I were diagnosed with Marfan syndrome. My daughter shows symptoms, but no heart murmur. We're not taking beta blockers yet, but will talk to our cardiologists about it during our next echo apts.
My nine year old was born with a dilated aorta and murmur, underwent hernia repair as an infant, has a high palate, joint hypermobility and more....I share the same symptoms and aortic and tricuspid regurgitation, vascular issues, Raynaud's, scoliosis and more....
Thanks for sharing any experience, beta blockers taken, have your symptoms remained stable or progressed, and any other experience.
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