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I have not heard of Gamma Globulin, I will have to do some research. I know of quite a few people on the forums that have MS, but choose not to disclose that, which is fine with me.
I have been a picture of health up until my diagnosis. I have only had one antibiotic, never had strep, never had an ear infection, never had pink eye, and have fought off most illnesses quicker than the "normal" amount of time. I have not had the flu, past the age of 7. My wife tells me that my immune system is bored, so it chooses to attack my nerves lol.
My DH never was sick as a child; he'd never had the flu, colds, measles or other such illnesses and had perfect attendance through school til his Senior year when he went on a Senior "Skip" day and blew the chance of earning the Perfect Attendance award.
Many people with MS have the same excellent health histories; in my mind I've always thought that their immune systems are too strong and that is why they attack the central nervous system the way they do: their immune system may be fighting an infection and then just continues on and starts attacking the CNS. I don't think that science and research has discovered what is really going on; but that is *my* interpretation of it.
Hello everyone. Have you seen this recent article about a new chemo drug with possibilities for MS? here is the link
Leukaemia drug can halt, reverse MS - Yahoo! News (http://news.yahoo.com/s/afp/20081023/ts_afp/britainscienceresearch;_ylt=AihmZOic0axBe8_PltONnd us0NUE - broken link)
I don't know what to think as my mom had chronic lymphatic leukemia......
Hello everyone. Have you seen this recent article about a new chemo drug with possibilities for MS? here is the link
Leukaemia drug can halt, reverse MS - Yahoo! News (http://news.yahoo.com/s/afp/20081023/ts_afp/britainscienceresearch;_ylt=AihmZOic0axBe8_PltONnd us0NUE - broken link)
I don't know what to think as my mom had chronic lymphatic leukemia......
Hey Crazy! I heard about this a few years ago when I was talking to my aunt who is an ER doc and has Lupus. They have been treating Lupus with Chemo for a while and she said she had a friend with MS going through chemo...interesting stuff.
from what it looks, it might be a last line medication like Tysabri. the side effects are pretty bad on this one, but omg they are getting closer to being able to stop, or keep in complete check this nasty disease.
from what it looks, it might be a last line medication like Tysabri. the side effects are pretty bad on this one, but omg they are getting closer to being able to stop, or keep in complete check this nasty disease.
Thanks.
I just read the article and went hunting through my files to see if it was the same drug as natalizumab (Tysabri) which has had some fairly hideous outcomes for a few people (3 in the initial trial) but my understanding of that is of the people on the trial that got PML (progressive multifocal lukoencephalopathy) they were also taking inteferon. As I understand it this has been adjusted now so you take either but not both.
So it is the same drug, yes? Just with a different name?
I do have MS, I have a young daughter and a wife, I would not put the hands of my health in unstudied alternative medicines. MS is a progressive disease and I need to hold it at bay as long as I humanly can, therefore I am using Copaxone.
How do you find it Noahma? Have you tried any of the other injectables?
My understanding is that the outcomes on copaxone are slightly better than on the interferons and the side effects less. Of course I'm sure it's different for everybody though.
As someone very new to this whole MS thing, does anyone have ANY suggestions for the fatigue? I can relate to all the other symptoms and have been dealing with them (some days better than others) but the fatigue is a killer. I am working and everyday I have to force myself up and to get moving but it is difficult and I pay dearly on my days off. Yesterday I think I was awake all of 8 hours (and these hours were not consecutive). At what point does one stop working? As anyone with this knows how you feel changes daily and if you are working, you don't have the luxury of taking care of yourself when you need to. I *wish* I could stay home when it is really bad but employers tend to lose patience and sympathy for you if you are constantly calling in sick (not to mention loss in pay). So I guess I have two questions:
How do YOU deal with the fatigue?
When did you decide that you couldn't work anymore?
Thanks!
Jill
No idea if this will help you but prior to the current group of MS drugs becoming available some doctors would treat some MS patients with Vitamin B injections (neocytamen) and some people with MS still have them regularly now as well as the usual injectable medication to combat fatigue and it works fairly well.
Also there are some people that say they have less fatigue issues with Copaxone than using the interferons, not that I'm trying to endorse one medication over the other because everyone reacts differently to medication but in terms of fatigue it might be worth looking into?
I just read the article and went hunting through my files to see if it was the same drug as natalizumab (Tysabri) which has had some fairly hideous outcomes for a few people (3 in the initial trial) but my understanding of that is of the people on the trial that got PML (progressive multifocal lukoencephalopathy) they were also taking inteferon. As I understand it this has been adjusted now so you take either but not both.
So it is the same drug, yes? Just with a different name?
it is called alemtuzumab, the side effects I have seen so far by doing research online is a clotting problem with the blood, and anemia as well as a few others.
How do you find it Noahma? Have you tried any of the other injectables?
My understanding is that the outcomes on copaxone are slightly better than on the interferons and the side effects less. Of course I'm sure it's different for everybody though.
I LOVE Copaxone, I have not tried any of the other DMD's, and am 8 months into my Copaxone shots. I wont find out until February when I have my MRI if it is working for me or not (God I hope so, I don't like the side effects of the other DMD's, I still work full time, and have my 2 year old daughter) and the idea of being down for a couple of days with flu like symptoms is not fond with me.
I have very little side effects with my copaxone, just some burning that has lessened over the past few months. And the initial stick from the needle, which by the way is much better now that they have rolled out a thinner needle.
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Wasn't trying ignore you guys I just haven't come up with a viable theory on the fellas yet! 
