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Old 02-20-2014, 06:40 PM
 
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Just moved to NW Cary from out of state. Just before move, I was diagnosed with fibromyalgia. I am looking for an internist, or other specialist for fibromyalgia management. I have BCBS so network not a problem.

I have looked at both Duke and UNC websites extensively...no one apparently has this as their interest. Anyone with specific suggestions for a health care provider with experience with fibro?

From experience, I have found warm water exercise and deep tissue massage help with pain. So far, the only pool that I have found with good availability is Rex wellness in Cary. Anyone have experience with either that facility or another one? UNC wellness in Cary does not have their warm pool open, and when they do, it will be only for physical therapy.

I am also needing a physical therapist. It would be great if he/she was close and/or in practice connected to my physician.

Any advice would be greatly appreciated.
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Old 02-20-2014, 07:52 PM
 
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I can't speak to fibromyalgia specifically, but Dunn Physical Therapy on Cary Parkway/High House in Cary has a small, warm therapy pool. It is available for private use when not being used for a therapy session by others. I remember reading this on a brochure. My experience with PT at Dunn was fantastic and I highly recommend them.
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Old 02-20-2014, 08:03 PM
 
Location: At the NC-SC Border
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Pullen Park (City of Raleigh Parks and Rec) in West Raleigh has a large warm water pool. Group or private therapy sessions are also available.
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Old 02-20-2014, 08:29 PM
 
Location: NC
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If you haven't already, you could look for a D.O. as your primary care provider. https://www.osteopathic.org/OSTEOPAT...s/default.aspx
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Old 02-21-2014, 06:39 AM
 
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Thanks, all, for the replies. Still hoping for more input, especially on doctors...but also medical/deep tissue massage therapists.

Quote:
Originally Posted by Voltige View Post
I can't speak to fibromyalgia specifically, but Dunn Physical Therapy on Cary Parkway/High House in Cary has a small, warm therapy pool. It is available for private use when not being used for a therapy session by others. I remember reading this on a brochure. My experience with PT at Dunn was fantastic and I highly recommend them.
Thanks, voltage. Did you use the Dunn warm pool treadmill? Specific therapist that you thought was good?
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Old 02-21-2014, 06:54 AM
 
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You might check out Dr Beverly Goode in Raleigh. Off of Creedmore I think.
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Old 02-21-2014, 07:29 AM
 
62 posts, read 116,627 times
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Quote:
Originally Posted by mamasplace View Post
You might check out Dr Beverly Goode in Raleigh. Off of Creedmore I think.
Thanks mammasplace. I am not thinking of naturopathic treatment. However, if I change my mine, Dr. Goode might be a good option. For now, I am seeking a traditional provider that also recognizes the benefits of acupuncture and PT/warm water therapy. These seem to be my best management strategies.
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Old 02-21-2014, 08:51 AM
 
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I haven't had great luck finding a physician and I've been to many. My rheumetologist that I loved retired last last year =( The things I found most helpful was to just keep trying to find things myself that worked. What has worked for me:

Aquatic Physical Therapy
Raleigh Physical Therapy, Raleigh Aquatic Physical Therapy & Beyond, Raleigh Rehabilitation, NC, North Carolina, Therapy, Aquatics, Aquatic Therapy, hydro thereapy, hydrotherapy
They were wonderful and aquatic PT helped. After your session, they have a hot tub you can soak in. They also had a lady that did medical massage while I was there that helped immensely.
______

Russo Massage Therapy
Massage Therapy, Therapeutic Massage - Cary, NC | Russo Massage Therapy
If you just want to get the massage without the PT, this lady is great for medical massage. This isn't a relaxing spa type massage- she really targets trigger points and points of chronic pain and is very talented at what she does.
______

My Therapist
The thing that absolutely saved me and got me to the point of finally handling my fibro was my therapist. I was holding on to a lot of tension, stress and a lot of unresolved issues that manifested into chronic pain. The tension and stress caused me to remain tense at all times, leading to chronic muscle tension, migraines, fatigue, etc....you know the drill. I saw several before finally finding Jen who really truly helped me:

Jennifer Kaylor, MSW, LCSW
211 E. Six Forks Rd. Suite 201,
Raleigh, NC 27609
919-397-5111
Serves children (age 5 and up), adolescents, adults, and geriatric populations. Clinical assessments, family therapy, individual therapy,and substance abuse. Sprecializes in PTSD, anxiety and depression, behavioral issues, anger management in adolescents.
____

Yoga!
They say one of the most important things with Fibro is getting excercise. Well this is kind of hard to do when you feel completely exhausted 24/7 and you can barely even drag yourself to work every, let alone even think of making it to a gym. By attending classes at the gym, it kind of gives you motivation to show up. After awhile I actually started enjoying it (shocker). I go to Rapid Fitness on Falls of Neuse in North Raleigh and just go to Body Flow a few times a week. This is a great class and combines pilates, tai chi and yoga. A great muscle building workout that really stretches your muscles and helps with the pain.

___

Stretching & Foam Rollers
Do yourself a favor and get a stretching strap and a foam roller and do research on how to use them. A lot of my chronic back pain is cause by tight hamstrings that comes from sitting in a desk all day. When we watch tv, I just lay on the floor and do my stretches and roll out those crazy knots I get.


Good luck! Let me know if you have any other questions or if I can help with anything else.
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Old 02-21-2014, 09:23 AM
 
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Many doctors diagnose fibromyalgia when they really don't know what'snwrong with the patient.

Try a good internal medicine practice and let them guide you to a provider like Duke or Rex where the diagnosis can be confirmed and referred or dismissed with a new diagnosis.
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Old 02-21-2014, 10:03 AM
 
Location: Raleigh, NC
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Just fyi, my MIL saw a complete remission of her fibromyalgia symptoms when she removed processed food from her diet. Incidentally, what caused her to do this was that I was having symptoms very similar to her (she kept telling me they were fibromyalgia symptoms) and I went all-natural/organic and felt like a new person. I never experience the pain anymore. I also don't have headaches, which used to be a weekly thing and fairly debilitating. Since doctors don't know what causes fibromyalgia it certainly wouldn't hurt to try eating a clean diet and seeing how it works for you. By clean, I mean read every label and if you don't know what it is, don't eat it. It certainly can't hurt you.
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