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Old 06-13-2017, 09:42 PM
 
268 posts, read 226,997 times
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Quote:
Originally Posted by WannaliveinGreenville View Post
Thank you for responding. After reading your other newer post, I wonder, can you get a different doctor? I hope you get the help that is needed and something more modern!
I will stick with the oncologist here in Ocala where I live. I don't believe Moffitt has anything better to offer me. According to both Drs many of the newer drugs are no better than the old ones and cost more. Some have some really nasty side effects. The Drs have the added advantage of using the older drugs because they have so much more experience with them. Some newer drugs are hard to get approved by your Ins. Ovarian/endometrial cancer is one of the most deadly female cancers I've recently learned. They can be put into remission but cannot be cured. Recurrence becomes more and more frequent as the cancer becomes more aggressive. Eventually nothing stops it and death follows.

I get the port put in this Thursday and the chemo will start about a week after that.
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Old 06-13-2017, 09:47 PM
 
268 posts, read 226,997 times
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Quote:
Originally Posted by wizrap View Post
Would UF Health be worth a visit? Just a thought as it is closer to Ocala. Maybe even Mayo Clinic in Jacksonville.

I'm sorry about your experience at Moffi. A client of mine used to drive up from SFLA for treatment at Moffitt. She was a nurse & didn't trust her cancer care to the hospitals down there.

Good luck.
The type of cancer I have is inevitably fatal in time. The Dr at Moffitt recommended basically the same chemo drugs my Onc' recommended here in Ocala. Moffitt offered me nothing new or different or more effective.

If it's not effective in putting me into remission, I may consider one of those you mentioned.
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Old 06-14-2017, 07:53 AM
 
Location: So Ca
26,719 posts, read 26,787,779 times
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Quote:
Originally Posted by KatesKat View Post
I will stick with the oncologist here in Ocala where I live. I get the port put in this Thursday and the chemo will start about a week after that.
Sorry to hear about your experience at Moffitt. Good luck with your chemo. I'm glad that you can stay closer to home during your treatment.
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Old 06-22-2017, 05:25 PM
 
Location: Mount Pleasant, SC
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Have you had genetic testing? I ask this as I was diagnosed 2.5yrs ago with stage 3 ovarian cancer. Had debulking surgery, platinum chemo (no radiation). CA125# stayed low for 12 months but started climbing again. Went on doxil chemo 6 months & then added carbo-platinum to it for the last 6 months. All well until last month & CA125# rising again. So genetic testing to see if PARP inhibitor can be employed. Don't know yet -- appointment next week for results.
That's the "new" drug to seek versus standard chemos.
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Old 06-23-2017, 04:25 PM
 
268 posts, read 226,997 times
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Quote:
Originally Posted by joyeaux View Post
Have you had genetic testing? I ask this as I was diagnosed 2.5yrs ago with stage 3 ovarian cancer. Had debulking surgery, platinum chemo (no radiation). CA125# stayed low for 12 months but started climbing again. Went on doxil chemo 6 months & then added carbo-platinum to it for the last 6 months. All well until last month & CA125# rising again. So genetic testing to see if PARP inhibitor can be employed. Don't know yet -- appointment next week for results.
That's the "new" drug to seek versus standard chemos.
No one ever mentioned genetic testing to me but I plan to ask him when I see him again in a few weeks. I started chemo yesterday. This time it's Taxol and Carboplatin. I don't remember what was used 7 yrs ago after the surgery. The radiation didn't do much for the pain the hip area this time. When the cancer came back my CA 125 was normal. Yes, normal. It never rose.
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