04-10-2010, 10:15 PM
Location: Interior alaska
6,381 posts, read
14,568,769 times
Reputation: 3520
Quote:
Originally Posted by
blueflames50
Mark...glad to hear the move towards the "remission cancer club" are coming along well by the sounds....there is sooo much they don't tell you when going into and thru cancer treatments that you'd like to slap some of them upside the head!! hahaha....the Vit. D low levels...everyone I know including myself are several years later fighting to keep the levels up....seems one of the things you will be taking a supplement for the rest of your life...ya feel sooo much better when the level is up there....just keep a sense of humor about life and the way you feel and remember there are so many other things you could have that could be worse than cancer....like trapped in a body that doesn't work but a great mind....we can walk, talk, take care of ourselves...awesome!
Thanks,
It is funny how you don't know about something until it hits you broadside, then you find out more than you cared to know about it. I read all sorts of books on the subject, checked the Internet and so forth.
The best part of the treatments though, is the people at the clinic where the radiation was done and all the other levels that led there, they were very comforting for something they did day in and day out. I was more of the exception, where many that I saw there getting radiated were past a cure, but more of a panic to live a tad longer.
That sadness is hard to shake, one guy was telling me all about his "Bucket List", each day he was there before me and when I got there we would chat over a jigsaw puzzle in the waiting/recovery area where you could just sit and relax of sorts before going home or being treated.
Normal levels of the PSA is below one, mine was at about 34 then (.07 now), which is bad, this guy was 2400 which I didn't even know was possible.
I got off easy by most standards, the other poor souls have really a hard road to deal with ahead of them.
That is why testing it so important early.
04-10-2010, 10:19 PM
Location: Casa Grande, AZ
8,685 posts, read
16,851,038 times
Reputation: 10335
Quote:
Originally Posted by
oneyear
What age were you when you were diagnosed? And when did you first start having it checked?
I think with the new AUA guidelines it is sooner now, especially if a family history...a lot of people need to pee freely, women included with anticholenergics...overactive bladder, and gosh I know...cut back the caffeine....Dad is probably on Flomax or Uroxatral if not and/or anticholenergic....the issue is to have men have it checked earlier in life, then you don't get the degree Mark had....You have side effects whether radiation, prostatectomy, seeds,...watchful waiting if lucky....all with side effects whether before or after of incontinence or erectile dysfunction....
04-10-2010, 10:23 PM
400 posts, read
469,127 times
Reputation: 83
holy shiat granny, my mind just blew with that post. ohhh, it ain't looking pretty to get older
04-10-2010, 10:23 PM
Location: Interior alaska
6,381 posts, read
14,568,769 times
Reputation: 3520
Quote:
Originally Posted by
oneyear
What age were you when you were diagnosed? And when did you first start having it checked?
I had the standard "Finger" tests done for years, and there was nothing odd or out of order. After the blood test came back positive, they did a sonogram on me and found the Prostate which normally was about 30 CC's or so, was about 50 CC's, most Prostate Cancer cases, the Prostate is about 200 to 300 CC's in size, which causes urinary issues, of which I had none.
Both my dad and uncle on my mom's side had Prostate Cancer, so my odds of getting off the hook were slim. When I was 53 (now 55) I was first tested with a blood test, which is the PSA. From there, it was figured that I had the cancer from 12 to 14 years after they did a biopsy which is called a Gleason Score of which I was an 8 out of the scale of 10. It is a very slow growing cancer and when caught early is by far the easiest to cure, mine is/was on the line, and time will tell for that.
04-10-2010, 10:27 PM
Location: Interior alaska
6,381 posts, read
14,568,769 times
Reputation: 3520
Quote:
Originally Posted by
oneyear
holy shiat granny, my mind just blew with that post. ohhh, it ain't looking pretty to get older
Well for what it is worth, you being a gal, you have a whole slew of gautlets you women have to contend with verses what men have.
Getting old isn't for the weak at heart and faint of mind...
Really sucks in the morning when you have to walk around the bedroom when you get up to find all the parts that fell off the night before...
04-10-2010, 10:35 PM
400 posts, read
469,127 times
Reputation: 83
Quote:
Originally Posted by
starlite9
I had the standard "Finger" tests done for years, and there was nothing odd or out of order. After the blood test came back positive, they did a sonogram on me and found the Prostate which normally was about 30 CC's or so, was about 50 CC's, most Prostate Cancer cases, the Prostate is about 200 to 300 CC's in size, which causes urinary issues, of which I had none.
Are you telling me Mark that you weren't tested for your PSA until you were 53 years of age, and with family history of prostate cancer?
04-10-2010, 10:38 PM
400 posts, read
469,127 times
Reputation: 83
Quote:
Originally Posted by
starlite9
Well for what it is worth, you being a gal, you have a whole slew of gautlets you women have to contend with verses what men have.
