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Old 06-10-2007, 08:29 AM
 
Location: Florida
6,266 posts, read 19,138,860 times
Reputation: 4751

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Pixie,my husband has Fibromyalgia and in fact is 100% disabled from it. The heat does make him feel bad,but then extreme cold does too. Seems the heat may be worse though. He hurts so much and almost 24/7 that it is hard to tell. Suspect my daughter,28 years old,has it too and probably has since age 5-yep! She won't give into it-yet. My husband's sister and her daughter have it too.



Quote:
Originally Posted by Pixie Dust View Post
I need some input. I have noticed that everytime summer comes along my fibro seems to flare up. I have also noticed that the more humid it is the more my legs hurt. I am getting unvoluntary muscle spasms again. Guess what I hadn't gotten any since last summer. Has anyone experienced this or have you seen your Fibro flare durring any kind of weather changes or seasons???? Just wondering if this is only happening to me or are there others.
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Old 06-11-2007, 09:07 AM
 
Location: Miami. Florida
942 posts, read 2,580,375 times
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Quote:
Originally Posted by northernexposure View Post
Pixie,my husband has Fibromyalgia and in fact is 100% disabled from it. The heat does make him feel bad,but then extreme cold does too. Seems the heat may be worse though. He hurts so much and almost 24/7 that it is hard to tell. Suspect my daughter,28 years old,has it too and probably has since age 5-yep! She won't give into it-yet. My husband's sister and her daughter have it too.
Hi Northern, I use to live in Chicago and I dont remember the winters making me go through so much pain. However, when the summers come along in S.Florida I am in so much pain I cant deal with it. The rain doesn't bother me but the humidity + the heat = pain for me. My mom says as a child I would always complain about being in pain when we would have extreme summers up North. What helps your husband cope?? What medications is he taking??
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Old 06-11-2007, 04:46 PM
 
Location: central WI
45 posts, read 147,273 times
Reputation: 26
Default Me*waving my arms*

I have fibromyalgia BAD(also other chronic pain diseases).I hurt worse in the summer than in winter. My legs just ache and get so weak when it is humid.(weather changes too)I was diagnosed in 1997.I have done this,tried that,etc.
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Old 06-13-2007, 06:45 AM
 
Location: Miami. Florida
942 posts, read 2,580,375 times
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Quote:
Originally Posted by natrlvr2 View Post
I have fibromyalgia BAD(also other chronic pain diseases).I hurt worse in the summer than in winter. My legs just ache and get so weak when it is humid.(weather changes too)I was diagnosed in 1997.I have done this,tried that,etc.
Do you think any of the methods you have tried ave worked more than others. I have noticed Lidoderm patches really help me.
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Old 06-13-2007, 08:36 AM
 
Location: central WI
45 posts, read 147,273 times
Reputation: 26
Smile Everyone is different

What may work for one,does not work for another. Also every insurance is different too.One may cover something and the other won't.Same with Drs. some will prescribe something to try,some won't.Never ending battle.
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Old 07-28-2010, 05:59 PM
 
10,449 posts, read 12,439,563 times
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Quote:
Originally Posted by Pixie Dust
need some input. I have noticed that everytime summer comes along my fibro seems to flare up. I have also noticed that the more humid it is the more my legs hurt. I am getting unvoluntary muscle spasms again. Guess what I hadn't gotten any since last summer. Has anyone experienced this or have you seen your Fibro flare durring any kind of weather changes or seasons???? Just wondering if this is only happening to me or are there others.
Yep, summers are the worst for me. Or more specifically, thunderstorm season. Having the back and forth between the high pressure of sunny weather and low pressure of stormy weather really messes with my FMS (and other related conditions). See if there is a correlation between when you have your worst pain and the weather (e.g. right before it rains, right after it rains, etc.)

Pikantari, I'm seronegative for RA too.

On another note, I don't really like going to the rheumatologist for fibro (no offense to rheumies). It seems like fibro patients are just dumped on rheumatologists to help eliminate any other diseases, but I think a neurologist would probably be a much better specialist since fibro is, well, neurological in nature. The reason I say this is because I've had several rheumatologists who tell me they are positive I have fibro but totally ignore it and only treat my RA. Anyone with me on this?
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Old 07-29-2010, 10:40 AM
 
Location: Hawaii/Alabama
2,267 posts, read 4,109,413 times
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Weather changes do affect me but since I, too have RA (and SLE) it is difficult to tell which if not both, are to blame.
I tend to ignore my FMS too, since my RA & SLE cause me many problems (I also have spinal issues).

The Lidoderm patches do help (which surprised me since Fentanyl didn't begin to touch the pain) as does moist heat.
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Old 07-29-2010, 10:45 AM
 
8,598 posts, read 9,093,828 times
Reputation: 5934
Quote:
Originally Posted by nimchimpsky View Post
Yep, summers are the worst for me. Or more specifically, thunderstorm season. Having the back and forth between the high pressure of sunny weather and low pressure of stormy weather really messes with my FMS (and other related conditions). See if there is a correlation between when you have your worst pain and the weather (e.g. right before it rains, right after it rains, etc.)

Pikantari, I'm seronegative for RA too.

On another note, I don't really like going to the rheumatologist for fibro (no offense to rheumies). It seems like fibro patients are just dumped on rheumatologists to help eliminate any other diseases, but I think a neurologist would probably be a much better specialist since fibro is, well, neurological in nature. The reason I say this is because I've had several rheumatologists who tell me they are positive I have fibro but totally ignore it and only treat my RA. Anyone with me on this?
Agree, an anesthesiologist may help also.
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Old 08-03-2010, 05:46 AM
 
977 posts, read 1,107,439 times
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Weather is a major issue for me with fibromyalgia---that's why I recently moved to Az. For me, the pain is very bad right before a weather change---always before rain or snow. The DRYNESS of the desert really, really seems to help. So many symptoms disappeared, I was amazed. made a trip to Co. and it rained several times while there---they all came back. Now it's monsoon season and I'm struggling again. the pain hasn't been real bad, but the fatgue and foggy thinking have been almost impossible to cope with. So, yes, I've noticed a difference. But you'll probably find that not everyone with fibromyalgia does.
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Old 08-04-2010, 10:26 AM
 
10,449 posts, read 12,439,563 times
Reputation: 12597
Does anyone get the "just woke up from general anesthesia" feeling? I just woke up with that feeling this morning and thought it was worth mentioning here.
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