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Old 11-02-2011, 06:56 AM
 
Location: Mostly in my head
19,855 posts, read 65,818,191 times
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My first endocrinologist was an idiot! Even when looking at the whole panel of tests, he misinterpreted them. My second one is a thyroid specialist so look in the phone book for one who describes themselves that way.

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Last edited by SouthernBelleInUtah; 11-04-2011 at 08:12 PM..
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Old 11-04-2011, 07:08 PM
 
1 posts, read 1,202 times
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I have hypothyroidism. I take Synthroid. I started at 25mg and I am now taking 75mg. The dr says my levels are normal now, but I'm still having the same symtoms. I'm still gaining weight, I'm so tired all the time, and the depression does'nt seem to be getting much better either. Maybe I'm a hypocondriac. Are they in the same family? lol
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Old 11-05-2011, 05:24 PM
 
12,669 posts, read 20,444,022 times
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Quote:
Originally Posted by wendyfife View Post
I have hypothyroidism. I take Synthroid. I started at 25mg and I am now taking 75mg. The dr says my levels are normal now, but I'm still having the same symtoms. I'm still gaining weight, I'm so tired all the time, and the depression does'nt seem to be getting much better either. Maybe I'm a hypocondriac. Are they in the same family? lol
Which end of the normal range are you? Because your body needs more thyroid medication and did they check you for B12 deficiency and do you convert to to T3?
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Old 09-15-2015, 09:16 AM
 
Location: 48.0710° N, 118.1989° W
590 posts, read 714,400 times
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Hey all, I wanted to bring this thread back to life as my wife has hypothyroidism. She's 27 years old and we have 3 children. Its EXTREMELY difficult for her to function the first few hours of every morning. She is absolutely exhausted even after a good nights sleep. She is always ALWAYS cold, unless its 90f outside. Its also very difficult for her to stay focused on something, luckily she's a stay at home mom. She tells me she really never thinks about anything unless its thrown in front of her- mental sluggishness. Its only getting worse. She forgets to drink water and forgets to eat right. She says she doesn't have the energy to prepare healthy meals for herself and does whatever is easiest because of her fatigue. Two years ago she did a fitness program called Body for Life, basically eat 5-6 proportioned meals a day that consist of a balance of clean protein and clean carbs and cardio every other day and weights every other day. She stuck to the program as did I and she barely saw any results while I got into great shape in 8 weeks....she can't loose weight. She is on 25mg of levothyroxine right now. Hopefully her endocrinologist puts her on a higher dosage. I am replying to this thread in hopes of receiving feedback from women in the same category as my wife who have success stories, what worked for you, what didn't etc. How long after being put on correct dosage of meds did it take to notice difference. Thank you.
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Old 09-15-2015, 10:34 AM
 
Location: prescott az
6,957 posts, read 12,058,216 times
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I noticed a difference in about 6 weeks. Then the dosage had to be reconfigured, cause it wasn't enough.
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Old 09-15-2015, 05:03 PM
 
Location: South Carolina
245 posts, read 956,060 times
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Quote:
Originally Posted by crf450ish View Post
Hey all, I wanted to bring this thread back to life as my wife has hypothyroidism. She's 27 years old and we have 3 children. Its EXTREMELY difficult for her to function the first few hours of every morning. She is absolutely exhausted even after a good nights sleep. She is always ALWAYS cold, unless its 90f outside. Its also very difficult for her to stay focused on something, luckily she's a stay at home mom. She tells me she really never thinks about anything unless its thrown in front of her- mental sluggishness. Its only getting worse. She forgets to drink water and forgets to eat right. She says she doesn't have the energy to prepare healthy meals for herself and does whatever is easiest because of her fatigue. Two years ago she did a fitness program called Body for Life, basically eat 5-6 proportioned meals a day that consist of a balance of clean protein and clean carbs and cardio every other day and weights every other day. She stuck to the program as did I and she barely saw any results while I got into great shape in 8 weeks....she can't loose weight. She is on 25mg of levothyroxine right now. Hopefully her endocrinologist puts her on a higher dosage. I am replying to this thread in hopes of receiving feedback from women in the same category as my wife who have success stories, what worked for you, what didn't etc. How long after being put on correct dosage of meds did it take to notice difference. Thank you.
Wow....I don't even know where to begin. First off your poor wife, I can definitely sympathize with her, been there and done that, have the t-shirt and sometimes occasionally relapse. All her symptoms scream hypothyroidism. She is obviously on too low a dose of medication and honestly I'd find a doctor that would prescribe something other than generic synthroid, she's only getting a small dose of T4. There are some people that swear they do well on it but I personally take natural dessicated thyroid (NDT for future description), the brand is West Thyroid made by RLC labs, my doctor has also added in a small dose of Cytomel which is T3 only. I have taken synthroid once first diagnosed, then I switched to Armour (NDT), Armour did a reformulation in 2009 and it didn't work well anymore for me, then switched to Naturethroid (made by RLC labs) and then I asked to be switched to West Thyroid because it's gluten free and has way less fillers. So first off she needs to find another doctor that will do all the appropriate labs. I have found endocrinologists to be the worst. I fired mine a long time ago. I also had another doctor lower my dose of NDT because he was worried about my bones (which were giving me no problems btw). He lowered me to a point where I literally couldn't get out of bed, I was so depressed I didn't care whether I opened my eyes in the morning, the weight started piling on. Thankfully I found another doctor that treated my symptoms and didn't view my labs like they were taken from the bible.

