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Old 05-25-2011, 08:35 PM
 
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I'm wondering if anyone here has info on Asperger and seizures. What type of doc?
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Old 05-25-2011, 08:46 PM
 
Location: Tampa
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Have they seen a neurologist? How do you know they have seizures and/or Asperger?
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Old 05-25-2011, 09:03 PM
 
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Asperger is suspected for a while now however, the insurance is leaning towards an educational issue because the symptoms are not severe enough to involve medical treatment. He has had one grand mal seizure and the ER neurologist suggested lack of sleep in combination with being neurological sensitive (hypersensitivity to light, sound, and touch) and further says he's not an expert in Asperger but that is his guess... not a dx. He may make a referral and suggested a neurologist, psychiatrist, and psychologist work as a team to dx. Where do I find that?
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Old 05-26-2011, 05:01 AM
 
Location: Texas Hill Country
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I would find a pedi neurologist because they are the ones to go to for Aspergers and they should be able to deal also with the seizure also. The ER dr sounds like he does not have a clue about kiddos! My son has Aspergers,ADHD and a number other dx and his neurologist is the point person.
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Old 05-26-2011, 10:21 AM
 
Location: Tampa
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I agree with neddy, find a pediatric neurologist. You can call your pediatrician for a recommendation. You may also ask around. Any friends who you think may have taken their child to a pediatric neurologist. You can also call or go your insurance company's website and see their list of pediatric neurologist. However, you won't know how is really good.

As far as the grand mal seizure, your son might have had a seizure from being sleep deprived, which shows he may have an underlying seizure disorder. I have performed EEG's on kids (and adults). When we are looking for an underlying seizure disorder, we will often have the patient be sleep deprived (no more than 4 hours of sleep). This lack of sleep aggrevates the brain making seizure activity on the EEG more likely for us to see it. He will also be more likely to show seizure activity during the stimulus like deep breathing for 3 to 4 minutes and the use of strobe lights.

The ER neurologist suspected Asperger, but wasn't 100% sure of it, I would definately go get it checked out. He may not have Aspergers. There are things that are similar such as Pathological Demand Avoidance Syndrome (PDA), even ADD/ADHD can have similarities. At one point, I thought my daughter had Asperger. It was her pediatric psyciatrist who did not think so. As she matured, her behavior changed and is doing well. I would recommend your first stop to be the neurologist though.

Good luck!

Last edited by annaegel; 05-26-2011 at 10:30 AM..
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Old 05-26-2011, 08:02 PM
 
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Thank you for the input. Now I have to attack the insurance referral. Can it be more complicated? I have to start from the begining with an in network PCP who has never seen him before.

My DS18 had been dx with ADHD but now seems to be a comorbid or possibly wrong dx. IDK.. his psych is completely surprised and wants a week to follow up after his grand mal. No drug usage but possible stress and sleep deprivation. I'm a bit surprised the ER Neurologist recomended 10 hours of sleep daily and healthier habits.... follow up in a month. He left the hospital after a day with no precautionary instructions on petit mals or when to see a doc instructions. It was all "blank" I feel as though I was told sleep deprivation can lead to seizures in some people..... but wouldn't that be a "problem" to investigate further? ER Neurologist did say at the follow up visit, he will make a recomendation to a seizure specialist.
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Old 05-26-2011, 08:44 PM
 
Location: Tampa
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Petit mal and grand mal are two different types of seizures. Petit mal look like someone is staring into space, their eyes are open, but they have "checked out" for about 10 seconds. A seizure specialist is just a neurologist who specializes in seizure disorder. It can help if your son can get all the sleep he needs. Sleep deprived and stress just raises his threshold for seizure activity.
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Old 05-27-2011, 05:48 AM
 
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You're right anaegel. I'm jumping to conclusions and reading way too much stuff. I was wondering earlier if his ADHD symptoms could have been petit mal seizures instead. He has always had sensory processing issues since birth many thought he would outgrow. I just felt the ER neurologist left us with very few answers and very little instruction as to what to do.
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Old 05-27-2011, 07:06 AM
 
Location: Tampa
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As I stated before, my daughter had some issues. Sensory issues was a big part of that. She hated anything that had constricted her or just felt funny. Such as the elastic on the socks and bumpy socks or just socks that did not feel soft, elastic on sleeves, waist bands that went across the belly (she would push it down bellow her belly), certain foods she did not like the way they felt, sensitive to light, noises, smells. As she grew, I think she learned how to deal with it. Socks are still an issue, but at least at the age of 15, she is not throwing a tantrum over it. The doctors thought she had ADD (not ADHD). She was given medication that did nothing. Finally stopped all meds (including the meds for bipolar) and she greatly improved. Not everyone will have the same experience, this is what our experience has been. Has your son ever had psyc testing done for learning issues? We had it done at our cost of $3,000. They found that she did not have ADD. We were able to get a 504 plan for her to allow extra time on tests. The school that she was in in NJ gave her a 504 plan, no problem. Just had a diagnosis of generalized anxiety disorder and the teacher recommendation. We are now in Florida and I understand it is very difficult to get a 504 plan now. You have to jump through such hoops and really fight for it. It really helped her though.

Has a doctor diagnosed him with ADHD?
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Old 05-27-2011, 08:01 PM
 
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We haven't done the psych testing yet because the doc's office either wants to label it an educational issue instead of a medical issue. Same issue at school, however, he is extremely bright. He has also done some research testing which showed he has an extremely fast processing speed. He's in the right classroom at school. There is about 7 other students who are smart with adhd and/or Asperger type issues and the courses have really challenged them to be quite successful.

We were attacking his truancy issue by having him go to a variety of court ordered counciling hoping that he will choose a better sleep schedule and wake up in time to go to school and checking in with each teacher daily to see if he has met the daily requirements and timelines. Everything improved after 6 weeks and he was able to bring up failing grades to near 100%, graduating with a 3.5 overall average and no failing courses.

Then he has this grand mal seizure after waking up in the morning followed by explosive anger. He doesn't remember anything and all of his docs are nervous. He has no dx yet and the insurance is making it extremely difficult to see a neurologist. S I G H..... From what I understand, in his case, a neurologist would lead the treatment plan and advise the psychiatrist and primary care about future treatments.

I guess in a way.... I may be jumping the gun with my thoughst about asperger or adhd.... IDK... he is successful in school in his own way.
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