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Thankyou-i thought it might be mercury too but unfortunately my 24 hour urine tested only showed really low levels of mercury
Quote:
Originally Posted by jhlcomp
I have not read all the posts here, but you do need to get a another opinion - several, in fact.
If you happen to consume seafood 5 - 7 times a week, you may be suffering from mercury poisoning. This is a problem that is coming more and more to the publics awareness of late. Either way, have yourself checked for this.
And, please - no more talk about suicide, your life is too precious.
Thankyou Dennis-ive never used a fire extinguisher.I do use my computer a fair bit though but ive had this illness before i had a computer unfortunately
Quote:
Originally Posted by dennis s
I thought of something today.
Long term exposure to a fire retardant called Polybrominated Diphynal Ethers will give you the symptoms that you described.
This chemical has for years been added to plastics to make them less flammable.
This chemical does not bond well with polymers and epoxies thus is always off gassing.
A common source is carpet and rug padding but any plastic can be suspect.
If you work around these substances this may be the problem.
P.S. all circuit boards are coated with this chemical compound so if you work on a computer or in a room of computers you are definitely being exposed to this.
thankyou for your kind words Unite and and im sorry about your pain and i hope and pray that your illness and symptoms end now.Thankyou very much-ill ask for thise tests.
I had my sinuses checked and they are ok and i dont drink/use products that have aspartame in them-i dont know how theyre allowed to sell them either.I was at the hospital afew months ago and they were talking about stocking diet coke etc in their vending machine and i was surprised.I was thinking isnt it meant to be a hospital and place of health.
Quote:
Originally Posted by UNITE
Hello mkor,
I need you to know that first of all you are loved. I do understand your pain. I am sitting in it as we speak. I have been in pain for 13 years and it just gets worse cause no body either takes the time, or just don't know what it is. THey are looking for fibromyalgia or MS in me right now. I have various medical problems myself. I am a cancer survivor for one. I lost my uterus to that. I have, what my gyno calls pop off cysts on both ovaries, very,very painful. Pop off meaning they grow on and pop off all by themselves. I had 45 minutes to get into surgery or I was going into renal failure.I had a completely blocked kidney tube and that was pain like no other as well. They stinted my kidney tube for 10 days and removed it from my already ailing bladder and put it onto another spot of my bladder. I feel it everyday all up and down my back. There is a muscle that runs directly at the bottom of your bladder,that is called the Smooth Muscle, it is about as wide as your hand, well mine has pretty much quit. The only thing that is keeping me from having to wear a pee bag is about 5 different pills that I just keep switching back and forth to. When one starts getting to where it is not helping than the doctor just puts me back on one of the others and it just keeps goin like that. I see a specialist of 35 years in this field. He and another doctor friend of his even wrote a book on this but still does not know what to do for it. He said I have the worst case he has ever seen. Gee thanks doc.
I had just recently been told that I have a case worse than osteoperosis and that my bones were crumbling at the base of my spine. I lost it. So they started doing more bone scans. They found arthritis in my feet the last time. My back stays in excruciating pain daily.
I have trigger finger (tendonitis that locks your fingers in a bent position) in my right hand that can run pain up my arm, into my shoulder and then my neck. I also have tendonitis in my left hand as well just not as bad.
I had polips removed from my colon last year. I have excruciating pain around my gulbladder due to polips as well. That is one of my pains that I just almost cannot take anymore. During this pain, I do feel like it is killing me slowly but surely. It hurts bad.
Taking all these pills mess up my vision, my sleep ( I have very different sleeping times and patterns than a normal sleep).
Just recently mkor, a patient who had been in a coma came out of it and speaks and is doing miracles due to the drug "Ambient". It is a sleeping pill. I am not sure if you have to have a prescription but if I was you,( since you are not medicating right now) , I would try it just ease the spasms and maybe some of the pain. Have you been in an accident that involved your spine, neck or head or back?
Look in your food and maybe your drinks lists and see if you are ingesting ASPERTAME. That is one wicked drug. It is usually found in diet foods. It attacks the central nervous system and can do many bad things to the human body. I can't believe they get away with being able to sale it.
Another suggestion. Go to the Dentist and look for infected roots or gums, but pay attention to the earlier posters who are educated in that mercury thing. Sometimes a bad tooth can cause havoc in the body, it can also cause congestive heart failure or lead to heart disease.
Your sinuses. How are they? This is another thing that can rule what is going on in your body. THe sinuses like the teeth are close to the brain, but still runs fluids through your blood to other parts of your body.
I am not a rocket scientist by no means. I am just glad that you found your way to this forum. Stay here. We just have to hang tight. I will have no suicides on my watch if I can help it. We will get through this. We have learned to live with some major pain, please don't give up now. YOu can be my inspiration and I will be yours. Ok? I was 30 when all mine started. It did start with migranes as well.
Have the doctors check for air in your colon and fluid on your spine and have them check your neck stem for infection.
By the way, they are going to do an epidural steroid test on me at the end of the month. I'll let you know how it goes.
Thankyou Burgi:
Ive had brain and spine mri and they were ok and negative for ms.I have the results to about 80% of my tests.I havnt had Basic Metabolic Panel (BMP)?
Rheumatoid factor was negative and the test specific for lupus was negative but my ana was positive-speckled pattern.
The doses have varied so im not really sure.
Ive only tried otc and tramadol pain medication but they didnt help.
I dont remember any major accident but i have a small scar on the back of my head which i dont know what from.
Thankyou very much for helping me
Mary
Quote:
Originally Posted by Burgi
Forgive me if this is a repeat question. Have you had an MRI? With your symptoms I would say Brain and whole spine. Do you have the results to all of your blood tests? Specifically a Complete Blood Count(CBC) or Basic Metabolic Panel (BMP)? Not sure if it would be the same names there. Have you had a Rhumatoid Factor drawn? Impt with elevated ANA. I will reread the posts to see if you answered that already.
