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Old 10-29-2010, 08:17 PM
 
12 posts, read 20,670 times
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Hello, this is my first post and I am hoping someone can help me

My Son is 6 years old and has had delays since birth. He was born in respirotory distress and spent the first month in the NICU.

we have been followed by physio, Speech & Language, gross motor, fine motor and psychological assments rigurasly since then. He has been delayed to meet every milestone from sitting up to first words to first steps. He cold not peddle a bike until he was 4!

He attended 2 pre-school years and a kindergarden with an aid and his verbal skills have come a long way but my biggest fear is his social skills, he struggles to interact and play with other children.

He has osessions with things... this started at 18 months and at first I thought it was cute... from Lions to the Movie CARS, to homas the Train and now it is Transformers/Iron Man really anything robotic or Alien like.

He has struggles paying attention in school, he becomes a transformer or takes his pencils and has them "batteling" he plays out the movie over and over in his head. once he is on the topic you cannot get him off.

This affects his relationship with peers... they want to play tag and hes acting out a role in his head and they give him a look and walk away.

Aspergers was a suggestion, then ADHD. We have been waiting a year to get into the specilast to get a formal diagnosis and a few days ago we finally saw this Dr.

After a long discussion and meeting with my child he gave me the recomendation we needed either focus on the attention issues or to focus on obsession.

as he discussed his findings and asked questions of myself, his teacher and school liason worker we decided to treat the obsessions and he has told me to Learn everything about OCD.

Where I am confused is he has no "rituals" , no hand washing or organising. He simply pretends to be and only talks about a specific character. as an example: me- "how was your day". him - "i dreamed about megatron and me fighting" and me- "cool, but tell me about school" him- "i want to play wii can i play megatron and we can fight".. I can not redirect this convesation no matter how long we try.

His teacher has had to take him out of class as he role plays in class to the point he climbs on desks "to attack the fallen"

He has not been formally diagnosed with anything though a screening test scored him high for Aspergers.

Any thoughts or any appreciation would be appreciated! I have so many questions...
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Old 10-30-2010, 07:45 AM
 
Location: Texas Hill Country
2,392 posts, read 9,634,632 times
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Well, we have Aspergers,extreme ADHD (as a well known neurologist put it) and other issues. My boy right now is 10 and it took 3 years to figure everything out but never did I here "chose what to deal with" It souns to me the "OCD" issues actually are in the Aspergers family. My guy has no rituals to speak of but he does hyperfocus on things..his current focus is marbles..I think I have about 300 of those lovely little balls maybe more! But that focus changes every so often. As far as the conversations go some days we are like that some days not...what type of speciallist did you see? Its seems to me that those conversations are telling esp with the teacher pulling him out because he was day dreaming so to speak. doesn't add up to OCD for me..I would keep looking so many things comorbids with Aspergers it hard to work them all out. I would find a Dr that wants to work with the whole child and not say pick one or the other. Once you get the true diagnoses and are living day to day with that diagnoses then you may have to pick your battles. Marbles are ok as long as they stay in his room and not the whole house!
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Old 10-31-2010, 01:31 AM
 
17,183 posts, read 22,833,696 times
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I would read up on Asperger's syndrome starting with Tony Attwood's book

Amazon.com: The Complete Guide to Asperger's Syndrome (9781843106692): Tony Attwood: Books: Reviews, Prices & more

From your description, this does not sound like OCD, but that doesn't mean he could not have OCD as a co-occurring condition. Obsessions can certainly be a part of asperger's without this being OCD too.

Some articles on asperger's
Aspergers' article and check list

There is a free 9 part email course on this site
Aspergers Syndrome-Aspergers-Aspergers Disease-Aspergers Disorder-Autism Aspergers

Good luck!
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Old 10-31-2010, 06:54 AM
 
Location: So Ca
26,654 posts, read 26,621,846 times
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Quote:
Originally Posted by PepperAnn15 View Post
.... his teacher and school liason worker...has told me to learn everything about OCD. Where I am confused is he has no "rituals" , no hand washing or organising. He simply pretends to be and only talks about a specific character. as an example...
There is Obsessive Compulsive Personality Disorder, where there are no repetitive behaviors or rituals, and OCD, where there are. Look through the DSM-IV. We have friends with a now adult daughter who was diagnosed with the first category of OCD as a young teen, after years of being misdiagnosed with ADHD.
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Old 10-31-2010, 08:58 AM
 
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Thank you all for your advice, I have ordered the books recomended plus "look me in the eye" by John Atwood as recomended by his school liason worker.

Im sooo frustrated! hes been on the medication the dr recomended for 5 days and the thursday,friday his teacher and our nanny oth commented on what a different kid. Thursday night homwork was done know tears and no frustrations. So I was filled with hoe even though i know it should take a while to see if the meds are going to work..

