U.S. CitiesCity-Data Forum Index
Go Back   City-Data Forum > General Forums > Health and Wellness
 [Register]
Please register to participate in our discussions with 2 million other members - it's free and quick! Some forums can only be seen by registered members. After you create your account, you'll be able to customize options and access all our 15,000 new posts/day with fewer ads.
View detailed profile (Advanced) or search
site with Google Custom Search

Search Forums  (Advanced)
Reply Start New Thread
 
Old 04-27-2021, 08:10 AM
 
23 posts, read 2,869 times
Reputation: 22

Advertisements

Quote:
Originally Posted by Zymer View Post
40 minutes without swallowing? That's nuts. Wall of text hard to read.


Also on way too many meds. Sounds like docs catering to a hypochondriac.
Yeah I apologize I pretty much laid it all out. And both my ENT specialist and I agree on the way too many meds part. He wants me completely off medication and to fix my issue(s) through dairy/gluten-free diets or just diet changes in general. I know being on that many meds is unhealthy so I've cut them all out besides the Protonix, which I'll take once every other day.
Rate this post positively Reply With Quote Quick reply to this message

 
Old 04-27-2021, 08:20 AM
 
23 posts, read 2,869 times
Reputation: 22
Quote:
Originally Posted by Roselvr View Post
Welcome to city-data

You're 23, have been dealing with it for a few years which is right in line with when some of our bodies change after going through puberty. Same happened with my daughter but she started having a mystery illness at 16, that really blew up other health issues as she reached her 20's. It got to the point where doctors thought she was faking. I had a human body print out called demratomes, my daughter wrote all of her symptoms on it.

You really should have titled the thread dairy/gluten allergy causing excess swallowing? I think you would have gotten better input from people who actually suffer from it. If you want the title changed, I can ask a mod to do it...
Maybe changing the title to something along the lines of: What's causing my excess swallowing? Dairy/gluten allergies? OCD? Infections? GERD?

The problem is that I've seen other people suffer from the same thing and everyone's had a different method of "curing" it. Some treated it as OCD, others treated the Acid Reflux, etc. I don't want to strictly limit myself to dairy/gluten allergies as I still don't know if I do have them or not. I'm hoping I can get more input from people who've had excess swallowing before and see if any of our symptoms align and what treatment options they went through, but so far all the signs are pointing to a diet change.
Rate this post positively Reply With Quote Quick reply to this message
 
Old 04-27-2021, 10:01 AM
 
Location: NJ
16,531 posts, read 25,093,996 times
Reputation: 16811
Quote:
Originally Posted by codlfamez95 View Post
Maybe changing the title to something along the lines of: What's causing my excess swallowing? Dairy/gluten allergies? OCD? Infections? GERD?

The problem is that I've seen other people suffer from the same thing and everyone's had a different method of "curing" it. Some treated it as OCD, others treated the Acid Reflux, etc. I don't want to strictly limit myself to dairy/gluten allergies as I still don't know if I do have them or not. I'm hoping I can get more input from people who've had excess swallowing before and see if any of our symptoms align and what treatment options they went through, but so far all the signs are pointing to a diet change.

It's done. Hope they will do it for you. I think it's needed to get you replies along the lines of if it is from the allergy or not.

Another thought, as I said, I found our health issues by Facebook groups, it may not be a bad idea if you looked for a gluten and dairy free Facebook group to kick it around there. If you do post, you can copy your thread here but please, put paragraphs in it or people will just pass it by.


Quote:
Originally Posted by codlfamez95 View Post
I'm going to definitely change up my diet for the better going forward. I took my mental and physical health for granted and I now realize I should've taken better care of myself. It probably could've helped avoid the whole mess I'm in currently. Did you by chance get an endoscopy or any testing for allergies/intolerances done? Or did you just decide on your own it was best to cut out gluten and dairy? I have an endoscopy scheduled in about a month and I have to pay about $2,000 before even having the procedure done and I'm wondering if I should even go through with it.