Getting old isn't for the weak at heart and faint of mind...
Really sucks in the morning when you have to walk around the bedroom when you get up to find all the parts that fell off the night before...
Yes, I am a female, and I have had a hysterectomy. So I do understand.
04-10-2010, 10:38 PM
Location: Casa Grande, AZ
8,685 posts, read
16,851,038 times
Reputation: 10335
Quote:
Originally Posted by
starlite9
I had the standard "Finger" tests done for years, and there was nothing odd or out of order. After the blood test came back positive, they did a sonogram on me and found the Prostate which normally was about 30 CC's or so, was about 50 CC's, most Prostate Cancer cases, the Prostate is about 200 to 300 CC's in size, which causes urinary issues, of which I had none.
You had a high Gleason score...and you did the right thing with the seeds and radiation...this is very controllable with detection even at where you were at....in 7 years of typing urology, I have not seen a really bad outcome with my docs...if caught and treated...You had a high Gleason score and did well with your treatment, hopefully with the Lupron (minus hot flashes if you have them...know that well
) your PSA will drop to undetectable and after a while you can stop the shots....
04-10-2010, 10:40 PM
Location: Interior alaska
6,381 posts, read
14,568,769 times
Reputation: 3520
Quote:
Originally Posted by
oneyear
Are you telling me Mark that you weren't tested for your PSA until you were 53 years of age, and with family history of prostate cancer?
No, I was "Checked" in the normal fashion, but not properly and like I said, there were no symptoms of the Cancer for "Normal" cases.
When you don't know about what is being done or not done to you, you don't have any questions.
When the Doc said one day, "Why don't we do a PSA Blood test", I had no clue to what that was for.
Do now...
04-10-2010, 10:43 PM
Location: Interior alaska
6,381 posts, read
14,568,769 times
Reputation: 3520
Quote:
Originally Posted by
Grannysroost
(minus hot flashes if you have them...know that well
) your PSA will drop to undetectable and after a while you can stop the shots....
Um, no. I get the whole female hot flash thingys... Really sucks too.
Have a whole new respect for what women have to go though during the "Change of Life"...
Am really looking forward to the end of the shots too
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People in Group quarters - Religious group quarters (%)
People in Group quarters - Dormitories (%)
People in Group quarters - Agriculture workers' dormitories on farms (%)
People in Group quarters - Job Corps and vocational training facilities (%)
People in Group quarters - Other workers' dormitories (%)
People in Group quarters - Crews of maritime vessels (%)
People in Group quarters - Other nonhousehold living situations (%)
People in Group quarters - Other noninstitutional group quarters (%)
Residents speaking English at home (%)
Residents speaking English at home - Born in the United States (%)
Residents speaking English at home - Native, born elsewhere (%)
Residents speaking English at home - Foreign born (%)
Residents speaking Spanish at home (%)
Residents speaking Spanish at home - Born in the United States (%)
Residents speaking Spanish at home - Native, born elsewhere (%)
Residents speaking Spanish at home - Foreign born (%)
Residents speaking other language at home (%)
Residents speaking other language at home - Born in the United States (%)
Residents speaking other language at home - Native, born elsewhere (%)
Residents speaking other language at home - Foreign born (%)
Class of Workers - Employee of private company (%)
Class of Workers - Self-employed in own incorporated business (%)
Class of Workers - Private not-for-profit wage and salary workers (%)
Class of Workers - Local government workers (%)
Class of Workers - State government workers (%)
Class of Workers - Federal government workers (%)
Class of Workers - Self-employed workers in own not incorporated business and Unpaid family workers (%)
House heating fuel used in houses and condos - Utility gas (%)
House heating fuel used in houses and condos - Bottled, tank, or LP gas (%)
House heating fuel used in houses and condos - Electricity (%)
House heating fuel used in houses and condos - Fuel oil, kerosene, etc. (%)
House heating fuel used in houses and condos - Coal or coke (%)
House heating fuel used in houses and condos - Wood (%)
House heating fuel used in houses and condos - Solar energy (%)
House heating fuel used in houses and condos - Other fuel (%)
House heating fuel used in houses and condos - No fuel used (%)
House heating fuel used in apartments - Utility gas (%)
House heating fuel used in apartments - Bottled, tank, or LP gas (%)
House heating fuel used in apartments - Electricity (%)
House heating fuel used in apartments - Fuel oil, kerosene, etc. (%)
House heating fuel used in apartments - Coal or coke (%)
House heating fuel used in apartments - Wood (%)
House heating fuel used in apartments - Solar energy (%)
