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Good morning cyn. I'm wishing you a good day today.
So many wonderful posts here. Yes....you will find a new normal for you and your DH.
I read this book last year and thought it gave some good insights to people with illnesses and also the people caring for them. There is no perfect answer for each individual. Everyone deals with things in their own way.
This book makes you think about how to react to people with illnesses. It is not a how to. It has real examples of people. Each person wants something different. Basically it teaches you to be think before we speak.
Same to you elston and everyone else who stops by!
That is a beautfiul picture EM!
YL, always sharing great ideas! Thank you!
Here's hoping today will bring many smiles to you all!
Thanks cyn......I'm a four legged person too. well. hehe.......not that I have 4 legs but I love creatures with 4 legs. LOL English was not one of my best subjects. (can you tell)
the only living thing I can't deal with are in the reptile family but I love turtles.
and thanks for the book lisa.
BTW.........I stayed up last night and got into the news channels. Piers Morgan had Valarie Harper on his show. I stayed up till 1. Oh my, she is amazing.
Anyway....hope your hubby has a good day today cyn........that the meds work properly, and there are no side effects.
The hard thing about being a caregiver for someone with ALS is the speed of the disease.
By the time you get a " routine" down pat and get in a comfort zone it progresses a little more and more adjustments have to be made.
I do not like constantly dealing with " change", but it is a fact I have to accept.
My daughter read a diary about a woman with ALS and myself and my wife see ourselves in everything she wrote.
Our position now is at the end of the diary.
You have my support Cyn.
I still can't believe that only 2 years ago my wife got diagnosed with a slight speech defect and now is totally paralysed .
The hard thing about being a caregiver for someone with ALS is the speed of the disease.
By the time you get a " routine" down pat and get in a comfort zone it progresses a little more and more adjustments have to be made.
I do not like constantly dealing with " change", but it is a fact I have to accept.
My daughter read a diary about a woman with ALS and myself and my wife see ourselves in everything she wrote.
Our position now is at the end of the diary.
You have my support Cyn.
I still can't believe that only 2 years ago my wife got diagnosed with a slight speech defect and now is totally paralysed .
That is hard to believe. I suppose it is testament to live your life as if each day is your last.
Sending caring thoughts to both you and cyn and any others who are dealing with devastating illnesses.
Also sending smiles.......hoping that today is a good day.
HORRAY for our little Miranda!! What a strong little girl and her mommy has given her that strength. Bless you both and many more great check-ups in the future.
My dear Red Wolf--I do agree. Bless your heart for the insight and understanding. It's not that I am any way happy you and your wife are dealing wth this horrible disease but knowing we are not alone helps for some reason..thank you! My DH can still walk--it's been a year now from the first symptoms of neck weakness and speech problems--but other parts of his body are starting to give him problems--his hands, arms, neck and throat etc.....what a cruel disease this is. His body aches and cramps--I hate ALS.
Good to see you Kimba--thanks for those much needed smiles!
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