Okay, so to point you in a direction so you and your wife (if she can summon up the energy, honestly you may need to be her advocate until she gets properly medicated), but you both can learn more and find a doctor that will run the appropriate tests (Thyroid Antibodies, Free T3, Free T4, Reverse T3 and TSH, although the latter isn't terribly important). She should also have a full iron panel done, check her B12 and Vitamin D levels. The last two have made a difference in my life along with the proper dosage of thyroid meds. Here are some wonderful sites, I'd even recommend buying the book from this first site listed, there's also a Facebook support group that's wonderful.

The most informative book on hypothyroid you will ever read - Stop The Thyroid Madness

Community and Support: Thyroid Disease, Weight Loss and Related Issues, Moderated by Patient Advocate and Best-Selling Author Mary Shomon
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Old 09-16-2015, 06:04 PM
 
1,899 posts, read 3,957,395 times
Reputation: 2724
Quote:
Originally Posted by crf450ish View Post
Hey all, I wanted to bring this thread back to life as my wife has hypothyroidism. She's 27 years old and we have 3 children. Its EXTREMELY difficult for her to function the first few hours of every morning. She is absolutely exhausted even after a good nights sleep. She is always ALWAYS cold, unless its 90f outside. Its also very difficult for her to stay focused on something, luckily she's a stay at home mom. She tells me she really never thinks about anything unless its thrown in front of her- mental sluggishness. Its only getting worse. She forgets to drink water and forgets to eat right. She says she doesn't have the energy to prepare healthy meals for herself and does whatever is easiest because of her fatigue. Two years ago she did a fitness program called Body for Life, basically eat 5-6 proportioned meals a day that consist of a balance of clean protein and clean carbs and cardio every other day and weights every other day. She stuck to the program as did I and she barely saw any results while I got into great shape in 8 weeks....she can't loose weight. She is on 25mg of levothyroxine right now. Hopefully her endocrinologist puts her on a higher dosage. I am replying to this thread in hopes of receiving feedback from women in the same category as my wife who have success stories, what worked for you, what didn't etc. How long after being put on correct dosage of meds did it take to notice difference. Thank you.
If she just started receiving treatment, the doctor will gradually increase her dose a little at a time over several months. It doesn't happen over night. When her TSH gets in the normal range, she should feel a lot better, but she may still have some symptoms. As the previous poster said, find a good doctor who will ask about her symptoms instead of focusing solely on TSH numbers.
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Old 09-17-2015, 09:49 AM
 
Location: South Carolina
245 posts, read 956,060 times
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Quote:
Originally Posted by Geneyus View Post
If she just started receiving treatment, the doctor will gradually increase her dose a little at a time over several months. It doesn't happen over night. When her TSH gets in the normal range, she should feel a lot better, but she may still have some symptoms. As the previous poster said, find a good doctor who will ask about her symptoms instead of focusing solely on TSH numbers.
It sounds like she may have been on meds for awhile? He mentioned 2 years ago she did an exercise/weight loss program with him and while he made great strides, she did not. If she just began on the medications then there would be a gradual increase by her endocrinologist, but if she's been on that low dose for two years than that is surely one of her problems. I have found that endo's proceed way too slowly, rely solely on labs (mainly the TSH) and not on their patient's symptoms and seem to prefer to prescribe synthroid over NDT.
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Old 09-18-2015, 10:48 PM
 
Location: Gulf Coast
1,458 posts, read 1,169,560 times
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I have hypothyroid. Make sure you have been tested for all the T's the T3, etc. and the Free T's and the antibodies that tell you if you have autoimune (hashimotos). Also make sure they feel your throat for lumps on the gland... it's all very complicated to figure out and not all drs. do this well. Most don't like Armour... as they consider it really a supplement instead of a medicine. B12 deficiency is common as well.

I was so tired I thought I was on the way out. Truly. There was no "If" I was sick, I knew there was something terribly wrong.

About 3 years later...I've had medicines adjusted up (seems once your body is getting thyroid hormone from something it produces less of its own). And now instead of understand all these complicated numbers I just go by how I feel. I've been told to take it 1/2 to 1 hour before eating anything in the morning. I hope everybody who is struggling with this is getting good care. My girlfriend and I were just talking about why so many people seem to have this same problem. It seems to be an epidemic.
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Old 09-19-2015, 12:38 PM
 
Location: South Carolina
245 posts, read 956,060 times
Reputation: 257
I do want to comment to CRF450ish that this isn't an overnight type fix, her dose gets increased and she's miraculously improved. I have been on this thyroid journey for about 18 years. There should be continual lab work that is done by the doctor. At a minimum every 6 months if she's feeling well, if she's not feeling well then dose adjustment and checking labs every 3 months. Also, a good doctor won't just go by lab work, they will take into account how their patient is feeling, what are their symptoms? The lab work is a guide. The patient is the one who knows their own body the best and we know when something is off. The key is finding a doctor that understands and respects that of their patient.
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