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Old 11-12-2012, 03:11 PM
 
Location: Mississippi
1,248 posts, read 1,874,579 times
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I have an uncle who is prescribed morphine patches, and he has also used fentanyl suckers. He gets all of this through a pain clinic though because no GP in their right mind who wanted to keep their lisence will prescribe meds like these. There are lots of options for pain control for your husband, but the key is getting him into a pain clinic to see a doctor that writes the kind of scripts that he will need.
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Old 11-12-2012, 04:11 PM
 
Location: Chapel Hill, N.C.
36,497 posts, read 45,468,190 times
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OMG I can certainly relate. I'm 66, Type 1 diabetic with stage 3 kidney disease. In 1994 doc put me on methadone for pain after my third pancreatitis attack in 18 months left me in a coma, on life support, neat death. I was only 47 and the pancreatitis was caused by premarin for menopausal symptoms. I was in a wheel chair for a year but finally got somewhat recovered but my left hand was in a tight knot when I came out of the coma, my thumb became deformed and in constant freeze and pain and i have been in pain since then. Basically I have only 1 hand which works and have neuropathy really bad in both feet. Still I function.

I started off with 20 mg 6 times a day for about a year. Not nearly as much as your husband and I never got over that amount. Gradually I withdrew myself because I was afraid of it. Today all these years later I was still taking 5 mg about once or twice a week, probably not enough to do any good but at least I felt I was doing something. While there was no physical dependency there certainly was psychological dependency. My GP finally understood what I was talking about when he had hip replacement surgery and needed pain meds for the first time in his life. He told me he had to have a pill in his pocket at all times for about 3 months just to reassure himself he had some control.

For those who don't know pain clinics will push methadone the minute you walk in the door. So many people don't realize it is prescribed for pain and I had to be very careful who knew I was "on methadone" because so many people-even in medical community- think of it only for drug addiction. My elderly mother was prescribed it for neuropathy while she was in assisted living and the lady who gave out the meds came up to her one time and asked her what it was like to get high. Can you imagine that?

Recently I started going to a geriatric specialist at the suggestion of a doc who felt she was in over her head with all my various illnesses. The clinic I went to was terrific with a resident, pharmacist and internist all seeing me the first visit. They wanted to get me off methadone-even the tiny amount I take and put me on this: 2 extrastrength acetaminophen every 3 hours as long as i was awake and 1 hydrocodone-apap 5-325mg as needed no more than 3 times a day. I was baffled about why they balked about the tiny amt of methadone I was taking. For almost 20 years I've been on it through hysterectomy, 2 hernia repairs, 2 broken bones, 2 foot surgeries, pacemaker, several dental surgeries and nobody else ever said a word about it. I think it is because I will have a long term relationship with this new clinic where the others knew they would be dealing with me short term.

The pharmacist drew me a ladder picture explaining the differences in pain killers with OTC on the bottom, about half way up was hydrocodone, next was oxycodone (Ithe drug I associate with gang bangers, druggies, etc.) and at the top was methadone. It must be very powerful but honestly no amount of it ever made the pain go away.

I don't know if I've helped, probably not. Could your husband have some other medical issue which is making him sick? I can't believe a medical professional would completely ignore you when you relate what is happening. After all, the first thing you are asked at any doc appt now is "Rate your pain from 1 to 10".
A 30 y.o. doc is probably scared to death of being used for drugs and afraid of getting in trouble yet I understand your reluctance to appear to be doctor shopping, especially in your area. As long as you do not ask for controlled drugs and just present as a patient with specific needs maybe you would get a better welcome (I know this is for DH and not you). I told my new doctor I didn't care what she gave me but I had to have something I felt I could rely on.
I hope you and your husband find some relief and a listening doc soon who will help you. I understand your dilemma.
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Old 11-13-2012, 05:08 PM
 
