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Please take comfort in the fact he is still able to have a shower.
I gave my wife a shower every other day up until July.
She then became so weak she has been bedridden since. A Hospice CNA now gives my wife her daily bed bath.
I now look back on the days I gave her a shower as the........."good times"------and wish we were still at that stage.
Yes, ALS is a wicked disease that takes a Physical and mental toll on the person with ALS as well as the caregiver.
My thoughts and prayers are always with you.
Teddy, I can feel in my heart you have been where I am right now and yet you are so kind as to show me I need to be thankful for even this much.....it is so important to have someone point that out that this should be something I can look at in a positive way...as you did. ALS is one of the most ugly diseases I know of and you are 100% correct--it not only takes a toll on the patient but also the caregiver. It takes a proud person and turns them into a needy weak person...and for a wife to see that in her once very strong husband is one of the worst things I could go through. I feel totally wrung out tonight.
Right now I just feel like crying.................
As you can well imagine I am beyond exhausted both physically and mentally. I have so many things I am trying to do right now--bills, listings taking care of my DH and then there is my critters and my home...well I am tired and overwhelmed once again. Time for some rest..will finish up getting dinner on and cleaned up and the I pray for just a little rest...thanks for all the positive thoughts. Night all......
Good morning everyone!
All those hopes for a good nights sleep didn't happen. DH had another choking breathing attack last night. We sat up until 1:30am trying to calm him down. Even once he did calm down I was wound up and couldn't go to sleep so morning came very early. As always I was awake at 5am. Last night was a real bad attack--I am very happy we have a ALS clinic coming up soon. Hopefully they will have some ideas on how to control this a little better.
Time to get some things listed..have a good day.
The next ALS clinic is next Friday. I just had another horrible nosebleed..probably stress related I would guess. Just had to lay down and relax and now it's better. Back to work now......
I know you are right elston--just need to remind myself a lot lately!
I know cyn.....I don't mean to be flip or to give advice......no one would choose to go thru what you and your DH are going thru.......and you will do it however you best can. I do know that. I am just standing in the wings, trying to be encouraging.
And you do it well my dear friend! Always encouraging and standing steady by my side! Thank you! I do get weak but you always remind me to stay strong.... Isn't that what friends do?
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Isn't that what friends do? 
