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The parents are to set up a charitable foundation in order to encourage even greater research in to this condition and similar ones.
This will be Charlies lasting legacy, and to be honest it' a legacy few people achieve who live their whole lives rather than just having a short life like Charlie.
His parents are lovely people and clearly loved and cared for Charlie so very very much.
That used to be true for most heart disease, for pneumonia, for cystic fibrosis, for leprosy, for (fill in the blank).
I think one big difference in approach is that in the US, even if something PROBABLY won't work for someone - even if a treatment is experimental - even if a treatment almost certainly will not cure a person, but using it may help others in the future - if the patient or the patient's parents are willing to try it and insurance will cover it or they can pay for it or the doctors/hospital will donate their services, the treatment will be tried -often because it may help others in the future if it's tried now. I don't believe that's generally the case in the UK.
For instance, here are some universities and their rankings when it comes to research and development of various medical specialties:
I could go on but you get the picture. I hate to be so blunt, but one can either say "The US leads the world in medical research" but one could also say "The US leads the world in experimental medical practice."
For Charlie there was no treatment that was anywhere near being ready for use in a human. There is a hazard to pushing the envelope with an experimental treatment. If it is tried too soon and fails, it sets back future research. There must be some expectation of clinical benefit first. Nothing for Charlie's condition has made it past animal trials.
For Charlie there was no treatment that was anywhere near being ready for use in a human. There is a hazard to pushing the envelope with an experimental treatment. If it is tried too soon and fails, it sets back future research. There must be some expectation of clinical benefit first. Nothing for Charlie's condition has made it past animal trials.
The parents were faced with two terrible choices - absolutely certain death or nearly absolutely certain death - they were faced with a dilemma we can only be thankful for probably never facing.
Scientists learn from mistakes as well as successes.
The parents were faced with two terrible choices - absolutely certain death or nearly absolutely certain death - they were faced with a dilemma we can only be thankful for probably never facing.
Scientists learn from mistakes as well as successes.
No, they never had two choices. There was not a choice because there was no treatment alternative with any hope of preventing Charlie from dying.
With medicine, even experimental treatments must have some evidence that they may be helpful. There was no such alternative for Charlie.
No, they never had two choices. There was not a choice because there was no treatment alternative with any hope of preventing Charlie from dying.
With medicine, even experimental treatments must have some evidence that they may be helpful. There was no such alternative for Charlie.
I hope that you and I never have to cling to a sliver of hope when it comes to our child's life. That's what the parents were doing - that's what was offered to them. Of course they would rather believe the professionals who were giving them hope than the professionals who weren't.
That's my point. You can make another point all day long, but that's my point.
I hope that you and I never have to cling to a sliver of hope when it comes to our child's life. That's what the parents were doing - that's what was offered to them. Of course they would rather believe the professionals who were giving them hope than the professionals who weren't.
That's my point. You can make another point all day long, but that's my point.
No professionals ever gave them hope. That is my point.
I have had a critically ill child. I know what professionals tell you in a situation like that.
This isn't the time to debate what should - or should not - have been done for poor Charlie.
Now is only the time for compassion for Charlie's parents, as they mourn their tremendous loss.
We should all let the rest go and wish them peace. I know I do.
Let it be.
The problem with this is whilst I have great sympathy for the parents of Charlie Gard I have even greater sympathy for the staff of GOSH whose reputations were trashed by a despicable media campaign promoted by the parents.
Anyhow,for the real facts behind the whole case this is about the best summation I've read.
[quote=KathrynAragon;49008939]I hope that you and I never have to cling to a sliver of hope when it comes to our child's life. That's what the parents were doing - that's what was offered to them. Of course they would rather believe the professionals who were giving them hope than the professionals who weren't.
That's my point. You can make another point all day long, but that's my point.[/QUOTE I really wondered about bringing over this specialist doctor to give his opinion on the babys chances and have thought..... Now what if he takes on this case giving hope that their might be some help available and administering this drug, then the baby still dies... his own reputation would then be in tatters....he would look foolish and who would trust his methods.....I could be very wrong here but it did occur to me... its just a thought... another thing is ... doctors stick together and never bad mouth each other....well not in public. Its a difficult situation though for parents and one I hope I never see myself... but if it was in my corner to decide on treatments, I think Id be grasping at straws to save my child.. I feel that even if a new medicine hasnt been passed by regulations, I wouldnt care.... it sounds silly I know but if theres some option out there, no matter how untested on humans, Id want it used...I know this seems irrational of me but Ive thought about this often when Ive heard on TV news that theyve found a cure for some cancer but its only been tested on rats or other animals and I think ...NOW why be so cruel to allow that to the media about a certain cancer when many are lying dying with at that moment..how do those families feel or the patient for that matter knowing that in a few years this miracle cure will be on the market.. Just before a close friends father died of prostate cancer it was on the news about a new laser treatment can eradicate the cancer altogether, how much my friend have felt listening to this while her dad had days to live... If these great minds are finding cures every other day maybe they should keep it to themselves until its actually being used in hospitals over the world... this type of thing I think its cruel to advertise these sort of things if they cant be used at that time. Wonderful yes if its possible to use this in the future but sad too for ones who never got to have it..
New laser-activated drug: shining a light on focal therapy
A new type of treatment for early-stage prostate cancer, using lasers to target tumours without damaging surrounding tissue, could offer a choice for men to avoid surgery or radiotherapy. But further research is needed to determine which cancers it's most suited to and the long-term side effects. https://prostatecanceruk.org/about-u...-focal-therapy
sorry for rattling on....but isnt it also true that this top doc who was brought over never actually saw Charlie and had a financial interest in this drug....
Last edited by dizzybint; 07-30-2017 at 01:42 AM..
The problem with this is whilst I have great sympathy for the parents of Charlie Gard I have even greater sympathy for the staff of GOSH whose reputations were trashed by a despicable media campaign promoted by the parents.
Anyhow,for the real facts behind the whole case this is about the best summation I've read.
This link clearly explains the whole situation. Somehow, this child was used by people for their own agendas, from Presidents to Popes. It was all quite shameful.
Charlie's pain is over now, but we need to reflect on just what happened here, and why.
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