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Old 03-03-2016, 09:49 PM
 
Location: NYC
16,062 posts, read 26,780,406 times
Reputation: 24849

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My dad has been ill with Lewy Body Disease for over a decade. It's an awful disease, a combination of Parkinsons and Alzheimer's. He has been in a nursing home for six years. No quality of life. He can't move, speak or do anything for himself.

He was just moved to hospice again. (He has been given his last rites three times in six years). He is starting to have a hard time breathing and eating. It is breaking my heart that he is going through this pain. An awful way to die. I wish there was something I could do for him.
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Old 03-03-2016, 09:55 PM
 
Location: southern born and southern bred
12,477 posts, read 17,816,396 times
Reputation: 19597
so very sorry! Will keep you and your dad in my thoughts and in my prayers
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Old 03-03-2016, 10:06 PM
 
Location: Los Angeles>Little Rock>Houston>Little Rock
6,489 posts, read 8,831,285 times
Reputation: 17520
Oh, I am so sorry. Sending good thoughts and prayers.
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Old 03-03-2016, 10:26 PM
 
3,656 posts, read 3,794,670 times
Reputation: 5567
I am so sorry for you and your dad.


Be with him, is all I can suggest. Hard as it is, you will never regret it.
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Old 03-03-2016, 10:35 PM
 
Location: Southwest Washington State
30,585 posts, read 25,231,082 times
Reputation: 50807
I agree with branDcalf. The thing you can do is be with him now. All you have is now. I am so terribly sorry for you and your dad.
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Old 03-03-2016, 11:24 PM
 
2,449 posts, read 2,609,366 times
Reputation: 5702
So sorry for you. I went through the same thing with my dad.

Try and be there for him. Bring old photo albums and load old songs on a music player. My dad loved his iPod. He also loved animal videos on You Tube.

I know it's hard. It's a terrible disease.
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Old 03-04-2016, 02:33 PM
 
Location: NYC
16,062 posts, read 26,780,406 times
Reputation: 24849
Thanks all. I am headed to visit him next week. It's such a hideous disease that has been eating away at him for a decade. It's a terrible way to suffer. I wish I could ease his pain.
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Old 03-04-2016, 02:54 PM
 
Location: Leaving fabulous Las Vegas, Nevada
4,053 posts, read 8,267,188 times
Reputation: 8040
Sending hugs your way.
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Old 03-04-2016, 03:23 PM
 
Location: Tennessee
16,224 posts, read 25,696,398 times
Reputation: 24104
It really is an awful disease. That's a long time to have to suffer. Hoping his days are numbered for his sake!

I agree. Play his fav music. Talk to him.

Thoughts and prayers!
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Old 03-04-2016, 03:28 PM
 
Location: Redwood City, CA
15,253 posts, read 13,007,670 times
Reputation: 54052
Read a book aloud, so he can transport himself somewhere else for a while.
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