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Old 05-13-2013, 08:09 PM
 
900 posts, read 2,372,059 times
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Quote:
Originally Posted by TiredOfSFL View Post
And I will add that the link between the two is very likely iodine The Iodine Protocol.

I researched iodine for several years, reading everything that came my way, I even ordered Dr. David Brownstein's book "Iodine: Why You Need It And Why You Can't Live Without It". I also listened to a lot of podcasts and watched videos online and have been taking Lugol's solution of iodine, a combination of iodine and iodide, since 2006. And prior to that I took kelp tablets, then bladderwrack in capsules, but today most seaweed is highly contaminated, and bladderwrack is high in bromine, one of the other 3 halogens that block the absorption of iodine (whiich is why hardly anybody here is getting enough!).

Oh, I want to add, I do not have fibromyalgia but my younger sister does. When I gave her transdermal magnesium (magnesium chloride a.k.al "magnesium oil") she reported back to me that it had eliminated the pain she had on her feet every morning, I
had also researched this so I knew it was very recommended for several different types of pain (Uses of Magnesium Oil | Dr. Sircus ). Magnesium chloride has detoxing properties and is often recommended to be used during the iodine detox. Magnesium is needed for the formation of over 300 enzymatic functions in the body so it's not too farflung to imagine that its deficiency (NOT abundant in the American diet...) would wreak havoc in the body in multiple organs.
I agree with you on the iodine and Americans lacking enough of it in our diets. When I took this years ago I ran out and couldn't get ahold of more asap. I quickly returned to my no energy, aching self when just prior I was able to work 3 days a week conquering train station stairs back and forth to work. I thought my iron pills was doing the job. I'm so happy to be taking this supplement.

I think the Medical Field will one day realize there's a link between Thyroid Disease and Fibromyalgia and will first recognize it then address the deficiencies. At least I hope.

Interesting on the magnesium. This too whenever I forget to take the capsule or fall asleep before taking I certainly feel the difference the next day or so whenever I skip.
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Old 08-05-2013, 02:54 PM
 
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I know this thread is a little old, but I had generalized pain for years. Only one doctor ever gave a diadnosis and it was fibermyalgia, even though I am a man and it is, apparently, mostly a women's disease.

I also have peripheral nueropathy and research told me it was possible that statins could be part of the reason I had terrible shocks running through my feet. Because of this I stopped taking statins.

As a result I no longer have shooting pains (at least not nearly as bad, or for as long a duration) in my feet and my generalized pain is gone.
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Old 08-05-2013, 03:09 PM
 
Location: In a house
13,250 posts, read 42,770,834 times
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Quote:
Originally Posted by Tek_Freek View Post
I know this thread is a little old, but I had generalized pain for years. Only one doctor ever gave a diadnosis and it was fibermyalgia, even though I am a man and it is, apparently, mostly a women's disease.

I also have peripheral nueropathy and research told me it was possible that statins could be part of the reason I had terrible shocks running through my feet. Because of this I stopped taking statins.

As a result I no longer have shooting pains (at least not nearly as bad, or for as long a duration) in my feet and my generalized pain is gone.
Why were you taking statins? Is whatever you were taking them for, cleared up?
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Old 08-05-2013, 04:58 PM
 
Location: near bears but at least no snakes
26,656 posts, read 28,662,436 times
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Quote:
Originally Posted by Tek_Freek View Post

I know this thread is a little old, but I had generalized pain for years. Only one doctor ever gave a diadnosis and it was fibermyalgia, even though I am a man and it is, apparently, mostly a women's disease.

I also have peripheral nueropathy and research told me it was possible that statins could be part of the reason I had terrible shocks running through my feet. Because of this I stopped taking statins.

As a result I no longer have shooting pains (at least not nearly as bad, or for as long a duration) in my feet and my generalized pain is gone.

For fibromyalgia you really do need to get a diagnosis. I was first diagnosed by a fibro specialist in Boston back in 2001. They check you for certain pain trigger points. He had so many patients that he saw us in a group and there were a few men, but mostly women. The prescription was aerobic exercise--I think it was 15 or 20 minutes every single day. No one knows why, but it works.

He said to get a physical therapist for the exercises. In my case, I was very weak and could not exercise so he advised me to do my exercises in a heated pool. I did a few days in the pool and had special exercises to do at home on the off days. It did work!

I read somewhere that it might have something to do with getting oxygen into the muscles but don't ask me, all I know is that it worked. Every single day, those same aerobic exercises. It wasn't too long before I was actually walking around.

I was fibro free until two years ago when I got a terrible virus and it came back! It takes a while to get a diagnosis--the drs often won't believe you--and in this case I didn't believe it myself. Finally I asked to see a rheumatologist and he diagnosed the fibro.