Honestly, I'd put it off until you give the diet change a try. That's a lot of money if it doesn't give you answers.
Rate this post positively Reply With Quote Quick reply to this message
 
Old 04-27-2021, 10:37 AM
 
Location: NJ
16,531 posts, read 25,093,996 times
Reputation: 16811
Here is your original post spaced out. All you'd have to do is quote this reply, then take out what I'm saying plus the quote code and off you go to a gluten/ dairy free Facebook group.


Quote:
Originally Posted by codlfamez95 View Post
I've been dealing with this excessive swallowing symptom for 1.5 years now and have yet to find a cause. Doesn't necessarily feel like Globus as many people describe it. In my case it feels more of a combination of the following: urge to ease my throat, restlessness of my mouth and tongue, and needing to clear the saliva in my mouth and it's been the sole cause of my anxiety.

Never dealt with mental health issues before. Started very suddenly one morning in August of 2019 and it used to be very bad (multiple times a minute) to the point I'd have a panic attack. A year and a half later the frequency of the swallowing has lessened - once every 2 to 5 minutes on average and if I'm super lucky and distracted, I can go up to 30–45 minutes without swallowing.

When it first started, doctors said it was allergies or post nasal drip since I had been dealing with Eustachian Tube Dysfunction the month before this started, but I didn't feel any phlegm or congestion and the nasal sprays/allergy meds didn't help at all.

Went to a different doctor a couple weeks later and they believed it was linked to acid reflux or GERD since I was also simultaneously dealing with excess saliva, a lot of burping, occasional diarrhea and acid in my chest when I'd go to sleep. Tried about 3 different meds for reflux and the acid in chest/heartburn went away, but all other symptoms stayed.

Did an esophagram and it came back somewhat clear - they found acid reflux in my system but it was such a small amount and it was too low in my system to be affecting my throat (according the doctor that performed the esophagram.)

Many months have gone by and I had just accepted my fate, but the anxiety associated with my swallowing overwhelmed me and I decided 3 months ago to start once again looking for a treatment or cure.

Moved to a new city recently and I'm seeing new doctors that are a lot more willing to help rather than just sending me home with some allergy meds like the previous 4 doctors I saw.

Started protonix and Elavil in February for about a month and it helped a little bit, but more so just lessened the acid reflux symptoms (burping, excess saliva). Doctor switched me from protonix & Elavil after a month to protonix, Lexapro and flexeril, but to no avail.

Currently the excess saliva is inconsistent and varies throughout the day and I'm still burping but not as much as I used to.

Recently saw an ENT specialist and he hinted at the possibility of a dairy intolerance or gluten sensitivity since he saw my throat and tonsils were a little red. He said that dairy/gluten intolerances often present the same symptoms as acid reflux and I hadn't really changed my diet since the swallowing started in 2019 besides avoiding the typical reflux trigger foods like spices, citruses etc, and just being more mindful about the quantities I eat and trying to eat a little healthier when I could. So this whole time I was still consuming dairy and gluten on a regular basis. It sounds reasonable as he said that the reason none of the plenty of meds I've taken have worked are because I am still constantly exposing myself to dairy or gluten, which he believes has been the trigger all along and I didn't notice.

Been dairy-free for about a week now and haven't noticed any improvement, but he said to give it at least 3 weeks as my throat has been irritated from swallowing for so long that it'll take some time. He said that if a dairy-free diet doesn't work, to try gluten-free next.

Does anyone have any suggestions or theories as to what could be causing this? I'm so tired of it mentally draining me and I need to get a hold of my life back. I haven't been able to enjoy life since this all started.

It very could well be as simple as going dairy or gluten free, but I'm still skeptical about it, but maybe I should just give it a try.

I have an endoscopy scheduled in about a month's time, but it's really expensive and was hoping someone who's dealt with this could offer a solution or suggestion so that I don't have to go through the procedure. Or is it just better to just go through with it? I'm just scared that it's all in my head and isn't a physical medical condition. I don't want to be stuck with this forever and I'm tired of throwing money at doctor's visits constantly without finding relief.

