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Old 12-31-2022, 06:15 PM
 
25 posts, read 16,007 times
Reputation: 30

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Quote:
Originally Posted by Tzaphkiel View Post
"Sulfur burps and diarrhea can appear with many types of stomach problems, including pancreatic cancer. Your pancreas makes chemicals called enzymes that help you digest food. When you have cancer, the production of these enzymes can be affected."

"Sulfur Burps and Diarrhea: Signs of Infection
Diarrhea accompanying these pungent burps is indicative of gastrointestinal infection."

Go to a GI Specialist
Been to three. Zero answers.
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Old 12-31-2022, 07:15 PM
 
Location: USA
9,117 posts, read 6,174,802 times
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If you are two hours away from a teaching hospital, you are not seeing the top doctors in their field.


Get an appointment at the Mayo Clinic in Rochester MN.

https://www.mayoclinic.org/why-choose-mayo-clinic
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Old 12-31-2022, 08:37 PM
 
25 posts, read 16,007 times
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Quote:
Originally Posted by Lillie767 View Post
If you are two hours away from a teaching hospital, you are not seeing the top doctors in their field.


Get an appointment at the Mayo Clinic in Rochester MN.

https://www.mayoclinic.org/why-choose-mayo-clinic
Yes, that's the top of my list. Unfortunately, it's out of network, so we've been saving up for it for quite a while. Probably a year to go yet before we can swing it.
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Old 12-31-2022, 09:21 PM
 
3,974 posts, read 4,256,469 times
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Did they do biopsy samples when you had your colonoscopy(ies)? If it's microscopic colitis, it can really only be diagnosed via biopsy and then microscopic examination by a pathologist. Your description of episodes that come and go does seem to fit in with the pattern of microscopic colitis:


https://www.niddk.nih.gov/health-inf...ymptoms-causes
https://my.clevelandclinic.org/healt...scopic-colitis


I'm assuming one or more of those GI specialists tested you for celiac disase?


I hope you get answers soon!
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Old 12-31-2022, 09:37 PM
 
15,425 posts, read 7,482,091 times
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Quote:
Originally Posted by luckyme609 View Post
Do you live near a teaching hospital? If so, when you are in the middle of an attack - go to the ER there. They will run every test imaginable and you will have a number of doctors that can try and figure out what is going on. Teaching hospitals have resources to do tests and find out results usually while you are there.
The length of time to get test results depends on the test. The pathology for my West Nile infection was done by the giant path lab in Utah. It took 5 days to get the results after I had a lumbar puncture in Houston.
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Old 12-31-2022, 10:32 PM
 
371 posts, read 365,323 times
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I had that all my life, I was dx with MS. I have no disability, but I do have the gastro issues. It's the brain miscommunicating. I forget what my neuro called it.
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Old 12-31-2022, 10:55 PM
 
25 posts, read 16,007 times
Reputation: 30
Quote:
Originally Posted by LoriNJ View Post
Did they do biopsy samples when you had your colonoscopy(ies)? If it's microscopic colitis, it can really only be diagnosed via biopsy and then microscopic examination by a pathologist. Your description of episodes that come and go does seem to fit in with the pattern of microscopic colitis:

https://www.niddk.nih.gov/health-inf...ymptoms-causes
https://my.clevelandclinic.org/healt...scopic-colitis

I'm assuming one or more of those GI specialists tested you for celiac disase?

I hope you get answers soon!
They did not. This is very good information, and definitely something I will ask for ASAP. This can be done in network.

They did test for celiac and lactose and sucrose. All negative.
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Old 12-31-2022, 11:10 PM
 
25 posts, read 16,007 times
Reputation: 30
Quote:
Originally Posted by Tabbychic View Post
I had that all my life, I was dx with MS. I have no disability, but I do have the gastro issues. It's the brain miscommunicating. I forget what my neuro called it.
I'd be very interested to hear if you remember.
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Old 12-31-2022, 11:17 PM
 
371 posts, read 365,323 times
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Quote:
Originally Posted by HelpMePorFavor View Post
I'd be very interested to hear if you remember.


autonomic nervous system disfunction.
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Old 12-31-2022, 11:32 PM
 
4 posts, read 2,745 times
Reputation: 47
My husband was diagnosed with Collagenous Colitis five years ago. It can only be found by having a biopsy during a colonoscopy. He lost weight, was weak and fatigued. Classic symptom is nocturnal diarrhea. He was put on a steroid with immediate improvement.

We also had to switch Gastro doctor, as first one wouldn't even do a scope because my husband was so weak but his Primary doctor insisted and sent us to the second one. Also my husband had a scan done that clearly showed something going on. AND I believe that this pushed him into stage 4 kidney disease as he was loosing fluids and not able to hydrate enough. Don't take no for an answer!!
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