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No, there is no easy way to see this or to keep yourself from feeling so helpless when dealing with a loved one with ALS. This is what ALS is....a fatal deadly slow killing disease that keeps the brain in good working order up to the end and kills off the rest of the body a little at a time. Horrible disease.......
Been there done that with someone diagnosed with Huntington's Disease. And she's the third member of her immediate family to be diagnosed. So I certainly feel your pain.
I am so sorry for you superk/Kevin....Seems like Satin really went out of his way when he thought up these horrible diseases. I can certainly understand people wanting to end their lives when confronted with anything like this--I'm sure I would have to consider it myself but being a Christian makes even the thought of that impossible and my husband has a valued love for life and would never ever consider doing anything to shorten it. My reason for even mentioning this is I read it is common for those diagnosed with Huntington's Disease and I would think any disabeling uncurable diseases would have to make a person consider that option! I would love to afford to run away with my husband while he can still walk and do all those things he has been wanting to do.....run away put our heads in the sand and pretend this isn't happening and just laugh and enjoy ourselves like we dreamed we were going to do in our retirement. But back to reality.....
November is National Family Caregivers Month
I'm posting links specific to care giving and ALS. I hope some of this information helps to support and comfort you. I am so sorry for all that you and your spouse are facing. Prayers going out to you and yours.
My father has Parkinson's. It's very hard watching him go through this. I imagine it's even more difficult watching your husband go through it.
My heart goes out to you.
My mother is in the late stages of Alzheimers. Although I grieve as each day passes and her world becomes smaller and smaller, I realized that caregiving has brought out the best in me. In actuality, its her final "gift" to me, allowing me to care for her. Oh yes, its exhausting, its outcome frightening at times, but I have the opportunity to repay her for she has done for me in giving me life to enjoy. Each day, each moment is precious. Seize the moments!
Hopefully as time goes I will be able to feel more like you....although we have been seeing the progression of this disease for 8 months now for some reason the doctors in our town missed it? Even I knew there was a serious problem when he could no longer talk very well or hold up his head because his neck muscles were so weak. But we finally did get to a good caring Dr in another town who got the ball rolling and within a couple of months we knew it was for sure ALS. That was only a week ago that we got the final diagnosis so my grief is no where near where you are.
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