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Old 12-24-2008, 11:50 PM
 
Location: Visitation between Wal-Mart & Home Depot
8,308 posts, read 36,268,814 times
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Please, tell me what you know about it...
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Old 08-09-2013, 09:54 AM
 
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Originally Posted by jimboburnsy View Post
Please, tell me what you know about it...
Hi ! sorry - just read your question - I, my sister, my oldest daughter age 38 all have PKD. We see a good nepharologist (which is a kidney specialist). I take 300 mg. Avapro (irbesartan) and Amlodipine 10mg daily. I also take 1000 mg once a day of Niacin to try to get my good cholesterol higher. Blood pressure manageable goes from 130-70 to 110/80 back and forth. Live in NJ so I have access to good hospitals and doctors. Get an ultrasound once a year. Mom died from kidney complications but she also was 84 years old and suffered a stroke because her PKD was not caught till age 75. hope this helps. freel free to private message me, too, if you wish.
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