I told him how the exercise had worked last time and he set me up with the physical therapist and the pool. It started to help and meanwhile I researched online. I was looking for something that would help me sleep--that is one of the symptoms of fibro--one of the things I came up with was an amino acid called L-Glycine. I took it for sleep three nights in a row and the third morning I woke up pain free.

There is something about amino acids and fibromyalgia because my doctors back in 2001 tried them on me--but they did not try L-Glycine. That said, I wouldn't know what to recommend. Everyone is so different. I never heard of L-Glycine curing fibro and my current doctor had never heard of it either. He'd heard of it for sleep though. Maybe my muscles needed that deep sleep so they could repair themselves, I don't know. Other amino acids that were recommended to me back in 2001 were methionine, SamE and maybe a few others. Some work for some people, some work for others. If all else fails, I think the aerobic exercise helps just about everyone but it has to be very gentle or you will make your condition worse. whew. I hope this helps somehow--but first you have to see if you really do have fibro. Maybe your pain is from those statins?

With fibro most people feel pretty good as long as they do not move. But once they use their arm or their leg, they are in trouble because later on, that arm or leg will HURT. It will feel like a strained muscle, like you overdid it, but it doesn't go away like a strained muscle would. There's fatigue, insomnia, stiffness, weakness. Some people have more symptoms.

Fibromyalgia Symptoms - Symptoms of Fibromyalgia - from WebMD

Last edited by observer53; 08-07-2013 at 05:45 AM.. Reason: fixed broken quote tag
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Old 08-06-2013, 06:15 AM
 
Location: In a house
13,250 posts, read 42,770,834 times
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Mod cut: Orphaned.

- what did you do for the high cholesterol, if you -were- taking statins for it, but stopped because of fibromyalgia pain?

What do people who have fibromyalgia and high cholesterol do, to treat one, without adding risk to the other? How are -both- treated simutaneously?

Last edited by PJSaturn; 08-06-2013 at 03:40 PM..
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Old 08-06-2013, 09:41 AM
 
Location: near bears but at least no snakes
26,656 posts, read 28,662,436 times
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Quote:
Originally Posted by AnonChick View Post
Mod cut: Orphaned. - what did you do for the high cholesterol, if you -were- taking statins for it, but stopped because of fibromyalgia pain?

What do people who have fibromyalgia and high cholesterol do, to treat one, without adding risk to the other? How are -both- treated simutaneously?
For the cholesterol I tried a vegetarian diet for several months which had no effect whatsoever. Then my doctor put me on fish oil capsules and daily oatmeal plus more exercise. I also took red yeast rice along with CoEzymeQ10. That combination lowered the numbers--although I wish I knew which component did the trick. The red yeast rice is a statin, of course!

I didn't stop taking statins because of fibromyalgia pain though. At the time I was diagnosed with high cholesterol I had already gotten over fibro with physical therapy. It was a few years later that I found out about the cholesterol and was put on statins but that pain was a different kind of pain, not like fibro. If I remember correctly it was in my arms and legs and it hurt no matter what. Fibro pain will be all over and it gets worse if you use your muscles. If you could sit perfectly still for days on end, you might not even know you had fibro--but what kind of life would that be.

The pain from the statins came and stayed--no difference whether I moved, exercised, or sat still, but it went away quickly once I discontinued the statins.

Last edited by PJSaturn; 08-06-2013 at 03:41 PM..
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Old 08-07-2013, 01:17 AM
 
Location: Middle of the valley
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It's not auto immune, but thanks for playing.
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Old 08-07-2013, 08:41 AM
 
17,533 posts, read 39,113,698 times
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Originally Posted by Mikala43 View Post
It's not auto immune, but thanks for playing.
There seems to be disagreement whether it is or not, however the point is rather moot.

To the OP - have you tried acupuncture? I have just started treatments for issues I have with pain in my joints, muscles, back, etc. Not sure if I have fibro - never diagnosed. But I have pain that comes and goes and I have always felt it was an imbalance of hormones causing it. The acupuncture helps deal with pain, plus balances out the body by opening up blocked channels. It really works, you might give it a try.
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Old 08-07-2013, 09:51 AM
 
Location: near bears but at least no snakes
26,656 posts, read 28,662,436 times
Reputation: 50525
Fibromyalgia is not well understood and it seems to be different in different people. Acupuncture didn't help me a bit but it may help someone else.

I wouldn't call it autoimmune--it's more like some internal imbalance. There is quite a bit of research--and it was the thing my doctors tried at first--on amino acid deficiency. How to know which amino acids are missing or depleted?? That's what I would like to know. I have stopped the pain by taking one amino acid but it was hit or miss, trial and error.
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