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i The other issue she has in social. That sure is a constant struggle! She is socially/emotionally behind her peers by a couple of years....makes me sad, and we try to help, but at 13, kids can be cruel....and the other girls, getting into clothes/boys/etc, and heres my daughter still playing barbie.....sigh.
I have noticed this in my SS as well. He seems quite a bit behind the other boys his age socially. It is nice to know that is could be the CP causing this. I have been very worried about it. He also doesn't seem to want to try anything new, which doesn't help at all.
hi I am new to the site and wondering have you found any helpful info in regards to lokomat therapy? I have a nine year old with CP we are looking to try this therapy. It has been hard to get any info, even from MD's. they are not real familiar about it and don't have much to offer at this point, besides surgery which we are not interested in.
Sorry for delay (I'm not from US, I'm from Europe- far away... !!!):
Please send an email to moshtoma@yahoo.com for some case reports (6 years old child, etc). Please contact www.spauldingrehab.org , they has experienced on 10 children (7-13 years).
The Lokomat provides "gait training" by moving the legs in a normal physiological pattern that helps the spinal cord and brain to relearn the walking process; this is referred to as ‘neuroplasticity and functional restoration’. A harness supports the patient's body weight over a sensory assisted treadmill. The patient’s legs and hips are strapped into the Lokomat robotic exoskeleton, which simulates a ‘fluid walking motion’. A computer records precise movement measurements and plots them on a graph, which is displayed in real time on a nearby monitor and allows patients and therapists to track progress. (from http://melbournehyperbaric.com.au/Hy...ust%202006.pdf )
i just wanted to add, my daughter is CP spastic diplegic and gymnastics has helped her tremendously! We have had to alter a few of the stretches but OMG....what a difference!! I had her PT come in and we went over things that she does and what we'd need to change, and it was a great process! I coach gymnastics too, and have had a few others come in with this that ive been able to work with and where its not a "cure all" it has made a difference in almost every kid ive been blessed to work with! great strides with self confidence too! just make sure, you get a good coach and id totally suggest a smaller class. With my daughter, i also her her in a little big younger group because of her social issues. Im thrilled we had this chance and did this. Just thought it might be a fun option for other parents.
Thanks to Balanced for the info, & tiffela74 that is awesome! My 21 month old son has spastic diplegia,& I am always looking for new ideas to help him. Has anyone here looked into Hippotherapy? I just found out a local stables does it! If only I could afford it,insurance doesn't cover it.
I just got a great CP book off Amazon,just out last year & LOTS of great info & tips in it: Amazon.com: Finnie's Handling the Young Child with Cerebral Palsy at Home: Eva Bower PhD FCSP: Your Store
Also read two books by awesome moms of little boys w/ CP,I have emailed back & forth w/ both of them,they are AWESOME ladies,& the books really helped me to feel like I wasn't alone in my struggles w/ dealing w/ my son's CP.
Thanks to Balanced for the info, & tiffela74 that is awesome! My 21 month old son has spastic diplegia,& I am always looking for new ideas to help him. Has anyone here looked into Hippotherapy? I just found out a local stables does it! If only I could afford it,insurance doesn't cover it.
I just got a great CP book off Amazon,just out last year & LOTS of great info & tips in it: Amazon.com: Finnie's Handling the Young Child with Cerebral Palsy at Home: Eva Bower PhD FCSP: Your Store
Also read two books by awesome moms of little boys w/ CP,I have emailed back & forth w/ both of them,they are AWESOME ladies,& the books really helped me to feel like I wasn't alone in my struggles w/ dealing w/ my son's CP.
The Hyppotherapy is one OF THE BEST natural therapy for the balance gaining. If your child can do alternativelly&intensively hyppo (2 week/month, every day half an hour) and Lokomat (next mont, 10-12 days, half an hour/day), the results will be amazing
The Hyppotherapy is one OF THE BEST natural therapy for the balance gaining. If your child can do alternativelly&intensively hyppo (2 week/month, every day half an hour) and Lokomat (next mont, 10-12 days, half an hour/day), the results will be amazing
I've never heard of Locomat,just Googled it. None of his dr's or therapists have mentioned it!! He has an appt. w/ a developmental pediatrician tomorrow,I'll ask her about it. I'd love to learn more about it,if it's available here,etc. I am pretty upset that it has never been mentioned to me by any of my son's doctors or therapists! Seems much of what I've learned about CP is from the internet, and NOT the doctors or therapists!!!
Unfortunately ,we can't afford the hiooptherapy,either.
Found more on the website Cerebral Palsy International Research Foundation,surprised I didn't see anything on the more well known United Cerebral Palsy!!
Yes KsStorm, because WE, the PARENTS are more interested about our children ..then doctors or therapists. My current therapist - is a Ph.D Doctor !!!- never heard about Lokomat too... he asked me for details about this !!!! She was amazed about my knowledge..... If you have financial resources try to do with your child dolphinotherapy too.... is expensive but WORTH IT.....for the health of your son...
PS. The BALANCE is the key !!!. Try Vojta intensively !!!
I am a physician and have a LOCOMAT PRO with augmented biofeedback with PEDIATRIC LEGS. We also have a full range of things to help with movement disorders.
The date and videos are quite convincing.
I am located in SAN DIEGO!!
Contact medical rehabilitation & kinematics Lab for details
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