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Old 11-16-2017, 02:36 PM
 
Location: NY>FL>VA>NC>IN
3,563 posts, read 1,879,603 times
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Quote:
Originally Posted by safina1 View Post
I have been experiencing extreme fatigue on and off for about ten years now. I have never thought about going to an endo until this year. Now, that I am following up with a specialist who monitors my hormones and vitamins, etc.. I still feel like I am confused but a bit more informed than before.

One of the symptoms of under-active thyroid is cold sensitivity but I am experiencing the opposite. I feel warm and I can easily take my jacket off because I feel it is warm enough for me. that is not an under-active thyroid.

At the same time, my face is puffy. I have gained weight. My appetite has increased. Sometimes, I feel like I run over by a bus and I am extremely tired.

I need to read up more on autoimmune diseases. should I talk to my doctor about it? or what?

My ultimate goal now is to gain strength and lose more weight and be able to go to the gym. I want to lose the last 20-30 pounds.
Yes for sure, do a bunch of research yourself and ask your doc too, extreme fatigue for years is in line w/AI presentation. Puffy face (Cushingnoid facies) is too. No harm to investigate; I can tell you and I bet Mikala or anyone who is familiar w/AIs will concur that they often present in ways that change (symptoms come/go and switch up), and therefore elude diagnosis for ages unless as I said, one has a really stellar doc.

My background is in a med/sci field and it still took 7 weeks (not long I know but her symptoms were alarming and critical) to dx my daughter; she saw peds, pedi hem/onc, and finally GI before she was diagnosed and was close to death by that time, not exaggerating. Point being it took THREE docs in 3 specialties before we got the correct dx as her symptoms were atypical.
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Old 11-16-2017, 02:39 PM
 
Location: Middle of the valley
48,526 posts, read 34,851,331 times
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They are an evil, morphing, inconsistent bane to bear.
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Old 11-16-2017, 02:43 PM
 
Location: NY>FL>VA>NC>IN
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Quote:
Originally Posted by Mikala43 View Post
They are an evil, morphing, inconsistent bane to bear.
Very well put! Pithy and perfect!
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Old 11-16-2017, 04:09 PM
 
582 posts, read 763,473 times
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Quote:
Originally Posted by OverItAll View Post
Yes for sure, do a bunch of research yourself and ask your doc too, extreme fatigue for years is in line w/AI presentation. Puffy face (Cushingnoid facies) is too. No harm to investigate; I can tell you and I bet Mikala or anyone who is familiar w/AIs will concur that they often present in ways that change (symptoms come/go and switch up), and therefore elude diagnosis for ages unless as I said, one has a really stellar doc.

My background is in a med/sci field and it still took 7 weeks (not long I know but her symptoms were alarming and critical) to dx my daughter; she saw peds, pedi hem/onc, and finally GI before she was diagnosed and was close to death by that time, not exaggerating. Point being it took THREE docs in 3 specialties before we got the correct dx as her symptoms were atypical.
I am glad to hear that your daughter has finally got the correct diagnosis. So who did it? Was it the GI ? I am following up with an endocrinologist. Do I need to see someone else?
I did a quick search online and there are many AIs. Wondering which one I have. Or maybe I have a bunch of them.
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Old 11-16-2017, 04:12 PM
 
582 posts, read 763,473 times
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Quote:
Originally Posted by Mikala43 View Post
Did we cover pro-biotics? Studies have shown different flora in over weight and thin people. I have never noticed anything with the pills you buy, but am a big proponent of natural probiotics. Saurkraut, kim chee, keffir, yogurt (different brands have different strains check the label, kobucha (my fave) and stuff like that.
Thanks for bringing that up. I was avoiding fermented foods because of their high sodium content and how it makes my body retains water. I was worried that it will get in my way to lose weight. Now I think it is time to start thinking about them again.
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Old 11-17-2017, 07:59 AM
 
Location: NY>FL>VA>NC>IN
3,563 posts, read 1,879,603 times
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Quote:
Originally Posted by safina1 View Post
I am glad to hear that your daughter has finally got the correct diagnosis. So who did it? Was it the GI ? I am following up with an endocrinologist. Do I need to see someone else?
I did a quick search online and there are many AIs. Wondering which one I have. Or maybe I have a bunch of them.
Yeah that was 9 years ago she was 10y/o, it was severe Crohn's but she presented like lymphoma (weight loss, enlarged lymph nodes, night sweats, fever, tachy HR, no appetite, severe anemia) moreso than "typical" Crohn's (bloody diarrhea, abd pain, vomiting).

My suggestion: write down symptoms for a month then visit your doc and see what he says. Extreme fatigue alone is too vague. Watch for joint pain, come-go fevers, flushing, anything not easily explainable by circumstances or triggers; anything odd.

If you do this for a month a pattern may (or may not) emerge.
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Old 11-17-2017, 08:10 AM
 
582 posts, read 763,473 times
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Quote:
Originally Posted by OverItAll View Post
Yeah that was 9 years ago she was 10y/o, it was severe Crohn's but she presented like lymphoma (weight loss, enlarged lymph nodes, night sweats, fever, tachy HR, no appetite, severe anemia) moreso than "typical" Crohn's (bloody diarrhea, abd pain, vomiting).

My suggestion: write down symptoms for a month then visit your doc and see what he says. Extreme fatigue alone is too vague. Watch for joint pain, come-go fevers, flushing, anything not easily explainable by circumstances or triggers; anything odd.

If you do this for a month a pattern may (or may not) emerge.
That is a great idea. Thank you! My doctor seems confused and I think this will help.
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Old 11-17-2017, 08:16 AM
 
Location: NY>FL>VA>NC>IN
3,563 posts, read 1,879,603 times
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Quote:
Originally Posted by safina1 View Post
That is a great idea. Thank you! My doctor seems confused and I think this will help.
LOL old joke from my grad school days:

Q : What do they call the guy who graduated last in his class from med school?

A: Doctor

With AIs rheumatologists are best; a really exceptional internal med guy may catch it but I'm tellin you, dx these can take foreffingever and be prepared to be called a hypochondriac
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Old 11-17-2017, 08:47 AM
 
582 posts, read 763,473 times
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Quote:
Originally Posted by OverItAll View Post
LOL old joke from my grad school days:

Q : What do they call the guy who graduated last in his class from med school?

A: Doctor

With AIs rheumatologists are best; a really exceptional internal med guy may catch it but I'm tellin you, dx these can take foreffingever and be prepared to be called a hypochondriac
He is an endocrinologist and he is the best in his field. In all fairness, he is a good doctor.
Are you suggesting I should see a rheumatologist?
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Old 11-17-2017, 10:33 AM
 
Location: Round Rock, Texas
13,448 posts, read 15,481,027 times
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Sorry, OP, don't mean to sound harsh, but you keep missing the elephant in the room. Why won't you start at least some sort of physical activity? Walking is very low impact. While I understand your medical problems, it's written out clearly why you aren't losing weight any longer. Other than reducing your caloric intake further, the only way you're going to bust through this plateau is to also burn calories.
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