Saw dietician first time as a last resort (vegetables, food allergy, supplements)
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Have had severe Ulcerative Colitis for quite a while and have been through all the super expensive drugs. That are supposed to help with the inflammation that colitis causes in the colon. None seemed to allow me to ever go out to have a meal without almost instantly having to run to a bathroom.
Just went to a alternative doctor who did a food sensitivity test and told me to avoid almost everything I have normally eaten my whole life. The hardest to avoid seem to be sugars, starches and gluten. though there is a list of many more that are manageable.
Does anyone question the test they do by having you touch a vial of extracted product such as gluten, then push down on your arm to see if you are allergic to it?
I've been on this diet of nothing for a week now and went to the er, finding my whole GI tract impacted with food and no blockages observed. I also haven't lost a pound, eating things like buckwheat pancakes for breakfast, dry, with herbal tea. and just meats and vegetables, no shade vegetables because of the starches I guess, and no fruit because of the sugars. The healthcare system is so screwed up and under staffed that an appointment is 4 to 5 months out.
Have had severe Ulcerative Colitis for quite a while and have been through all the super expensive drugs. That are supposed to help with the inflammation that colitis causes in the colon. None seemed to allow me to ever go out to have a meal without almost instantly having to run to a bathroom.
Just went to a alternative doctor who did a food sensitivity test and told me to avoid almost everything I have normally eaten my whole life. The hardest to avoid seem to be sugars, starches and gluten. though there is a list of many more that are manageable.
Does anyone question the test they do by having you touch a vial of extracted product such as gluten, then push down on your arm to see if you are allergic to it?
I've been on this diet of nothing for a week now and went to the er, finding my whole GI tract impacted with food and no blockages observed. I also haven't lost a pound, eating things like buckwheat pancakes for breakfast, dry, with herbal tea. and just meats and vegetables, no shade vegetables because of the starches I guess, and no fruit because of the sugars. The healthcare system is so screwed up and under staffed that an appointment is 4 to 5 months out.
This is referred to as Muscle Testing for allergies and is not generally an accepted test except by its practioners. There do not seem to be reliable studies testing the effectiveness of the method.
"The Surrey Allergy Clinic explains that there is not enough scientific evidence to support muscle testing as a reliable type of allergy assessment. This is partially due to the fact that each test is different, depending upon the professional conducting the test. Some users utilize magnets in conjunction with the vials in order to gain a greater response. Such variations in testing make the scientific evaluation of muscle testing difficult."
"The researchers in this study looked at several other trials. They took into account at least 50 papers on applied kinesiology and six prior non-clinical trials. The researchers concluded, “The research published by the Applied Kinesiology field itself is not to be relied upon, and in the experimental studies that do meet accepted standards of science, Applied Kinesiology has not demonstrated that it is a useful or reliable diagnostic tool upon which health decisions can be based.”"
"Many tests claim to diagnose allergies. Some are online and others are offered by special practitioners. Unfortunately, there’s no scientific evidence behind these tests. Professional allergy organizations, like the Asthma and Allergy Foundation of America (AAFA), advise people not to use these tests.
Applied kinesiology
What it is: In this test, a person holds a suspected allergen in their hands or mouth. A practitioner then assesses muscle weakness. This practice is supposed to figure out whether an allergy is present.
The reality: There’s no scientific evidence that allergies cause muscle weaknesses. Results may be influenced by the practitioner. It’s not a useful tool for diagnosing allergies."
I tend to agree. With a math and electrical background, I knew when the "Dr" said you can use an ohm meter to measure the frequency of something to something, I should've walked out. Ohm's Law is the first thing they teach you in school.
Possibly my symptoms and his knowledge from experience, generated my diet recommendation. And even that doesn't work.
Reminds me of the locals in St. Lucia and how serious they are about Voo-Doo.
Biological issues should be able to be figured out with math, but I think hospitals and Doctors are too busy to take the time to diagnose what bacteria may be missing or too much of in each individual patient to write a definite prescription. Just throw darts, and take the check!!!
I tend to agree. With a math and electrical background, I knew when the "Dr" said you can use an ohm meter to measure the frequency of something to something, I should've walked out. Ohm's Law is the first thing they teach you in school.
Possibly my symptoms and his knowledge from experience, generated my diet recommendation. And even that doesn't work.
Reminds me of the locals in St. Lucia and how serious they are about Voo-Doo.
Biological issues should be able to be figured out with math, but I think hospitals and Doctors are too busy to take the time to diagnose what bacteria may be missing or too much of in each individual patient to write a definite prescription. Just throw darts, and take the check!!!
Why not go to a real dietician rather than to someone who doesn't follow proven studies?
I don't know what math you think is necessary to determine "what bacteria may be missing",
Have you seen a different gastroenterologist for diagnosis and treatments? Do you have a major university hospital near you? They are usually on the frontier of new treatments.
He's a registered Nutritionist, but I've been to 3 GI's from different reputable hospitals in Weston Fl., Naples, FL and New Haven CT. , all experienced in treating UC with the latest biologics and small molecule drugs, etc. I don't want the bag so i'm grasping for straws.