I really want to figure out whether it's allergies/food intolerance, acid reflux, anxiety/OCD or something I may be missing. I feel like I've been treating the wrong thing each time I start new meds and is the reason why I have yet to find anything to provide relief. Only times I have momentary relief are when I'm distracted at work or out shopping or something.

If anyone could provide a suggestion that I have yet to try or maybe confirm the whole gluten/dairy intolerance thing that my ENT specialist suggested a week ago.

Just started taking multivitamins and Vitamin B complex in case it's related to some vitamin deficiency. I feel so lost and just need some direction to find help. Willing to try absolutely anything.

Feels like I should also mention that 80% of the time I do exercise, I can break the swallowing habit throughout my workout session, but the moment I finish, my throat feels SUPER dry and irritated even though I drink plenty of water so I feel it's probably a medical condition more than a mental one, but nonetheless it causes lots of unnecessary anxiety and strength in my life.

Thank you for any help and sorry this was so long. I haven't talked to anyone about this besides my doctors and my mom and briefly mentioning it to some friends.

My details if that helps: 23 yrs old. Male. 6'2 230 lbs. Non-smoker/non-drinker.
List of current and previous meds: Loratadine, Hydroxyzine, Zyrtec. Famotidine, Prilosec, Protonix. Lexapro, Elavil, Flexeril.
Rate this post positively Reply With Quote Quick reply to this message
 
Old 04-27-2021, 10:40 AM
 
Location: NYC
19,511 posts, read 12,608,138 times
Reputation: 23943
Quote:
Originally Posted by codlfamez95 View Post
I'm going to definitely change up my diet for the better going forward. I took my mental and physical health for granted and I now realize I should've taken better care of myself. It probably could've helped avoid the whole mess I'm in currently. Did you by chance get an endoscopy or any testing for allergies/intolerances done? Or did you just decide on your own it was best to cut out gluten and dairy? I have an endoscopy scheduled in about a month and I have to pay about $2,000 before even having the procedure done and I'm wondering if I should even go through with it.
I wouldn't spend the money because the money wasted on these so called health "pros" are nothing but outfits to get you into expensive programs into their drug treatments. Nothing good comes out of going with mainstream healthcare but more appointments for expensive programs that never fully treat the problems.

The best fix is natural food remedy. Fixing the diet and lifestyle will be the best long term remedy and ultimately fixes more than just one problem.
Rate this post positively Reply With Quote Quick reply to this message
 
Old 04-27-2021, 11:21 AM
 
23 posts, read 2,869 times
Reputation: 22
Quote:
Originally Posted by vision33r View Post
I wouldn't spend the money because the money wasted on these so called health "pros" are nothing but outfits to get you into expensive programs into their drug treatments. Nothing good comes out of going with mainstream healthcare but more appointments for expensive programs that never fully treat the problems.

The best fix is natural food remedy. Fixing the diet and lifestyle will be the best long term remedy and ultimately fixes more than just one problem.
Thank you again for your contributions they are greatly appreciated. Two other things I wanted to ask though. I'm assuming you were medication-free throughout the course of your diet change right? I'm going to start a new diet immediately, but I'm unsure if I should cut out my acid reflux and anxiety medications. (I've been off anxiety meds almost 3 weeks now so I might as well stay off now.) And as far as fruits and vegetables go, were there certain fruits/vegs you avoided like oranges, grapefruits, tomatoes etc.?

Just got blood drawn for allergy testing to be on the safe side. Even if results come back negative for dairy or gluten allergies, I'm still going to commit to the new diet.
Rate this post positively Reply With Quote Quick reply to this message
 
Old 04-27-2021, 11:23 AM
 
23 posts, read 2,869 times
Reputation: 22
Quote:
Originally Posted by Roselvr View Post
Here is your original post spaced out. All you'd have to do is quote this reply, then take out what I'm saying plus the quote code and off you go to a gluten/ dairy free Facebook group.
Thank you for going out of your way to help me get as much input and responses as possible. I realize I should have spaced out my post, but I'm new to this forum thing and my brain was in panic mode trying to type out as much info as I could provide.
Rate this post positively Reply With Quote Quick reply to this message
 
Old 04-27-2021, 11:47 AM
 
Location: NJ
16,531 posts, read 25,093,996 times
Reputation: 16811
Quote:
Originally Posted by codlfamez95 View Post
Thank you for going out of your way to help me get as much input and responses as possible. I realize I should have spaced out my post, but I'm new to this forum thing and my brain was in panic mode trying to type out as much info as I could provide.