Do you know the specific dosages of the medications you have been on. Specifically the anti-seizure meds. Do you have any pain medications? I haven't seen you list any?
Have you ever been involved in an accident (car or other)?
There absolutely is lyme disease in Australia. You stated you are positive for the Mycoplasma fermentans bacteria? This bacteria is found in many patients with neurological symptoms that you are describing including Lyme disease.
Neurological symptoms can be difficult diagnose. You have to hang in there! I know it sucks.
Have any doctors considered: Multiple Sclerosis, Lupis, or RA?
I am 27 year old female .
Can anyone please tell me if they have pulsating sensations or if they know what this is or what medication i can take to make this stop please.No doctors have been able to help and im considering suicide.
I have continual episodes of
tingling/pins and needles in my feet,sometime short jabs of pain in feet,tingling in my
hands,sometimes now pain travelling down my arms,small leg/foot muscle
twitches/trembling,sometimes finger twitches,occasional "travelling" pain,severe
headache-forehead area-non tension or pulsatile,waves of chills/shivers,hot face
sometimes,confusion,disorientation,blurriness,memo ry loss,ringing in my
ears,hypersensitivity to
noises,numbness in feet,now sometimes sweating in palms and feet and sometimes all over
too,ringling in ears,pulsating in my stomach,feet,genitals,throat,temple and head and
now also pulsating in my fingertips and lowerback,,at the same time i get spontaneous
crying,or hysterical anger or rages,yelling at my dad for example,taking things the
wrong way-all without control.These episodes range in time from 2minutes to 2 hours
approximately and are continual-as soon as one stops another begins-all day and
night.
Im living in hell.
I think its somehow blood?flow? related because i always get the pulsating in the above
mentioned areas but at the same time i also get the irrational rages and/or crying
etc.Could it be too much/not enough blood flow to an emotional area of the brain?
I have tried many medications including s
imenet,proprananol,zyprexa,zoloft,prozac,lexapro,d iamox,seroquel,risperidone,ritalin,de
pakote,lamictal,tegretol,keppra,sandomigran,sumatr iptan,clonidine,guanfacine,valium,mur
elax,aspirin,vitamins,herbs,eliminated
wheat,psychologist,acupuncture,chiropractor-this is the short list-there are more but i
cant remember because of my memory loss-and nothing has helped at all.
PET scan showed
hypometabolism of both temporal lobes,particularily in the middle temporal gyrus and
more pronounced on the left.(these symptoms were happening during the PET scan)
Does anyone have anything like this?-particularly the pulsating sensations or does anyone know what i can take to make this stop.
PLEASE REPLY VERY URGENTLY
THANKYOU
ok
you must be know your case
there are many type of epelepsy your case deale with one type
best treatment just with tegretol one tab dialy 200mg
Thankyou for replying.
These last few days have gotten extremely bad.I keep having episodes of tingling/pulsating/? in feet,then huge shaking sensation in my head,sweating,blurry vision,noise sensitivity, pain in head and automatically just reacting angrily/having outbursts-without being aware/being able to control it or spontaneous crying and also just a huge strange terror/horror feeling coming over me and sometimes spontaneous hysterical crying,the environment/atmosphere literally become dark and gloomy etc and always ending with the strange sensations in my feet and huge pulsating in my head and stomach etc.I feel like my life is just hell-everyday has been worse and im afraid i wont find what is causing this and get treatment so i cant see myself going on anymore.
Daniela:have you been tested for vitamin k and Goodpasture's disease?
Benign Intracranial Hypertension can make your nose bleed but i wouldnt think it would make your lungs bleed?
Thankyou for replying.
These last few days have gotten extremely bad.I keep having episodes of tingling/pulsating/? in feet,then huge shaking sensation in my head,sweating,blurry vision,noise sensitivity, pain in head and automatically just reacting angrily/having outbursts-without being aware/being able to control it or spontaneous crying and also just a huge strange terror/horror feeling coming over me and sometimes spontaneous hysterical crying,the environment/atmosphere literally become dark and gloomy etc and always ending with the strange sensations in my feet and huge pulsating in my head and stomach etc.I feel like my life is just hell-everyday has been worse and im afraid i wont find what is causing this and get treatment so i cant see myself going on anymore.
Daniela:have you been tested for vitamin k and Goodpasture's disease?
Benign Intracranial Hypertension can make your nose bleed but i wouldnt think it would make your lungs bleed?
No, I have not been tested for either. I am delivering my baby tomorrow via C-section - scared as hell from the pain that would pile up on top of everything else I am experiencing - and after that we will start with the meds and the tests. One possibility for our problems may be vasculitis and more specifically Central Nervous System, a.k.a. brain vasculitis. There are no reliable tests for that - the only way to figure it out is brain biopcy. Look it up - it describes the headaches I am having to the T. I think the remaining symptoms - pulsation, burning, buzzing, etc are a result of the headache or the seizure like activity that is going on.
Wish me luck I may write you an e-mail from the hospital if I am still alive after the surgery. I look forward to the pain meds - hopefully I will be able to sleep - have not really had a good night sleep for months.
mkor: do you have any doctor appointments coming up? I still think it sounds like frontal lobe seizure, but it's unclear why the treatments aren't working and there are so many other things they could be testing for
kotka: good luck tomorrow, make them give you all of the good stuff - I know they gave me valium by iv and then of course the pain pills - I was in heaven (oh, and of course ecstatic to have my little one, of course!) - good luck!
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I was 30 when all mine started. It did start with migranes as well. 
