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I need some input. I have noticed that everytime summer comes along my fibro seems to flare up. I have also noticed that the more humid it is the more my legs hurt. I am getting unvoluntary muscle spasms again. Guess what I hadn't gotten any since last summer. Has anyone experienced this or have you seen your Fibro flare durring any kind of weather changes or seasons???? Just wondering if this is only happening to me or are there others.
I need some input. I have noticed that everytime summer comes along my fibro seems to flare up. I have also noticed that the more humid it is the more my legs hurt. I am getting unvoluntary muscle spasms again. Guess what I hadn't gotten any since last summer. Has anyone experienced this or have you seen your Fibro flare durring any kind of weather changes or seasons???? Just wondering if this is only happening to me or are there others.
Thats a good question, never thought about FM being affected by the weather. I have been having such a time with my Rheumatoid Arthritis that my FM is like background noise if you will...
I have been having a time w everything... LOL I think thats why I haven't noticed my FM as much, I will have to keep a closer eye and get back to you
My sister has M.S. which is greatly affected by the heat. I'm not saying you have M.S. however, it can be difficult to diagnose and muscle spasm is a side effect for her. I'm so sorry your in pain, I wish you well!
My sister has M.S. which is greatly affected by the heat. I'm not saying you have M.S. however, it can be difficult to diagnose and muscle spasm is a side effect for her. I'm so sorry your in pain, I wish you well!
The doctors at first believed I had MS because of my labs; aldonase, lipids & sed reate all VERY elevated. The theory was MS or lupus. Turns out Im borderline for BOTH. However, when I had my spinal tap it came back negative for MS. They will repeat it soon (that was three years ago) because my labs all indicate MS.
I am sorry to hear about your sister MS is very debilitating.
The doctors at first believed I had MS because of my labs; aldonase, lipids & sed reate all VERY elevated. The theory was MS or lupus. Turns out Im borderline for BOTH. However, when I had my spinal tap it came back negative for MS. They will repeat it soon (that was three years ago) because my labs all indicate MS.
I am sorry to hear about your sister MS is very debilitating.
Very ele Sed could mean RA... have you had a Total Body Bone Scan ?
Very ele Sed could mean RA... have you had a Total Body Bone Scan ?
No, I haven't. I've been debating or putting off going because I have so many appiontments as it is that I dread having to go to another doctor.
But it was difficult even to get out of bed this morning. But I will look into it. Thanks for the advice cinder.
No, I haven't. I've been debating or putting off going because I have so many appiontments as it is that I dread having to go to another doctor.
But it was difficult even to get out of bed this morning. But I will look into it. Thanks for the advice cinder.
Who do you see for your FM? I see a Rheumatologist for my RA and FM, and I actually used to work for her, and the group. I knew I had pain all the time, and I was always thinking, man, I think I have Fibro... and they were like, naw, you're crazy. LOL
Well, this of course, is true, but doesn't apply. LOL
I have since stopped working there about 3 years ago and immediatly sch an appt w her. She thought I had some general aches and pains, maybe some problems with repetitative use of the hands on the keyboard, etc.
She did a trigger point test and I had them all... eeeek. I have seronegative RA. Sometimes my levels are up, if I am in a really bad flare, but the only way she could dx it was by a TBBS. When I had it, it litl up like a Christmas Tree.
When you have RA, your body will have equal damage on each side of the body, and it did. So, we knew what was the matter. All that time I was working there and feeling so bad, and I knew something was the matter, finally a dx.
Who do you see for your FM? I see a Rheumatologist for my RA and FM, and I actually used to work for her, and the group. I knew I had pain all the time, and I was always thinking, man, I think I have Fibro... and they were like, naw, you're crazy. LOL
Well, this of course, is true, but doesn't apply. LOL
I have since stopped working there about 3 years ago and immediatly sch an appt w her. She thought I had some general aches and pains, maybe some problems with repetitative use of the hands on the keyboard, etc.
She did a trigger point test and I had them all... eeeek. I have seronegative RA. Sometimes my levels are up, if I am in a really bad flare, but the only way she could dx it was by a TBBS. When I had it, it litl up like a Christmas Tree.
When you have RA, your body will have equal damage on each side of the body, and it did. So, we knew what was the matter. All that time I was working there and feeling so bad, and I knew something was the matter, finally a dx.
Total Body Bone Scan. This is a diagnostic test used to find out if a patient has RA. Also, drs use this test to find out if a cancer has sread to different areas of the body or metastasized.
With out this test, they would not have known I had RA. I have what they call Seronegative Rheumatoid Arthritis.
I dont have ele sed rate or ana, etc. Only when I am in a super flare does my sed rate or creatinine levels go up.
I had regular plain films, mri of hands, labs, everything. I still had all of the symptoms of the disease but nothing to confirm it. Hence the TBBS. I lit up like a Christmas Tree on that thing.
Since I used to work for rheum for over three years as I was laying on the table I could see all of the little dots coming together in all of the areas that were affected over my body and I knew I had it before the dr even has the report. When you have RA you are affected almost equally bilaterally.
Total Body Bone Scan. This is a diagnostic test used to find out if a patient has RA. Also, drs use this test to find out if a cancer has sread to different areas of the body or metastasized.
With out this test, they would not have known I had RA. I have what they call Seronegative Rheumatoid Arthritis.
I dont have ele sed rate or ana, etc. Only when I am in a super flare does my sed rate or creatinine levels go up.
I had regular plain films, mri of hands, labs, everything. I still had all of the symptoms of the disease but nothing to confirm it. Hence the TBBS. I lit up like a Christmas Tree on that thing.
Since I used to work for rheum for over three years as I was laying on the table I could see all of the little dots coming together in all of the areas that were affected over my body and I knew I had it before the dr even has the report. When you have RA you are affected almost equally bilaterally.
My name is Robyn...
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