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Old 08-20-2011, 09:02 PM
 
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gastro dr suggested my son take remicade through infusion for collitus.......any infor and feedback would be great.......
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Old 08-20-2011, 09:57 PM
 
Location: Mostly in my head
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My DD is on Humira injections for ulcerative collitis. Seems to be working. She spent 10 days in hospital recently with a very severe flare-up. I guess Remicade is similar?

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Old 08-21-2011, 07:52 AM
 
Location: On the sunny side of a mountain
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My husband is on Humira also, it was developed after Remicade and has the benefit that one can simply inject it at home rather than taking a few hours out of the day every couple weeks for an infusion. They both weaken the immune system so it is essential to get a flu shot, but my husband hasn't had any issues at all. Both are very expensive designer drugs, be sure your insurance covers them at a level you are comfortable with.
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Old 08-22-2011, 08:09 AM
 
Location: Virginia
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I know of 2 people who took Remicade for Crohns. One (female in 40s) ended up with Multiple Myeloma. Now on Humira. Other person, who was a teenage boy, ended up with Lymphoma and died in his early 20s. I would be very careful with this drug.

I hate seeing all the side effects associated with these drugs. It seems like you have to pick the lesser of the 2 evils.......the disease or the potential deadly side effects.
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Old 08-22-2011, 09:31 AM
 
Location: Mostly in my head
19,865 posts, read 57,940,611 times
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GCPA is right, my dd was warned about the side effects. Her doc hopes she won't have to be on it forever. She was being successfully managed on some drug, I've forgotten the name, for 5 yrs before this almost-deadly flare-up. She had to have 4 days of IV potassium to get her level back up to normal. She literally almost died. So, Humira it is for a while!
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