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We had a wonderful 4th of July celebration before checking Manning into the hospital for his cranial surgery. Manning participated in our home town 4th of July parade. We wanted to take this opportunity to remember and honor Manning donor and donor family. We also wanted to bring about awareness for organ donation. We passed out organ donation cards along the parade route. Peyton's T-ball team named "Angels" in memory of Manning heart donor also participated in the float be passing out candy and donate life bracelets. We are thankful to all of the individuals that helped us that day because it helps us as a family to honor and remember Manning's donor.
Manning checked into the hospital on July 6th and we arrived there at 5:45 that morning. The day already started off challenging as they had difficulty drawing his blood but we finally went into surgery holding as we waited for the surgeon to take Manning away. They gave us updates through out the surgery and it was going well. After the surgery was completed the surgeons both spoke with us. They told us that his skull was very immature and was more like a 12 months old which made it easier to make the cut because the bone was not as hard as they expected.
We met up with Manning in recovery and seemed to be doing well except for his cold temperature. He was finally admitted to the PICU where things started to change even more so. He became very pale and his urine output decreased quite a bit. He was losing blood from the incision because his blood was not clotting.
They became concerned that his liver was not functioning at its best and that was the reason his blood was not clotting. They gave him fresh frozen plasma in hopes that it would help to clot his blood. They wanted to avoid giving him a blood transfusion unless absolutely necessary because it increases his for rejection. Manning continued to get paler and had less energy so they gave him a blood transfusion. Shortly after receiving the transfusion his color came back and urine output increased.
The surgeon told us if he continues to lose blood then they would have to take him back to surgery to drain the blood off because it could cause infection. The cardiologist informed us that the transfusion does increase his risk for rejection and we will just have to be alert of any changes in Manning. His heart rate has also been quite high since coming out of surgery which still goes unexplained. He received an EKG and ECHO and we will be follow up in Cardiology clinic in a few weeks. Manning seemed to be more stable and bleeding had slowed down quite a bit so he was moved out of the PICU and onto a regular floor on July 8th.
Manning has two distracters on each side of his head that look like little bolts. He will have these for three months and then we will come back for surgery to have them removed. We are to turn these daily using a special tool. The plan was for the doctor to teach we to turn them on Thursday and then we could go home but instead Manning started running a temp early Thursday morning and started having bright red blood in his stools. We were then put on contact precaution and the labs were started and the GI doctor's were called in to take a closer look at Manning. The gi studies they got back were negative but they suspect he may have an infection of some kind.
They agreed that we could go home on Friday in we follow up on an outpatient basis and if the bleeding continues. Manning continues to have a high heart rate and blood in his stools but we have orders to follow up with cardiology, gi and plastic surgery. We made it home yesterday and Manning wants to be held nearly all the time but I don't mind at all. It has been a long week for us all. Peyton spent the week at his sitter and James drove back and forth to OKC trying to stay caught up on work. We are once again all happy to be home together.
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