But then Friday afternoon, My husband took them to get haircuts and our son suddenly started climbing al over the stranger next to him at the barbour shop and was trying to bite him. My husband was getting a haircut and this is a ritual they often do and normally J just stands beside him and watches and chats to the stylist, but today he seemed agitated and out of control. My husband was so embaressed and frustrated when he came home we nearly ended up in an argument.

I asked J why and he said "he was a vampire, i needed to bite him" and seems non phased by this whole thing! he has been even less attentive as each day goes on which we were told could be a side effect!

Keep the advice coming, im trying to sink up as much as possible. Specifically any techniques other parents would have used in the "Vampire Incident"
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Old 10-31-2010, 11:52 AM
 
17,183 posts, read 22,833,696 times
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Quote:
Originally Posted by PepperAnn15 View Post
Thank you all for your advice, I have ordered the books recomended plus "look me in the eye" by John Atwood as recomended by his school liason worker.
Look Me in the Eye is by John Elder Robison (not John Atwood). Robison is the brother of Augusten Burroughs who wrote Running With Scissors, btw. Robison is now on the board of Autism Speaks.

Here is his website:

Website of John Elder Robison, author of Look Me in the Eye.
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Old 10-31-2010, 12:02 PM
 
17,183 posts, read 22,833,696 times
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Quote:
Originally Posted by PepperAnn15 View Post
Im sooo frustrated! hes been on the medication the dr recomended for 5 days and the thursday,friday his teacher and our nanny oth commented on what a different kid. Thursday night homwork was done know tears and no frustrations. So I was filled with hoe even though i know it should take a while to see if the meds are going to work..

But then Friday afternoon, My husband took them to get haircuts and our son suddenly started climbing al over the stranger next to him at the barbour shop and was trying to bite him. My husband was getting a haircut and this is a ritual they often do and normally J just stands beside him and watches and chats to the stylist, but today he seemed agitated and out of control. My husband was so embaressed and frustrated when he came home we nearly ended up in an argument.

I asked J why and he said "he was a vampire, i needed to bite him" and seems non phased by this whole thing! he has been even less attentive as each day goes on which we were told could be a side effect!

Keep the advice coming, im trying to sink up as much as possible. Specifically any techniques other parents would have used in the "Vampire Incident"
Medication usually takes a bit of time to work, so don't be worried about ups and downs yet. He is still new to the meds.

Some things to try: Self calming techniques for children. Teach this when he is calm and in a receptive mood. Then create a word, phrase, sign or touch that will remind him of the idea.

We have learned to teach our children to name feelings which is good, but need to teach them how to cope with feelings.

Your first defense is heading off things before the situation starts to deteriorate.

Prevention: give choices; say yes when you can (yes – you can have a cookie after dinner); use skills you’ve learned (e.g., leaving the house, give warning, transitional object).

We do want to help kids identify and name their feelings. But we really want to teach our kids how to cope with their feelings. These are life skills. The emotionally literate child is more likely to be successful in school, at work and in interpersonal relationships. Emotional intelligence helps safeguard children from drug and alcohol addiction, eating disorders, aggressive behavior and depression.

When we pay more attention to certain emotions we see more of it (e.g., your child falls down and looks to Mom to see if they should cry).

The Self-Calming Plan

1. Acknowledge and name the feeling (just knowing someone is empathetic helps)
2. Set limits (its okay to be angry but hitting the cat is not okay)
3. Offer self-calming choices (limit two for young children)

Six Categories

Audio/Verbal
listen to calming music, sing a song, talk to someone sympathetic ear), listen to water, use your words

Visual
look at/read a book, look outside, go to your happy place, watch an aquarium

Creative
draw a picture (mad picture), make something (craft or cook), write a letter (journal), write/draw on paper and throw it away

Self-nurturing
get a hug, get a snack (hungry? – low blood sugar; careful, don't just offer food as substitute), take a warm bath

Physical
(these ideas can be better than a time-out) run, shake (hands or all over, like a wet puppy), relax muscles (melt like a snowman), breathe (pretend to be a balloon and then blow bubbles), hug yourself, hug a critter, playdough, float like a feather, massage

Humor
watch a funny video (funniest animals), make silly faces, read a funny book, find humor in a situation

**Use different calming techniques for anger, versus anxiety, versus sadness.
**For frustration with toys, ask what you can do different next time.
**With younger kids, experiment with what works. For older kids, don’t forget to communicate – ask them what works.

Pick out a couple of self-calming techniques to suggest ahead of time (for, or with your child depending on age). Observe your child. They may have come up with something on their own. Consider the types of stress. You may want to offer different self-calming choices for anger or frustration than you would for being anxious.

