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Chiari Malformation and Syringomyelia

Posted 04-28-2012 at 06:58 PM by cmh799702

My 2 year old daughter was just diagnosed 24 days ago with Chiari Malformation Type 1 and Syringomyelia. For almost a year and a half now we have been trying to figure out what is wrong and finally we have these diagnoses. Her neurologist said it is "simple", we are going to a neurosurgeon on Friday and I am so scared, nervous, etc... I was wondering if anyone in the New Mexico area has any information for us? I have researched, read, re-read, facebooked different groups/parents, and so...
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