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I don't like to see posts about how to deal with cancer, from people who have not had cancer. I don't like to get advice from people who haven't been through it either. It makes me mad. Does anyone else feel this way?
I don't like to see posts about how to deal with cancer, from people who have not had cancer. I don't like to get advice from people who haven't been through it either. It makes me mad. Does anyone else feel this way?
I absolutely agree with you (other than advice that I would receive from a professional healthcare provider).
I feel all of you with your heat on! My roommates and I are trying to avoid turning on our heat (and are lucky that the people downstairs seem to blast theirs, so we get the residual!) but the "boot" slippers, electric blankets, and snuggies are coming out. My grandmother just finished crocheting me another afghan so I now have a blanket in practically every room of the house, plus at friends' houses that I spend lots of time. Anyone else find that post-chemo, your temperature regulation is all off? If it's not between 65 and 80, I am either shivering or sweating!
I totally agree on the advice bit. One of the worst in recent memory was the chef at my cancer camp. She went on and on about how cancer can't thrive in alkaline environments, and how we should drink lemon water every day. Now, I drink a fair bit of lemon water - but because it's tasty and helps me drink MORE water, not because I think a little lemon juice is going to change the acidity of my body! The other campers and I kept our mouths shut because this woman had just given a week of her time to make us the best, healthiest meals I have ever had (chocolate mousse made with avocado and no refined anything! spelt flour chocolate cake with coconut oil and tofu frosting! and that's just the desserts...), but it was quite uncomfortable.
I deal with it a lot with my boyfriend (and I know I've talked about dating - we're currently in an open relationship though as I get further out from chemo, commitment doesn't scare me as much as it did when I met him just a few weeks after ending treatment). He thinks I should just move on, and doesn't quite get why I do so many things in the community. It's a learning curve for both of us.
Anyone else find that post-chemo, your temperature regulation is all off? If it's not between 65 and 80, I am either shivering or sweating!
Temperature regulation issues for me actually started the winter before I was diagnosed and continues to this day, so it might be more a function of lymphoma than chemo. I find that I feel chilled much quicker than I did in years past, although the heat doesn't bother me at all. I describe the feeling of being chilled as being "core cold". My upper body starts to feel cold and it takes a few layers of clothing before that feeling subsides.
I also find that I am more uncomfortable with drafts or air blowing directly on me than I did in the past. Maybe related? Maybe not? I don't know. In restaurants, I try to sit in areas where the air conditioning is not blowing in my direction, even on a warm day.
I don't like to see posts about how to deal with cancer, from people who have not had cancer. I don't like to get advice from people who haven't been through it either. It makes me mad. Does anyone else feel this way?
Yes. I usually had a sharp **** for those people. I have been thinking about writing an essay or maybe even a book about life post cancer. Was thinking something along the lines of collaboration of their stories along with mine, with pictures of them doing something they enjoy. By survivors for survivors. No agenda, but first hand how to cope and adjust to life after cancer.
Quote:
Originally Posted by charolastra00
I feel all of you with your heat on! My roommates and I are trying to avoid turning on our heat (and are lucky that the people downstairs seem to blast theirs, so we get the residual!) but the "boot" slippers, electric blankets, and snuggies are coming out. My grandmother just finished crocheting me another afghan so I now have a blanket in practically every room of the house, plus at friends' houses that I spend lots of time. Anyone else find that post-chemo, your temperature regulation is all off? If it's not between 65 and 80, I am either shivering or sweating!
I totally agree on the advice bit. One of the worst in recent memory was the chef at my cancer camp. She went on and on about how cancer can't thrive in alkaline environments, and how we should drink lemon water every day. Now, I drink a fair bit of lemon water - but because it's tasty and helps me drink MORE water, not because I think a little lemon juice is going to change the acidity of my body! The other campers and I kept our mouths shut because this woman had just given a week of her time to make us the best, healthiest meals I have ever had (chocolate mousse made with avocado and no refined anything! spelt flour chocolate cake with coconut oil and tofu frosting! and that's just the desserts...), but it was quite uncomfortable.
I deal with it a lot with my boyfriend (and I know I've talked about dating - we're currently in an open relationship though as I get further out from chemo, commitment doesn't scare me as much as it did when I met him just a few weeks after ending treatment). He thinks I should just move on, and doesn't quite get why I do so many things in the community. It's a learning curve for both of us.
My temperature control didn't bother me. During chemo car rides were hell for me. I didn't know if I could ever travel again. I love a good road trip and adventure. It took some time before that all came back.
After chemo, I started to do some landscape work as side projects. That summer the projects I had were usually done during the hottest days. It didn't wear me down like I thought it would.
Glad to know I am not alone. OMG charo, my inner temperature is all screwed up. I know the chemo has goofed up my hormones and I suspect that may be why, although I can't say that for sure. SD4020, that book sounds great! I would read it! You should definitely write it.
Glad to know I am not alone. OMG charo, my inner temperature is all screwed up. I know the chemo has goofed up my hormones and I suspect that may be why, although I can't say that for sure. SD4020, that book sounds great! I would read it! You should definitely write it.
I typed out the first paragraph of preface yesterday... At this rate, it might be a while.
Update on my dad: He had an appointment today that was not so good. He needs to schedule an MRI because his doctor is concerned with early-onset Alzheimers. His liver is enlarged and there is still concern with his heart - he is also meeting a cardiologist. My parents have high deductible insurance that is over $400 a month with a $3000 deductible. My dad has been unemployed for 4 years and my mom works at a daycare making *maybe* $20,000 a year. My brother just turned 23 and is not even 6 months into his first job, and I, of course, am still living paycheck to paycheck from cancer treatment. My brother and I both live in New England, my parents are in Georgia without any family or friends.
Their house is worth less now than when they bought it new in the early 90s. They just refinanced their mortgage as well. My dad is 55 and my mom is 53 - far off from Medicare and make too much money for Medicaid.
And one of my roommates just told me she's moving out in 3 weeks, breaking our lease mind you, and has "no plans to help find a new roommate or pay for November's rent". I'm panicking.
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