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Thinking of Miranda and sending prayers!
Today was not very good news...the ALS doctor came by and believes the ALS is moving very rapidly now and my DH is very non-responsive. When he is awake he is beyond anxious as I have already described. I had several people here from Hospice today...and still I feel so alone. I keep trying to stay busy but it is hard. I just hurt.
Sorry to read that Cyn. I so wish you had gotten better news. Don't forget we are here, we have your back, and will be there for you, always.
Big hugs.
Talking about news... Miranda's scan was perfect! We are so relieved! Thanks for the good thoughts everyone.
cyn.....holding you in my heart....it is so hard! The long road of als is agonizing.....almost more than you can bear....and now that you are heading down hill to the finish....that feels worse.
Hooray for Miranda! Our little trooper!
Yes elston, it is a very long and very hard road.....very hard. I thought I knew hard but I hadn't a clue! I am sure I have learned some very important lessons from this and also learned how to be gracious and thankful but I have also learned how to hurt. A hurt like never before. I was my grandmothers caregiver, my mothers caregiver and my fathers caregiver and this has been by far the most difficult and hurtful. A very cruel ugly disease indeed. It leaves everyone involved struggling......Now we are just watching my DH--and watching....not sure what to expect but it isn't going to get better sadly.
Cyn, to watch your husband, your comrade, your lover, your protector, your everything, to witness him struggling, must be very painful. A feeling of wanting to protect him but feeling so helpless because you have no control over this dreadful disease. I witnessed my husband go downhill and I experienced the pain in my heart, feeling a helplessness that is indescribable, that no one can understand unless you have been there. The bond between a two people who are in love is so strong and intimate. Reading your words brings back the memories beholden to my heart.
Cyn, so sorry to hear about your husband. My parents both died of cancer quite young so I know how horrible it is to watch someone you love slowly deteriorate. Sending more hugs.
Good morning Cyn, as you are going through this very difficult time, I just wanted to let you know that I am thinking of you and sending some positive energy to you. I dont know what else to say/do than pray.
hey Cyn so sorry to hear about your husband... just keep hope... i know you might not believe it right now but time will heal all your pains
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