House heating fuel used in apartments - Other fuel (%)
House heating fuel used in apartments - No fuel used (%)
Armed forces status - In Armed Forces (%)
Armed forces status - Civilian (%)
Armed forces status - Civilian - Veteran (%)
Armed forces status - Civilian - Nonveteran (%)
Fatal accidents locations in years 2005-2021
Fatal accidents locations in 2005
Fatal accidents locations in 2006
Fatal accidents locations in 2007
Fatal accidents locations in 2008
Fatal accidents locations in 2009
Fatal accidents locations in 2010
Fatal accidents locations in 2011
Fatal accidents locations in 2012
Fatal accidents locations in 2013
Fatal accidents locations in 2014
Fatal accidents locations in 2015
Fatal accidents locations in 2016
Fatal accidents locations in 2017
Fatal accidents locations in 2018
Fatal accidents locations in 2019
Fatal accidents locations in 2020
Fatal accidents locations in 2021
Alcohol use - People drinking some alcohol every month (%)
Alcohol use - People not drinking at all (%)
Alcohol use - Average days/month drinking alcohol
Alcohol use - Average drinks/week
Alcohol use - Average days/year people drink much
Audiometry - Average condition of hearing (%)
Audiometry - People that can hear a whisper from across a quiet room (%)
Audiometry - People that can hear normal voice from across a quiet room (%)
Audiometry - Ears ringing, roaring, buzzing (%)
Audiometry - Had a job exposure to loud noise (%)
Audiometry - Had off-work exposure to loud noise (%)
Blood Pressure & Cholesterol - Has high blood pressure (%)
Blood Pressure & Cholesterol - Checking blood pressure at home (%)
Blood Pressure & Cholesterol - Frequently checking blood cholesterol (%)
Blood Pressure & Cholesterol - Has high cholesterol level (%)
Consumer Behavior - Money monthly spent on food at supermarket/grocery store
Consumer Behavior - Money monthly spent on food at other stores
Consumer Behavior - Money monthly spent on eating out
Consumer Behavior - Money monthly spent on carryout/delivered foods
Consumer Behavior - Income spent on food at supermarket/grocery store (%)
Consumer Behavior - Income spent on food at other stores (%)
Consumer Behavior - Income spent on eating out (%)
Consumer Behavior - Income spent on carryout/delivered foods (%)
Current Health Status - General health condition (%)
Current Health Status - Blood donors (%)
Current Health Status - Has blood ever tested for HIV virus (%)
Current Health Status - Left-handed people (%)
Dermatology - People using sunscreen (%)
Diabetes - Diabetics (%)
Diabetes - Had a blood test for high blood sugar (%)
Diabetes - People taking insulin (%)
Diet Behavior & Nutrition - Diet health (%)
Diet Behavior & Nutrition - Milk product consumption (# of products/month)
Diet Behavior & Nutrition - Meals not home prepared (#/week)
Diet Behavior & Nutrition - Meals from fast food or pizza place (#/week)
Diet Behavior & Nutrition - Ready-to-eat foods (#/month)
Diet Behavior & Nutrition - Frozen meals/pizza (#/month)
Drug Use - People that ever used marijuana or hashish (%)
Drug Use - Ever used hard drugs (%)
Drug Use - Ever used any form of cocaine (%)
Drug Use - Ever used heroin (%)
Drug Use - Ever used methamphetamine (%)
Health Insurance - People covered by health insurance (%)
Kidney Conditions-Urology - Avg. # of times urinating at night
Medical Conditions - People with asthma (%)
Medical Conditions - People with anemia (%)
Medical Conditions - People with psoriasis (%)
Medical Conditions - People with overweight (%)
Medical Conditions - Elderly people having difficulties in thinking or remembering (%)
Medical Conditions - People who ever received blood transfusion (%)
Medical Conditions - People having trouble seeing even with glass/contacts (%)
Medical Conditions - People with arthritis (%)
Medical Conditions - People with gout (%)
Medical Conditions - People with congestive heart failure (%)
Medical Conditions - People with coronary heart disease (%)
Medical Conditions - People with angina pectoris (%)
Medical Conditions - People who ever had heart attack (%)
Medical Conditions - People who ever had stroke (%)
Medical Conditions - People with emphysema (%)
Medical Conditions - People with thyroid problem (%)
Medical Conditions - People with chronic bronchitis (%)
Medical Conditions - People with any liver condition (%)
Medical Conditions - People who ever had cancer or malignancy (%)
Mental Health - People who have little interest in doing things (%)
Mental Health - People feeling down, depressed, or hopeless (%)
Mental Health - People who have trouble sleeping or sleeping too much (%)
Mental Health - People feeling tired or having little energy (%)
Mental Health - People with poor appetite or overeating (%)
Mental Health - People feeling bad about themself (%)
Mental Health - People who have trouble concentrating on things (%)
Mental Health - People moving or speaking slowly or too fast (%)
Mental Health - People having thoughts they would be better off dead (%)
Oral Health - Average years since last visit a dentist