Last edited by bobbyanylitics; 07-30-2023 at 07:16 PM..
I tend to agree. With a math and electrical background, I knew when the "Dr" said you can use an ohm meter to measure the frequency of something to something, I should've walked out. Ohm's Law is the first thing they teach you in school.
Possibly my symptoms and his knowledge from experience, generated my diet recommendation. And even that doesn't work.
Reminds me of the locals in St. Lucia and how serious they are about Voo-Doo.
Biological issues should be able to be figured out with math, but I think hospitals and Doctors are too busy to take the time to diagnose what bacteria may be missing or too much of in each individual patient to write a definite prescription. Just throw darts, and take the check!!!
There are two Ohm's laws btw, one is related to acoustics and the other is the famous I = VR for circuits.
Biological issues are two complex for us mere mortals to figure out. We have our models, but they're woefully inadequate so we rely on clinical trials in animals and people as the final say. Maybe one day we will figure out everything, that day is not today.
Quote:
Does anyone question the test they do by having you touch a vial of extracted product such as gluten, then push down on your arm to see if you are allergic to it?
I've been on this diet of nothing for a week now and went to the er, finding my whole GI tract impacted with food and no blockages observed. I also haven't lost a pound, eating things like buckwheat pancakes for breakfast, dry, with herbal tea. and just meats and vegetables, no shade vegetables because of the starches I guess, and no fruit because of the sugars. The healthcare system is so screwed up and under staffed that an appointment is 4 to 5 months out.
Food sensitivity test is different from a food allergy test.
Weight loss is about a calorie surplus. An elephant can grow to 13,000lbs eating just bushes and grass - the most organic and clean food in the world. Unless you have a calorie deficit, you won't lose weight, even if you eat high quality nutritious foods.
When doctors recommend nutritious "whole" foods, they think you will be more full and consume less calories. They can be wrong however. If you want to lose weight it's time to create a caloric deficit.
IBD/UC or whatever food sensitivities or allergies you may have are a different story entirely from your weight loss journey.
I tend to agree. With a math and electrical background, I knew when the "Dr" said you can use an ohm meter to measure the frequency of something to something, I should've walked out. Ohm's Law is the first thing they teach you in school.
Possibly my symptoms and his knowledge from experience, generated my diet recommendation. And even that doesn't work.
Reminds me of the locals in St. Lucia and how serious they are about Voo-Doo.
Biological issues should be able to be figured out with math, but I think hospitals and Doctors are too busy to take the time to diagnose what bacteria may be missing or too much of in each individual patient to write a definite prescription. Just throw darts, and take the check!!!
You could try at home test from the type of website like iamaware com. It is a blood test
Read their FAQ - regarding positive and negative results.
Basically, they say it is more likely to be false positive vs false negative.
In another word even if they found certain food sensitivity - it may be false.
Then they recommend the elimination diet for that food to confirm or deny.
However, if they found your result negative towards certain food - you most likely don’t have the sensitivity.
I recommend you try a supplement of HCl and betaine 30 min before each meal? - with age we don’t produce enough acid and our recommended salt reduced diet makes things worse.
The lack of acid - impedes digestion and causes inflammation and increase in motor function of your stomach.
I would visit gastroenterologist too to check if you have motility problems
Another advice have small light meals throughout the day instead of 2-3 large ones.
Try to take a soluble fiber before bed for regularity and stomach lining repair.
Don’t eat any spicy food and no fresh garlic, onions, etc for now until all is healed. In general - avoid all raw food until you sort it out.
Try to record your findings regarding your reactions to the meals you take while waiting for your appointment with gastroenterologist - you could pinpoint something which helps in diagnosis
Last edited by L00k4ward; 07-31-2023 at 05:18 AM..
I don’t have celiac disease, but I did go to a licensed nutritionist for awhile, to see if i could find a cause for some issues i was having.The assessment tests were extensive and included a poop test for digestive enzymes and a blood test for food sensitivity. They weren’t cheap…about $300.@
The three page food test listed the degree of sensitivity to hundreds of foods. This is what you should start with. Your problems cause might be simple and obvious.
Another thing I experienced was the fact that the gastroenterologist I go to, did not seem very open to the opinions of the nutritionist. I think this is because this particular woman lives a vegan lifestyle, which tends to influence her recommendations and makes it harder for us regular folks. At least, I got into the weeds with her trying to keep track of all the supplements and dietary restrictions.
Have had severe Ulcerative Colitis for quite a while and have been through all the super expensive drugs. That are supposed to help with the inflammation that colitis causes in the colon. None seemed to allow me to ever go out to have a meal without almost instantly having to run to a bathroom.
I can't tell from your statement, but it sounds like you might be expecting miracles from these doctors. When you have UC, you're not going to be able to eat everything you want without ill effects, and you have to learn what your triggers are so you can avoid them. Any specialist you see isn't going to get rid of the UC and allow you to eat everything. You're going to be on a limited diet for the rest of your life.
Last edited by fleetiebelle; 07-31-2023 at 06:47 AM..
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