Quote:
Originally Posted by dizzybint
I can speak from people I know who have had two different operations.. one because she didnt like her tummy after her third child and the other lady because she wanted bigger boobs, both had to wait for these ops but they got them and on the NHS. so if I know two who have had this done then how many more...it was mentioned in yesterdays newspaper by Lorraine Kelly, calling it the NHS lottery when a wee boy of two with cerebral palsy Oliver Dockerty who was refused an treatment deemed too expensive due to lack of funding that could have paid for his life changing operation.... common sense and compassion surely have to come into these decisions..
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Selective Dorsal Rhizotomy (the type of operation in question) appears from my limited research to be a highly discussed but underfunded treatment for spasticity in children with cerebral palsy. The treatment involves surgically severing some of the nerve endings in the base of the spine which are responsible for sending 'incorrect' or 'confusing' information along the nervous system. In most cases, this results in the patient being able to walk to some extent, and ameliorates a lot of pain for the child. The issue has been raised in Parliament due to the numbers of parents who raise extraordinary sums of money to have their kids treated abroad. (Around 40 per year.)
BBC - Democracy Live - Adjournment debate
I wasn't able to find a source from any NHS Trust which explained why funding for the treatment is so limited, (the NHS only funds a few of these operations each year). However, I was able to find out that the major cost of the operation is not the operation itself but the follow-up physiotherapy which accompanies the treatment. (The operation itself costs around £35k, but post-operation the patients need around £20k of physiotherapy each year until their skeletal system is fully formed - presumably around age 18.) The total cost of this treatment is likely to run into the hundreds of thousands rather than tens of thousands. Even still, to my mind this still represents value for money if the treatment will considerably improve that childs quality of life. From what the Members of Parliament involved in the debate were saying, the families of children who have had the operation feel that it was worth every penny.
The National Institute for Clinical Excellence (NICE) only approved the treatment in December 2010, and as yet there is only 1 surgeon in the UK (from Bristol) who has actually performed one of these operations. There is apparently another surgeon in Leeds (referred to in the press as being prepared to perform the surgery), but he has not ever actually performed this surgery yet on a live patient; albeit he has traveled to Missouri to learn this surgical technique from Dr Park - the world pioneer in this type of surgery.
I'm hypothesising here, because as I said I couldn't find a source explaining the lack of funding for the condition, but I suspect the large cost of the treatment; combined with the fact that the UK has a dearth of surgeons and physio's with any practical experience of performing the operation and providing follow-up treatment; is the probable explanation for health trusts reluctance to fund treatment. Nonetheless, I fully agree with you that it's unacceptable that families should routinely have to raise money through charity to fund a treatment that has already been approved by NICE.
All of this said, the manner in which this story has been reported angers me, and it should anger you as well Dizzy. We're talking here about a serious medical condition, and a treatment which could prospectively improve a childs quality of life. There are all sorts of questions a journalist should have asked, they should have asked the primary care trust why this treatment was not being funded. (They didn't.) They should have asked what measures the NHS is taking to improve access to this surgery. (They didn't.) They should have gone into detail about the potential side-effects of this surgery, which include incontinence and scoliosis. (They didn't.) They should have addressed the concerns that NICE identified about the potential side effects of treatment if performed improperly, including paralysis and death. (They didn't.)
Instead, they have focused on breast enlargement. I ask you, (as if we don't already know), which publication would produce a 'story' which is so debased as to pollute a sensitive discussion about severe childhood illness with a comparison with
breast enlargement?
TA DA:
Why did NHS pay for this woman's 36DD breasts but refuse to pay for an operation so this boy can walk? | Mail Online
None other than the scum of the earth!
As explained earlier, the NHS only provide cosmetic surgery where there is a medical benefit stemming from that surgery. I am not the doctor of the lady who went for the DD implants, so I don't know what her medical need was. However, if I were to guess, I would suppose that she has psychological problems surrounding her self-image.
What sickens me about this is that the people who are most responsible for fostering this unattainable 'glamour' image, are none other than the Daily Mail and their ilk. Look at the sort of stories these people publish:
In praise of the knife: What cosmetic surgery can do for your self-esteem | Mail Online
Could these new cosmetic surgery treatments tempt you? | Mail Online
A peek in the life of a plastic surgeon | Mail Online
'If there's something you don't like about your body, why not?': Brooke Burke encourages women to get cosmetic surgery | Mail Online
La Fin du trout pout: Why French doctors are the new superstars of cosmetic surgery | Mail Online
Cosmetic surgery: where to go | Mail Online
WHO DO THESE SCUMBAGS THINK THEY ARE?!?
They're the ultimate sadists. They pack their debased rag with images of 'Celebrities' and swoon over how beautiful they are. They then give rave reviews about plastic surgery and how wonderful it is. Then they leer down from their lofty moral pedestal at some mentally disturbed woman from Leeds, who
dares to try and live up to the unattainable vision of beauty which
they set up for her.
Once again the despicable journalists at the Daily Mail have outdone themselves.
Eoin