Originally Posted by Sweetbottoms
About 2 weeks ago I suddenly started experience weakness/shakiness esp in my legs and my body feels like its vibrating. I'm also very fatigued. I was in the ER twice and they told me I have generalized weakness and to take valium 4x's a day (yeah right) I have an appt with a neuro but they can't get me in till Nov 2nd. I had to have my in-laws take my daughter this whole weekend as the weakness is just SO overwhelming. I esp feel it when I'm not walking if that makes sense. Could this be a nerve issue? Like a nerve in my back is causing body weakness like this? I don't have pain in my back but my GP said it can be in my lower back, to me that doesn't make sense . Any suggestions ideas? I'm really freaked out and scared I'm only 28 this can't be normal
Welcome to the club! I've had similar symptoms for the past three years, and it's getting worse as time goes by. Next week I'm headed for the Cleveland Clinic, which is almost a last resort for me. Meanwhile, I've been keeping a daily record of my symptoms to share with the doctors at CC.
Here is a brief excerpt:
I have been suffering the abrupt lessening of my total energy, along with the strong and repetitive buzzing or tingling going on throughout my body - especially in my face and hands - plus the gross dizziness and utter confusion that often sets upon me like a dark shadow. And who can explain the occasional, very chilling effect, like ice cold water baths splashing through me from from head to toe? I shiver and shake from it.
All of these events occur while all other vital responses from my body have remained in a “normal” mode. I refer to the countless blood tests I've been given, urinalyses, copious x-rays, lung and heart readings, spinal taps, plus every other weird test, or “miracle” medicine a particular doctor could think of to conduct or dispense. During the past three years, I can recall some of their insistent, disquieting voices:
1. “You've had 29 "brain seizures" in three days! That's the all-time record!”
Q: “What can you do to help me?” A: “I have no idea!”
2. “These are not seizures you're having, no matter what anyone else tells you!”
Q: “What are they?” A: “I don't know!”
3. “The cause of your symptoms is an utter mystery to me!”
4. “Keep taking Zoloft! Regular doses of Zoloft will fix you right up!” It didn't!
5. “I can do nothing for you! It's simply too bizarre!”
6. “You're fine, fine! All blood tests are normal! So, go home, and be happy!”
7. “You must stop taking gabapentin! I don't care if it is helping to reduce these
strange brain events of yours.”
8. “Have you seen a good psychiatrist?” (???)
9. “Have you seen a good chiropractor!” (???)
10.“I don't have a damned clue what's wrong!” (At least he was being honest!)
11.“I think your problems are caused by the sleeping pills you've been taking!”
But my symptoms began in 2011, long before I ever started taking sleeping pills.
12.“I believe there are times when your brain is not getting enough oxygen!”
“But what can I do about it?” - “It's not my specialty!”
And finally: “I think the nerve endings in your brain are not firing correctly!”
I must admit, there have been unpredictable periods when all associated buzzing in my body, and the other devilish symptoms have stopped, EXCEPT in my lower legs, where I've been told I have unexplained and untreated nerve damage! How this happened and why, no one seems to know, but it's getting much worse (painful) as time goes by.
When the infernal buzzing in my body has occasionally stopped, my energy has increased to a much higher level, as if a dark cloud has finally been suddenly lifted from my mind & body. I had an entire week of such feelings during mid-June of 2014.
6-19-14 – on the eighth day of freedom from these wretched symptoms, – I began suffering through a MAJOR relapse, which started in the morning, continuing throughout the day, and into the night. My energy level went way down to about five percent of normal, almost near death level, I felt. Throughout, I had very dramatic body tingling – especially in my lower face and both hands - strong chills, and great confusion. I have also had a few monstrous headaches, mainly in the front of my skull, some lasting for only a few minutes, while others continued up to half an hour. I've used an ice bag, to little effect, accept to deaden the immediate area. Taking Aleve, as my family doctor prescribed, did absolutely NOTHING to quell such events!
And so it goes! If you wish to have me share information with you after my trip to CC, send me a message. Yabbanopchick