Oral Health - People embarrassed because of mouth (%)
Oral Health - People with gum disease (%)
Oral Health - General health of teeth and gums (%)
Oral Health - Average days a week using dental floss/device
Oral Health - Average days a week using mouthwash for dental problem
Oral Health - Average number of teeth
Pesticide Use - Households using pesticides to control insects (%)
Pesticide Use - Households using pesticides to kill weeds (%)
Physical Activity - People doing vigorous-intensity work activities (%)
Physical Activity - People doing moderate-intensity work activities (%)
Physical Activity - People walking or bicycling (%)
Physical Activity - People doing vigorous-intensity recreational activities (%)
Physical Activity - People doing moderate-intensity recreational activities (%)
Physical Activity - Average hours a day doing sedentary activities
Physical Activity - Average hours a day watching TV or videos
Physical Activity - Average hours a day using computer
Physical Functioning - People having limitations keeping them from working (%)
Physical Functioning - People limited in amount of work they can do (%)
Physical Functioning - People that need special equipment to walk (%)
Physical Functioning - People experiencing confusion/memory problems (%)
Physical Functioning - People requiring special healthcare equipment (%)
Prescription Medications - Average number of prescription medicines taking
Preventive Aspirin Use - Adults 40+ taking low-dose aspirin (%)
Reproductive Health - Vaginal deliveries (%)
Reproductive Health - Cesarean deliveries (%)
Reproductive Health - Deliveries resulted in a live birth (%)
Reproductive Health - Pregnancies resulted in a delivery (%)
Reproductive Health - Women breastfeeding newborns (%)
Reproductive Health - Women that had a hysterectomy (%)
Reproductive Health - Women that had both ovaries removed (%)
Reproductive Health - Women that have ever taken birth control pills (%)
Reproductive Health - Women taking birth control pills (%)
Reproductive Health - Women that have ever used Depo-Provera or injectables (%)
Reproductive Health - Women that have ever used female hormones (%)
Sexual Behavior - People 18+ that ever had sex (vaginal, anal, or oral) (%)
Sexual Behavior - Males 18+ that ever had vaginal sex with a woman (%)
Sexual Behavior - Males 18+ that ever performed oral sex on a woman (%)
Sexual Behavior - Males 18+ that ever had anal sex with a woman (%)
Sexual Behavior - Males 18+ that ever had any sex with a man (%)
Sexual Behavior - Females 18+ that ever had vaginal sex with a man (%)
Sexual Behavior - Females 18+ that ever performed oral sex on a man (%)
Sexual Behavior - Females 18+ that ever had anal sex with a man (%)
Sexual Behavior - Females 18+ that ever had any kind of sex with a woman (%)
Sexual Behavior - Average age people first had sex
Sexual Behavior - Average number of female sex partners in lifetime (males 18+)
Sexual Behavior - Average number of female vaginal sex partners in lifetime (males 18+)
Sexual Behavior - Average age people first performed oral sex on a woman (18+)
Sexual Behavior - Average number of woman performed oral sex on in lifetime (18+)
Sexual Behavior - Average number of male sex partners in lifetime (males 18+)
Sexual Behavior - Average number of male anal sex partners in lifetime (males 18+)
Sexual Behavior - Average age people first performed oral sex on a man (18+)
Sexual Behavior - Average number of male oral sex partners in lifetime (18+)
Sexual Behavior - People using protection when performing oral sex (%)
Sexual Behavior - Average number of times people have vaginal or anal sex a year
Sexual Behavior - People having sex without condom (%)
Sexual Behavior - Average number of male sex partners in lifetime (females 18+)
Sexual Behavior - Average number of male vaginal sex partners in lifetime (females 18+)
Sexual Behavior - Average number of female sex partners in lifetime (females 18+)
Sexual Behavior - Circumcised males 18+ (%)
Sleep Disorders - Average hours sleeping at night
Sleep Disorders - People that has trouble sleeping (%)
Smoking-Cigarette Use - People smoking cigarettes (%)
Taste & Smell - People 40+ having problems with smell (%)
Taste & Smell - People 40+ having problems with taste (%)
Taste & Smell - People 40+ that ever had wisdom teeth removed (%)
Taste & Smell - People 40+ that ever had tonsils teeth removed (%)
Taste & Smell - People 40+ that ever had a loss of consciousness because of a head injury (%)
Taste & Smell - People 40+ that ever had a broken nose or other serious injury to face or skull (%)
Taste & Smell - People 40+ that ever had two or more sinus infections (%)
Weight - Average height (inches)
Weight - Average weight (pounds)
Weight - Average BMI
Weight - People that are obese (%)
Weight - People that ever were obese (%)
Weight - People trying to lose weight (%)
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) your PSA will drop to undetectable and after a while you can stop the shots....
