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since July 3rd I've been on one or another kind of antibiotic, some oral, some IV during two weeks in the hospital and now 5 weeks at home with central line. In the hospital they said I had cellulitis. I saw orth people, infection disease people. endo people, cardiologist people and 3 times I asked for podiatrist and was told "OH we've got you covered with all these departments". Finally went to podiatrist myself and he came up with the diagnosis. Seems like charcot can look like cellulitis and since there was no break in my skin somebody should have figured it out. But podiatrists are kind of the ugly step sister in the medical world and many think all they do is trim toenails. I'm furious I didn't insist on seeing him while in the hospital.
Just hope I can save this foot. very scared.
I know someone on another forum who is recovering from Charcot foot. She had to wear a specially made boot that holds her foot at the right angle for 10 months, but she's recovering now. She mentioned in a post that there's a facebook group for Charcot foot. https://www.facebook.com/groups/Charcot/ I don't know if that would be helpful to you at this stage or if it would stress you out more, but it's there if you think it would help.
Hanks hedgeho mom. I just spent l hour at that site. scary stuff.
the surgery went fine but the ankle block while still awake was torture. i won't have results till tuesday when i see him again. I sure do like whatever they used to put me in "twilight" best sleep i've had in months.
It's Charcot. Basically a broken big toe a few years ago put pressure on down the line and caused more fractures and my bones are disintegrating. I'm on order for a bone stimulator which may or may not work and must wear a huge clunky boot for at least a year. I have 2 thirteen year old daughter, and to me this looks like prison and misery. At least , for now, he thinks he can save my foot which is something to be grateful for but dang...this is depressing.
Hope things are going better for you now. Try to stay off your foot as much as possible and use whatever tools available to do so. My husband had foot surgery and got a knee scooter that allowed him to be mobile and stay off his foot.
Here's an example. Drive Medical DV8 Aluminum Steerable Knee Walker Crutch Alternative
Thank you. The CROW Boot is a pita but doing the job. The unevenness between my two feet is causing some hip and back pain. Doc said he could fit my other shoe with a removable lift but i only wear house slippers in the house and regular sports shoes are not too much difference in height.
The shower is scary as I have balance issues and ankle is weak.
The girls are doing better with helping. Mensa engineer husband becomes a drooling imbecile in the kitchen but in all other ways he is terrific.
We'll get by.'
Xrays show some improvement. Hope to get a bone simulator in a few weeks when Medicare will foot the bill. Pardon the pun!
Went for monthly x ray and doctor visit and doc said I was doing so well I am now ready to order custom shoe! I almost fell off the chair as I had been told I had to wear CROW boot for a year. A pleasant surprise as most Charcot patients do wear CROW boot for at least a year. I'll wait till after Christmas to actually have the shoes as it takes 4-5 weeks to special order. I sure won't miss my Frankenstein boot!
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