What could we do different next time? Talk about it when both of you are calm.

Kids go through three stages as they learn self-calming skills:

1. They learn the activity itself. If a child can’t do the activity easily when calm, asking him/her what to do when upset will increase anger or frustration rather than decrease it.
2. They notice that doing an activity changes how they feel.
3. They realize that they can use a specific activity to intentionally change how they feel.

There are a few ways to teach breathing with games:

Ballooning

When you balloon, you breathe in (deeply) and as you breath in you start with your arms at your sides and raise them up parallel to your shoulders and up over your head. Then you blow it all out, make it exaggerated like a balloon spewing out all the air. The kids really like it and it really lowers tension.

Draining

When you drain, you put both hands out in front of you, you twist (and twist, and twist and twist) your hands around like you were turning off water and you *********r face all up, then you blow the air out through your lips (I know... there will be a little spit!) but the kids really like that one and you can feel the stress and tension leaving your own body! (automatic stress relief!)

**************
RDI

Relaxing together -taking deep breaths together. Practice that with him as a regulatory pattern . Take him away from that scene first. Then hold his hands say "You are not calm. Let's become calm. Breathe in........." "Breathe out...." Breathe in a very exagerrated manner. He may not be able to really do the heavy breathing but will probably try. This will take his mind off whatever was bothering him first. After a few minutes, tell him "You are calm now! Wow! We both are calm and that feels so much better" and return to what you were doing.

Your husband might try the RDI technique above. It's a great way to get social contact going as well as calming.

Dorothy
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Old 11-04-2010, 06:03 PM
 
Location: ATL with a side of Chicago
3,622 posts, read 5,806,057 times
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What kind of specialist have you seen? My son is going to be 16 in January, and it's been a never-ending line of testing by neurologists, neuropsychologists, psychiatrists, behavior management specialists (in-home), speech therapists, occupational therapists... his current diagnosis is Asperger's comorbid with bipolar, but we've been through it all, it seems.

Many doctors are quick to treat symptoms by prescribing meds, which will exacerbate other symptoms, which will mimic another disorder. And then more meds are piled on, until you're giving your kids a cocktail of drugs, most just to offset side-effects of others. Then they start mis-diagnosing, based on drug-related side effects. My son was taken off all his prescriptions to get a baseline while in-patient this past summer, and he's now on two drugs, and it's remarkable how it's affected his life.

The only advice I can give you is not to fall into that trap of letting doctors treat every symptom as its own disorder. Get the testing done to find what the main issue is, do your own research, and do NOT be afraid to question the doctor.

It's a long road, and everyone's experience is different. Good luck.
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Old 12-17-2010, 08:23 AM
 
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Hi. Sorry its been a while since i have been on.

Our Dr is a MD who specializes in neurology here is his profile, acording to my pediatrition and the school case worker he is the absolute best in our area and he serves all of Alberta. Autism Today, latest news and resources for autism and autism related issues


We have a follow up appointment on Dec 23... that will make 8 weeks since we saw him and what a roller coaster ride it has been. I think you have hit it on the head Neemy, as now I definatly do find the meds helped with the obsessions, his interests have widened and he plays with differnt toys. however all this "new" stuff is happening and i do not know if it because of the Meds or if it was overlooked because the obsessions were so prominent.

His teacher has a paper she marks on how many time she has to talk to him in a day, when he is making odd sounds, when he is making eye contact, when he is interacting with other children. On the plus side the Eye contact is up a little where he gets a few marks a week, so is the interacting with other kids. However, the how many times she talks to him a day, he is making odd sounds has skyrocketed. I have never heard him make sounds ... now im thinking are they going to say tourettes? (nobody has thats just my first thought!) I have definatly noticed an increase in the hyperactivity....

He is such a great little boy and I want the best for him, my biggest fear is that he is going to be tortured over his "oddities" as he gets in to older grades.

I have read "look me in the eye" from cover to cover and although great, John Elder talks more about being a young man then a child and it gave me good insight, and what we may face but not the anwsers i was hoping to find... I loved the book but im feeling a little selfish these days and was secertly hoping it would give me an "AHA" moment.

Anyways, I am open to suggestions and love hearing your storys.
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Old 12-17-2010, 06:45 PM
 
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There is a triad of Tourette, OCD, and ADHD. The ocd can present with a large degree of anxiety which can severely impact social interaction (I know this because I see it).

Do not be surprised if this gets brought up as an idea.

A lot of that stuff starts looking alike. While a diagnosis is of course very helpful, sometimes attacking it by addressing behaviors is more fruitful. It can be very frustrating.
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