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Old 11-28-2008, 04:14 PM
 
Location: NJ
1,495 posts, read 5,046,883 times
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Anyone you know that has had this and is now well? I know someone going through this and not doing too well with all the chemo and dialysis
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Old 11-28-2008, 05:15 PM
 
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I wish I had better information to give you, but there is no reversal of the overall process active in amyloidosis. I'm sorry.
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Old 11-28-2008, 05:28 PM
 
16,177 posts, read 32,501,220 times
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I am know of a very exciting and promising FDA approved research project on Amyloidosis. The initial phase is finished and now there is approval to include 30 patients and have 5 so far. Please have your friend DM me if they are interested in finding out more. Your friend would have to travel to Knoxville, TN if participation is worked out.
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Old 11-28-2008, 05:30 PM
 
7,079 posts, read 37,944,603 times
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You can look up any clinical trial by any disease by looking at www.clintrials.gov.
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Old 12-21-2008, 06:16 AM
 
Location: NJ
1,495 posts, read 5,046,883 times
Reputation: 957
It's sad to say my friend with Amyloidosis passed away this weekend. Thank you for the information
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