You're welcome.

Been there where you're trying to type it out and don't want to forget what you're writing.

I think the facebook groups may help too to connect with others who suffer too. They should be able to tell you better what they think of your symptoms. Hopefully you can find a private group and not a public one where all of your FB friends would see your post.
Rate this post positively Reply With Quote Quick reply to this message
 
Old 04-27-2021, 12:34 PM
 
Location: Central Florida
2,774 posts, read 3,662,599 times
Reputation: 11962
Quote:
Originally Posted by codlfamez95 View Post
Thank you again for your contributions they are greatly appreciated. Two other things I wanted to ask though. I'm assuming you were medication-free throughout the course of your diet change right? I'm going to start a new diet immediately, but I'm unsure if I should cut out my acid reflux and anxiety medications. (I've been off anxiety meds almost 3 weeks now so I might as well stay off now.) And as far as fruits and vegetables go, were there certain fruits/vegs you avoided like oranges, grapefruits, tomatoes etc.?

Just got blood drawn for allergy testing to be on the safe side. Even if results come back negative for dairy or gluten allergies, I'm still going to commit to the new diet.
Ask your doctor about stopping the medications. There are some medications that you can’t just stop taking — you have to taper down gradually or you’ll have worse problems.
Rate this post positively Reply With Quote Quick reply to this message
 
Old 04-27-2021, 12:52 PM
Status: "Covaxxed!" (set 17 days ago)
 
Location: Log "cabin" west of Bangor
6,574 posts, read 7,644,680 times
Reputation: 13463
Quote:
Originally Posted by codlfamez95 View Post
Yeah I apologize I pretty much laid it all out. And both my ENT specialist and I agree on the way too many meds part. He wants me completely off medication and to fix my issue(s) through dairy/gluten-free diets or just diet changes in general. I know being on that many meds is unhealthy so I've cut them all out besides the Protonix, which I'll take once every other day.

Yeah my mother was going to a bunch of different doctors, one would put her on this, another would put her on that...she was on so much stuff it was crazy, meds were interfering with each other and nothing was getting her any better.


Eventually we had to wean her off everything and start over.


Some drugs you shouldn't stop short, you need to drop down based on a schedule advised by a doc.


Sometimes some drugs are necessary, but I prefer to be on the minimum needed. Right now I'm just on BP med, aspirin (family history of stroke) and one for acid reflux. I have chronic pain from traumatic injuries but I don't take pain pills for it except when it is too intense to manage with bourbon.
Rate this post positively Reply With Quote Quick reply to this message
Please register to post and access all features of our very popular forum. It is free and quick. Over $68,000 in prizes has already been given out to active posters on our forum. Additional giveaways are planned.

Detailed information about all U.S. cities, counties, and zip codes on our site: City-data.com.


Reply

Quick Reply
Message:


Over $104,000 in prizes was already given out to active posters on our forum and additional giveaways are planned!

Go Back   City-Data Forum > General Forums > Health and Wellness

All times are GMT -6.

© 2005-2021, Advameg, Inc. · Please obey Forum Rules · Terms of Use and Privacy Policy · Bug Bounty

City-Data.com - Contact Us - Archive 1, 2, 3, 4, 5, 6, 7, 8, 9, 10, 11, 12, 13, 14, 15, 16, 17, 18, 19, 20, 21, 22, 23, 24, 25, 26, 27, 28, 29, 30, 31, 32, 33, 34, 35, 36, 37 - Top