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Old 07-13-2010, 08:11 AM
 
13,768 posts, read 36,700,406 times
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I am looking for a recommendation for Ophthalmologist Specialist for Fuchs Dystrophy. I had never heard of Fuchs until last month but I have been told I need to find someone who specializes in this. I did find one in B'ham but am hoping to find one in H'ville.
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Old 07-13-2010, 09:42 AM
 
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Quote:
Originally Posted by Keeper View Post
I am looking for a recommendation for Ophthalmologist Specialist for Fuchs Dystrophy. I had never heard of Fuchs until last month but I have been told I need to find someone who specializes in this. I did find one in B'ham but am hoping to find one in H'ville.
I had a cornea transplant done at the Callahan Eye Foundation Hospital in Birmingham. Personally, I wouldn't recommend going anywhere else. Yeah, it is a pain having to drive down there, but they are very good down there.
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Old 07-13-2010, 03:52 PM
 
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Originally Posted by Keeper View Post
I am looking for a recommendation for Ophthalmologist Specialist for Fuchs Dystrophy. I had never heard of Fuchs until last month but I have been told I need to find someone who specializes in this. I did find one in B'ham but am hoping to find one in H'ville.

I too have FD. I would highly recommend that you join this yahoo group.

fuchsfriends : A place of support and information for people with the eye disease known as Fuchs' Dystrophy

They have a wealth of information including a database of physicians who are recommended by members.

I didn't check the database for docs in your area but one of the most highly recommended docs is Alan Kozarsky in Atlanta. That is as far as DSAEK type transplants are concerned. You may not be close to needing a transplant at this time and all you need is a doc who is competent to keep you up on what is happening.

Based on my research when you get to the point of needing a transplant experience is a major factor in a good outcome. As a result I would be heading towards the ones with the best reps out there. Such as Mark Terry, Portland, OR; Francis Price, Indianapolis, IN; Mark Gorovoy, Fort Myers, FL and Alan Kozarsky. These guys seem to be the leaders in that transplant procedure although I am sure there are others out there who are competent.

Hope this helps.

Jim C
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Old 07-13-2010, 08:53 PM
 
Location: Huntsville, AL
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I don't know about that condition specifically, Keeper, but I have a friend with a child who has some rarer eye issues and she makes the trek out to Birmingham.
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Old 07-14-2010, 06:07 AM
 
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Thanks everyone for the info. I am still trying to take all this in at this point. I don't know if I need to have a transplant yet. I just want to know my options.
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Old 07-14-2010, 07:49 AM
 
1,351 posts, read 3,242,198 times
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Originally Posted by zenjenn View Post
I don't know about that condition specifically, Keeper, but I have a friend with a child who has some rarer eye issues and she makes the trek out to Birmingham.

There are doctors commuting (certain days) from their Birmingham practice. So "good" doctors (i.e. specialized) serve Hsv area too. I would call few offices and ask for recommendation if your disease is rare and only few tackle it. I would like to think that if you call an office randomly and inquire, they wouldn't tell you (dishonestly) they can handle it, but rather refer you to a "specialist".
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