154 posts, read 331,909 times
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Good news ! We FINALLY got an appt. at our original pain clinic ! They called today and I almost fell apart in front of my DH. It is next week even,,,I know he won't get meds or anything first visit but maybe they will recommend something till his Dr. visit. We are going to explore Neuro trans, pain pumps pain patches, don't know about Fent. suckers.. Wouldn't they be addicting also? I am just asking. DH wants of ALL oral opiates and narcs. If at all possible. Then he has to begin "fixing" his pain parts..Hips, shoulders, arm. God, you all have been so helpful. I will let you know how it goes and maybe I can help somebody here. DH's young doc did prescribe Phenegrin(spelling) for his nausea and I have Benadryl for the shakes, protein shakes, One a Day. That's all I can do for him now. If I could I would do his withdrawal for him.
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Old 11-13-2012, 05:35 PM
 
Location: Mississippi
1,248 posts, read 1,874,579 times
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Oh, I did not realize that he wanted off all of the opiates entirely. I'm glad that he got in at the pain clinic. Hopefully they will be able to find something that will help him. Good luck!
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Old 11-14-2012, 09:38 AM
 
154 posts, read 331,909 times
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He wants to TRY and live without opiates but may not be possible. That's why I want to look in to neurostimulators. After 8 years of this I am tired of counting his pills and making sure he has enough till the next appt. Some days he hurts more and I have to be sure he doesn't take a couple extra for that day and will run short. yada, yada,yada.....really a pain in the a$$ I just want his pain to stop and be pain free before his "time comes". Thank you, will let you know the outcome of his appt next week. Happy Thanksgiving to all of you.....

Last edited by tazymae2010; 11-14-2012 at 09:40 AM.. Reason: spelling
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Old 11-14-2012, 09:39 AM
 
4,762 posts, read 11,671,942 times
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Quote:
Originally Posted by tazymae2010 View Post
...DH's young doc did prescribe Phenegrin(spelling) for his nausea and I have Benadryl for the shakes, protein shakes, One a Day. That's all I can do for him now. If I could I would do his withdrawal for him.
Hummm... The Benadryl is an excellent idea! That makes me drowsy. And over-the-counter non-narcotic.

Just be sure to tell all doctors everything he is taking including over-the-counter meds. Some medications can have nasty interactions when taken together - even some drugs along with good old cough medicine! (Read ALL labels.)
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Old 11-14-2012, 09:43 AM
 
154 posts, read 331,909 times
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We did clear Benadryl with his no help doc and he said that was ok. We are going to take all his meds to the pain clinic so they will know what he takes. Thanks. Benedryl does help him sleep so at least that is something OTC.
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Old 11-14-2012, 09:44 AM
 
Location: Washington, DC
3,872 posts, read 4,125,731 times
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Quote:
Originally Posted by tazymae2010 View Post
He wants to TRY and live without opiates but may not be possible. That's why I want to look in to neurostimulators. After 8 years of this I am tired of counting his pills and making sure he has enough till the next appt. Some days he hurts more and I have to be sure he doesn't take a couple extra for that day and will run short. yada, yada,yada.....really a pain in the a$$ I just want his pain to stop and be pain free before his "time comes". Thank you, will let you know the outcome of his appt next week. Happy Thanksgiving to all of you.....
Have you two considered cannabis (medical marijuana) for pain?
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Old 11-14-2012, 02:44 PM
 
Location: Maine
2,270 posts, read 5,903,212 times
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I am glad he's getting in to the pain clinic -- that is where he really needs to be seen to have these issues addressed. The providers there can answer all of your questions about alternatives to opiates. It's probably going to be pretty tough -- our bodies were not meant to be on opiates for any but the briefest amounts of time. His pain receptors are all screwed up, through no fault of his own.

I know some people have had some luck with biofeedback. Again, at least he's going to see the pain specialist -- that's the most important thing.

Best of luck to you both.
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Old 11-14-2012, 03:17 PM
 
154 posts, read 331,909 times
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Well, that would be an answer to our prayers except KY does not and probably will not EVER have med weed ! It does too much good for people. That was and probably still is the number one cash crop now in KY since raising tobacco is no longer the cash crop. I don't even know what states DO allow med weed. I will look it up but it makes no difference since I am in KY. We are trying to save enough money to move to FL. Warm weather and no more slip and fall on ice and fkn snow !
Thanks though for the thought.....
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